"I WANTED TO BE AN ARTISTIC NURSE!"

by Joanna Burgess      

 

When I was three years old I was diagnosed with a rare form of bladder cancer. The doctors told my parents that they didn't expect me to survive. However, due to massive doses of radiation and a urostomy, an artificial bladder, I overcame the odds.

 

From the time of my first stay in the hospital, I never wanted to be anything but a nurse. To get ready for my grown-up career I had my own little hospital in the basement of our house. Wearing the nurse's costume that my parents got me and my grandmother's Red Cross pin, I took good care of my dolls, with all their ailments and broken bones. As a small child I read Nurse Nancy and Johnny Goes to the Hospital. Then in my middle school years I devoured all the Cherry Ames books and longed for a long blue nurse's cape.  

 

After high school I started working toward my BS in nursing, but because of the intensity of the radiation treatments I'd had, it was very hard. My blood vessels had been damaged and I had necrosis of the bones. Even though I went to a small college, it took me a long time to walk across the campus from one class to another. I had a couple of surgeries during that time, but I was able to graduate with the rest of my class.

 

At last I was able to say with pride, "Yes, I am a nurse."

 

Even though I began to practice as a pediatric nurse, my own physical problems continued. Facing surgery on my hips, with the prognosis that I might never walk again, I decided to spend several months working with children in Honduras, knowing it might be the end of my career as a nurse. After the surgery I had to learn how to walk all over again. While I was recovering I studied holistic nursing, including Healing Touch therapy and lymphatic massage therapy. That led me to start a small clinic where I worked with people suffering from lymphedema, a common side effect of radiation therapy that results in fluid build-up in the tissue. It was work I embarked on to save myself as well as my patients. I always hoped that one day I would be able to get back to nursing.

 

Then, in my mid thirties, I weighed 86 pounds and was not absorbing nutrition. My intestines failed, and I had to have a colostomy. I was on disability for years and was repeatedly told that I was medically fragile and that it would be foolish to try to get off that assistance and get a job. My mind listened, but my heart and spirit did not believe the medical experts. I knew I was strong.

 

Finally I had to ask myself serious questions about the rest of my life: What shall I do? How do I take all my life experiences and head in a direction where I can help people? I realized I wanted to be an artistic nurse! I wanted to go into something I could do with passion. I decided to become a nurse who specializes in wound care and ostomies.

 

Shortly after completing my course work at Emery University, I met the man who would become my husband. Having a loving relationship along with the confidence that going back to school had given me, I accepted a job at a small hospital near my home as their first wound and ostomy nurse. I was thrilled and terrified! Hospital nursing had changed a lot in 15 years. The technological advances were enormous. Even what you wore was different. When I first started nursing we wore white--now nurses wore brightly colored outfits.

 

Whenever I had questions I would call colleagues or look things up on the computer. I pushed myself from behind until I felt fully confident and a part of 21st century nursing. Then, two years ago, I decided to tell my story and entered a contest called Great Comebacks, for people who had survived a life-altering illness resulting in life with an ostomy and who had become a positive example to others. In 2011 I became the Southeast regional award recipient and a year later was named the national recipient. Now I am a national speaker and patient advocate. I always share my story with my patients who are afraid that having an ostomy will ruin their life.

 

Having a life-altering/body-altering illness can bring on a great sense of shame and the desire to withdraw from life. I have realized that my work is not just about finding the right product to heal a wound or educating someone on the care of their ostomy. To me the deep essence is showing people how to restore their feeling of beauty in a place that has been damaged. As I walk the halls of my hospital, people tell me that I am always smiling. I know it is because when your work is good and 
right--you are home. I am doing what I was always meant to do.


WRITING AND WORKSHOP NEWS

Book cover



My book, The World Is a Waiting Lover, with a foreword by Thomas Moore, author of Care of the  Soul, is available from Amazon.com or from your favorite bookstore. It's also available as an e-book!

 

 
UPCOMING VISION ARROW PROGRAMS
  

Youth Quest

(recommended for people ages 17-23) 
July 15-25 
In the high desert of eastern California 
Offered by the School of Lost Borders

To recognize and mark the moment when a young person turns toward adulthood takes great courage, especially in a culture that has all but forgotten the importance of honoring this transition. With the intention of finding and facing your deepest truths, your strengths and weaknesses, you then turn toward the critical questions: "Who am I to be in the world?" and "What are my gifts?" This opportunity is both a great challenge and a simple task, providing the possibility of returning home with a timeless memory in your bones and a profound connection to the Earth, ready to embark on the life-long quest of finding and making your place in the world.

Guides: Will Scott and Trebbe Johnson 
Tuition: $800-$1,200 (sliding scale)

Atlas Mts.
August 9-16 
Atlas Mountains, Morocco

 

 Lead Like a River was chosen by the Times of London as one of their "20 Retreats That Will Change Your Life"!   

  

In the lives of certain women and men there comes a time when garnering more successes and earning more money is not enough. What they long for is to undertake work that will contribute to the well-being of the planet. If you are a leader in the arts, community service, or business  this program in the Atlas mountains provides the ideal opportunity to reflect on your path, gain strength through connecting with nature, listen to what is important to you... and take the first big step toward shifting your attention to a truly meaningful path.

You'll stay at the beautiful Kasbah du Toubkal, just over an hour from the Marrakech airport. Perched on rocks with stunning views of remote valleys and the summit of Mount Toubkal, the highest mountain in North Africa, the kasbah is a remarkable venture between Berber and English owners, and has been named one of the top eco-lodges in the world. We'll spend five nights in the Kasbah and two nights high in a mountain lodge that we will trek to. You will have a dawn-to-dusk solo in a wilderness place of your choosing, where you will reflect on both the landscape around you and the landscape within as you mark your passage to a new height of personal leadership.

Program is limited to ten participants.

Guides: Eugene Hughes and Trebbe Johnson
Cost: €2,950 / $4,500 (includes all meals, lodging, and transportation to Kasbah du Toubkal Lodge; does not include airfare)   

   

Balinese dancer Seventh Annual Bali from Within
October 19-31
Bali, Indonesia

Bali from Within is a journey into the heart of one of the most beautiful places in the world, geographically, culturally, and artistically. In this trip, which is limited to only 4 participants, we work with Balinese guides who, over the years, have become friends. Together you will explore Bali in ways that tourists cannot do:

* visit the sacred spring Tirta Empul and receive a blessing there
* hike through lush forests to visit a great waterfall, a gigantic and historic banyan tree, and maybe drop in at the home of gamelan orchestra leader, Made Trip
*take a village walk and learn about sacred architecture and its role in everyday life
*luxuriate at Bali Botanica, a spa by a riverside in Ubud
*join a Balinese odalan, or temple birthday, where music and dancing are performed not for people but for the gods
*
share reflections and responses each night in a Council with our own small group

Guides: Trebbe Johnson, Rucina Ballinger, A. Agung Detra Rangki, and Nyoman Sutarya
Cost: $3,950.

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phone: 570/727-4272
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