Upcoming Events
(click orange text for more event info or flyer)
3PM to 4:30PM
Sally Griffin Center- Pacific Grove
National MS Society's
Free From Falls Workshop
6 week series begins Thurs, July 16th
CHOMP Rehab Center - Monterey
Early registration open now!
Contact Zoe Edwards at 916-927-9190 ext. 75201 or email at zoe.edwards@nmss.org
SAVE THE DATE:
MSQLP's Walk 'n Roll Fundraiser Saturday, September 26th
10AM to 2:30PM
Laguna Grande Park - Seaside
MSQLP Support Groups
Salinas MS Support Group Meeting
Friday, June 19th
11AM to 1PM
DRC Room A - SVMH
Monterey MS Support Group Meeting
Saturday, June 20th
11AM to 1PM
519B Hartnell St. - MSQLP Office
Both support groups will share and discuss the topic of getting more out of doctor's appointments.
Water Aerobics Program
Mondays & Wednesdays
12-1pm @ Monterey Sports Center
This program is offered free to families living with MS or Parkinson's.
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MSQLP's 9th Annual
Walk 'n Roll Fundraiser
By Grant Helm - Executive Director/Client Services Supervisor
On behalf of board and staff, we are inviting you to come out for our ninth annual Walk 'n Roll fundraiser on Saturday, September 26th at our
brand new park location, Laguna Grande Park in Seaside. Join us and enjoy a walk (and roll) around the park, a tasty BBQ, and a variety of raffle prizes and silent auction packages all to raise funds for the only non-profit organization providing free services to families living with MS or PD in the central coast.
Enjoy a free lunch and fresh air as you support ongoing case management services, equipment loans, educational workshops, monthly support groups, and an aquatic therapy program all provided to local families living with MS or PD.
Brand new MSQLP T-shirts, bumper stickers, and other goodies will be available at the event as well.
Hopefully we will see you there! And remember:
What's raised here, stays here!
To see pictures from last year's
Walk 'n Roll, visit our Facebook page.
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Did You Know?
Medic Alert Systems
By Osiris Salgado - Case Manager
There are many medical alert providers in the market, Life Alert is the most well known for their TV commercials showing a senior saying "Help, I've fallen and I can't get up." Other medical alert providers include LifeStation, Medical Guardian, Bay Alarm Medical, Philips Lifeline, LifeFone, ADT Medical Alert and Alert1 Medical Alarm.
Looking for the right medical alert system can be difficult. A great website to consider is Medic Alert Advice here you compare medical alert systems side by side. Comparing things such as pricing, equipment, cancellation policy, discounts and optional advanced features.
The Salinas Valley Memorial Hospital (SVMH) Service League is the local provider for Philips Lifeline. Serving Monterey County and the cities of San Juan Bautista and Hollister, they are one of the few medical alert providers that offer financial assistance to individuals who otherwise wouldn't be able to afford a medical alert device. Offering the home safe landline system with auto alert button for as little as $17 per month. To learn more about the Philips Lifeline, call the SVMH Service League at (831) 755-0788.
When shopping for a medical alert system, it is important to first identify what are the features that are most needed. Features such as two-way voice, waterproof wireless button, medication reminder and activity monitoring. The most important thing is to keep it simple. Don't get more than you need. Start with a solid-reliable system and provider and go from there. You can always add features or change providers.
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MSQLP's Equipment Closet
By Grant Helm - Executive Director/Client Services Supervisor
MSQLP's Equipment Reuse Program was developed to provide essential mobility equipment (for loan) to individuals who need a mobility device to get around while they wait for their prescribed device.
For health and safety reasons, mobility equipment is loaned to clients who have received a prescription for a mobility device from their doctor but are waiting for insurance approval and to be fitted for their personal device.
To inquire about the list of available equipment for loan, please call 831-333-9091.
Below is a list of available mobility devices and equipment for loan:
- Regular Size Manual Wheelchair
- GoGo 3-wheel Scooter w/ Batteries
- Shoprider 3-wheel Scooter w/ Batteries
- Idylis Portable AC unit
You can view pictures of the available equipment for donation by
clicking here.
We need volunteer drivers!
Interested in volunteering your time (and vehicle) to deliver equipment to families in need? Call our office at 831-333-9091. Mileage reimbursement included!
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Website:
Our Mission:
The Multiple Sclerosis Quality of Life Project (MSQLP) recognizes that people living with chronic illness have unmet needs. MSQLP is committed to filling these gaps by improving the quality of life of persons with Multiple Sclerosis (MS) in the tri-county area of Monterey, Santa Cruz, and San Benito. Our programs serve families living with Parkinson's disease (PD) in Monterey County. We work with clients and their families to create comprehensive individual plans and programs that support client independence.
All of our services are free.
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Benefit MSQLP just through shopping online:
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Click on logo for details!
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Click on logo for details!
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Tip of the Month
Medic Alert Systems
By Osiris Salgado, Case Manager
While aging may put us all at an increased risk for falling, people living with Multiple Sclerosis (MS) and Parkinson's disease (PD) have twice the risk of their peers. Falls can impact a person's mobility and quality of life. Falls often result in injuries ranging from minor cuts and bruises to serious fractures and head trauma. It is also common for those living with MS and PD to develop a constant fear of falling, which may become overwhelming.
While medical alert systems cannot prevent accidents, they can greatly minimize their effect by enabling a quick response from your designated emergency contacts and emergency medical responders.
A medical alert system has two components: a console and a pendant with a button that's designed to be worn around your neck or wrist. If a fall or another health emergency occurs, you can press the button on the pendant, this automatically places a call to a service agent who is available to contact emergency medical responders, as well as your designated emergency contacts 24 hours a day, seven days a week. Since medical alarm monitoring pendants are worn, rather than being carried around, they're easy to use, and more reliable than a cell phone. Such devices provide yourself or your loved ones with peace of mind that help available with the push of a button and should be considered if you have a high risk of falls.
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Amy's Corner
Curious about 529A (ABLE Act) ?
By Amy Lamb Heckel RDH
What is it? A tax advantaged savings plan. The New York Times ran an article in their Business Day section with the following headline, "Law Creates Special Savings Accounts for Disabled People". And Boston.com headlined their article on the same subject, "Ready and ABLE: 529A, a New Planning Tool for Disabled Family Members." These headlines are easily misunderstood. The accounts were developed with young disabled dependents in mind, not adults. You must have been disabled before the age of 26 to qualify.
The "ABLE" in the ABLE Act is a shortened version of "Achieving a Better Life Experience", which is the formal name of the law. It is important to realize that there are some constraints to the 529A accounts. Annual contributions cannot exceed $14,000 and the grand total for the account is limited to $100,000. The reason for the $100,000 restriction is because if the account holds more than that, the beneficiary may lose their right to Medicaid coverage.
In conclusion, if you know of any disabled dependents that were disabled before age 26 make sure you tell their parents/guardians about the 529A opportunity! I have included links to both of the articles mentioned above plus a link to the IRS website page with information about the 529A.
Click here for the link to Boston.com's article.
Click here for the link to New York Time's article.
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Multiple Sclerosis Quality of Life Project
519B Hartnell Street
Monterey, California 93940
831.333.9091
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on GuideStar and help us grow!
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