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Support Alphas on Capitol Hill  

AARC_Pact_Lobby_Day On Tuesday, March 12th, members of the Alpha-1 and COPD Community are joining the American Association for Respiratory Care (AARC) on Capitol Hill. The primary purpose of this Lobby Day is to advocate on behalf of the Medicare Respiratory Therapy Initiative and to educate legislators on the special needs of individuals living with Alpha-1 and COPD.

 

Help make both your Senators and your Representatives in the House aware of this Initiative before our advocates arrive in Washington DC. The message can be changed if you wish, the more original the better.

 

Click here to send a letter to your Lawmaker 

Rare Disease Day
Sign-On Letter
Training Video
JOIN THE MOVEMENT
Support Rare Disease Day on February 28th to bring widespread recognition of rare diseases as a global health challenge.

RECENT SIGN-ON LETTER 

 The Alpha-1 Association and Alpha-1 Foundation signed onto a letter with other like-minded organizations to address cuts to medical research. 

 

 

 

MEDICARE HOME-OXYGEN

For specific complaints regarding Medicare Home Oxygen reimbursement, contact the COPD Information Line at 1.866.316.2673. 


This E-News is a publication of the Alpha-1 Association  
  
The mission of the Alpha-1 Association is to identify individuals affected by Alpha-1 Antitrypsin Deficiency (Alpha-1) and to improve the quality of their lives through support, education, advocacy and to encourage participation in research.

 

Patient Information Hotline: (800) 245-6809  Genetic Counseling Program: (800)-785-3177   

Request a Peer Guide: (800) 245-6809

 
www.alpha1.org 
 
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