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Join us for the 22nd Annual National Education Conference in Washington, D.C. on June 7-9, 2013. The National Conference is the largest gathering of Alphas and families in the world! This Conference serves as a catalyst to network with each other, become motivated to take charge of your health and get involved in the Alpha-1 Community through local support groups, awareness, outreach activities and advocacy.  This is also a great opportunity to meet with our exhibitors, learn about products/services and more! To register by telephone or if you have any questions, please contact Kim Caraballo, the Association's Membership/ Database Coordinator, at ycaraballo@alpha1.org or at 1-800-521-3025 Ext. 308.The deadline to register is April 29th! 
Answers to Questions  
Artwork by Alphas

Ask An Alpha-1 Doctor

Being informed and asking questions can give you some control over your Alpha-1 and may help you cope. This Ask An Alpha-1 Doctor web portal contains dozens of answers to everyday Alpha-1 related issues. Some specific problems may not apply to everyone. This column is not intended to provide specific medical advice which can only be obtained from a health care provider who has the knowledge of the details of your particular health situation. Questions on this page are reprinted from the Ask-A-Doc columns published in Alpha-1 News.   

ArtByAlphas

To commemorate the past and create hope for the future, Grifols is creating a travelling exhibit of original artwork by Alphas in which YOU can contribute. The concept is simple. You can create an original piece of art that expresses your hope for the future. You don't have to be a professional artist. What counts is sharing your inspirational view of hope with others around the globe. This is an opportunity to become involved in awareness efforts. Participation in this activity will automatically add you into the 2013 Awareness Campaign drawing for some great prizes at the end of the year

 

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THE SIMPLE DOLLAR GUIDE TO HEALTH INSURANCE

As an informed consumer, understanding the building blocks of health insurance can help you avoid confusing, even misleading, lingo which will ultimately end up saving you money. This guide will take you through the health insurance essentials. 

 

ALPHA-1 E-EDUCATION VIDEOS

Watch recordings from Alpha-1 educational events at your leisure anywhere and anytime! The E-Education web portal has more than 200 presentations that cover important Alpha-1 related topics. The presentations from San Antonio's Education Day in March have already been mounted for viewing.

 

FIRE RISK FORCES OXYGEN TANK RECALL  

The manufacturer of a portable oxygen cylinder unit has recalled the product after discovering that fires could occur inside it. They appeared to involve units with a certain type of O-ring that acts as a seal between the cylinder and the pressure-regulating valve.

 

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ALPHA-1 KIDS VSG TELECALL ON APRIL 16TH

The Alpha-1 Association's Genetic Counselor will discuss "Alpha-1 with Teens: Peer Pressure & Family Dynamics."  

HEALTH CARE REFORM  WEBINAR ON MAY 1ST
This webinar will explain how the upcoming Health Care changes will affect the entire rare disease community.
This program offers free phone-based confidential information to Alphas, family members and more.
This E-News is a publication of the Alpha-1 Association  
  
The mission of the Alpha-1 Association is to identify individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.

 

Patient Information Hotline: (800) 245-6809  Genetic Counseling Program: (800)-785-3177   

Request a Peer Guide: (800) 245-6809

 
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