Thankful to Help Others
MSQLP's e-newsletter: November 2014 edition
Letter from the Director

Boy how time as passed! It wasn't too long ago that we were all still enjoying the long summer and bright sunny days. Now the symbolic weather of the fall season has begun to present itself through cold mornings and wet days. Nonetheless, there is a sense of comfort I get from the cold weather of fall and winter. It is a great time to stay cozy inside and spend quality time with friends, family, and the people you love. Even here at the office I turn on the portable heater and hover around it as if it were a real fireplace providing warmth. That little thing makes me just a little bit happier and grateful to be where I am. What makes you happy?


 

Staying happy is not always possible. Nor is it always necessary. But, when you spend most of your days staying positive and showing gratitude you can change the shape of your life experiences as well as change the life experiences of others. Showing gratitude for the good things you have is the most powerful happiness boosting activity there is. It will make you happier. It will improve your relationships. And most importantly, it helps make life better for everyone around you. A useful memory is a powerful thing. Do not train your brain to see the negative, teach it to see the positive.


 

"But alas, enough of the preaching Grant! What are you here to say?"

 

I would like to take this opportunity to express some gratitude. Just recently, a very special lady named Christine Gustafson, undertook a huge project to benefit MSQLP. With the help of Mimi Wessling our webmaster, and myself, Christine redesigned an entirely new look for MSQLP's website. If you feel inclined to check it out, you can visit the site by clicking here. The website URL is also located on the top right corner of our e-newsletter. 


 

This was a tremendous project for Christine to do for us out of charity and I am so impressed with the final product. I truly believe that our new website relays the warmth and welcome our organization represents. 

And for that, I am grateful. 

Thank you Christine!


 

Finally, thank you to our readers! For being a part of the strong community that we have here in the Central Coast and such an awesome part of my life.

 

Warm regards,

 

Grant Helm

Executive Director

Upcoming Events 
(click orange text for more event info or flyer) 

Friday, November 7th
11AM-1PM
Marina Library
Refreshments will be served
Register for this event 
by calling 831-333-9091
This event is offered free to families 
living with MS or Parkinson's disease
 
Sponsored by Questcor (Acthar)
Friday, November 7th
2PM-4PM
Embassy Suites- Seaside
Call to RSVP:1-877-219-0410
Free breakfast and free parking

Sponsored by Genzyme 
(Aubagio)

Saturday, November 8th

9:30AM-11AM

Casa Munras- Monterey

Call to RSVP: 1-866-703-6293

Free breakfast and free parking


Sponsored by Biogen Idec.

 

Support Groups
MSQLP's Joint MS Support Group
Friday, November 17th
11AM-1PM 
Marina Library- Community Room
Speaker: Veronica Jefferson, MEd

MSQLP's Family Caregiver Support Group
Friday, November 17th
11AM-1PM 
Marina Library- Outside Plaza

Water Aerobics
Mondays & Wednesdays 
12-1pm @ Monterey Sports Center

Advance Directives

By Rachel Bedford- MSQLP Intern

 

An Advanced Health Care Directive (also known as just an Advance Directive) is a form that informs your physicians, friends, and family about your end of life decisions and values. Take the quiz below in order to decide if establishing a Advance Health Care Directive is right for you. This quiz will help kick-start your thought process about your preferences and your end of life values. If this quiz does get you interested, we advise that you attend our workshop on Advance Directives so that you may begin planning an Advanced Health Care Directive for yourself.

 

1. When you are reaching the end of life, where would you like to be?

a) a nursing home

b) a  hospital

c) at home

d) Not important to me.

 

2. Who would you appointment as your Health Care Agent (a person assigned as your representative who is responsible for making health care decisions for you if you are unable to make them for yourself)?

a) Spouse

b) Son/Daughter

c) Mother/Father

d) Friend

e) Other: ________________

f) I don't know

 

3. When you pick your Health Care Agent, what values will you most look for?

a) Honesty

b) Trustworthy

c) Responsibility

d) Someone who values YOUR values and wishes

e) Not important to me.

 

4. If you are in a medical emergency, or you are reaching the end of life, would you...

a) Prolong your life as long as possible using the most advanced medical equipment.

b) Choose not to prolong your life.

c) Seek palliative care and pain relief, even if it does not prevent a sooner passing.

d) Not important to me.

 

5. Upon death do you plan to donate:

a) Organs

b)Tissues

c) Parts

d) All of the above

e) None of the above

f) Not important to me. 


 

Why is an Advance Directive so important? Well, the reality is, if you neglect to organize and elect someone to be your Health Care Agent, the responsibility of deciding your end of life choices will fall on your family members. Keep in mind, this is only if you are unable to speak for yourself. But, it also means, that if the time comes when you are incapable of advocating for yourself, your family will be left to make VERY difficult decisions for you, without an Advance Directive. And most likely, if you have not finalized an Advance Directive, your family will be left to make these very important decisions without even knowing what your end of life preferences are. This can be a lot of pressure for whatever family member the responsibility falls on, which could be placed on someone like your son, daughter, husband or wife. If you have multiple children, who are your closest relatives, they could be the ones who will have to make the decisions. Furthermore, if they do not agree on a course of action for you, then this could cause dissonance amongst your family. Had they known your end of life preferences beforehand, and it was established on a legal document (such as an Advance Directive) then it would make it far simpler for your family to honor your wishes. 


 

So now you are probably thinking, "OK. This is simple, I just need to choose my significant other or my kids to be Health Care Agent. Problem solved." While, this is partially correct, this process should require a lot of thought AND conversation within your family. When establishing an Advance Directive, you may elect any family member or friend who will be there when you need them most. And, if for some reason they cannot be there during your time of need, you may select an alternate health care agent to step in for your first choice. In order for someone to become your health care agent, they must be at least 18 years of age. The California Health Care Directive really allows you to be in charge of who you would like your agent to be. The only holdup is that your health care agent cannot be your favorite doctor, physician, or any staff of the clinics or hospitals, unless they are a family member. So, always pick someone who will advocate for your needs, relay the information that you decided to your medical team, and be there for you.


 

What decisions can your health care agent make? They have a lot of responsibility in this department, which means you must fully inform them of your end of life wishes. End of life decisions are some of the most difficult decisions to make in a lifetime; however, it becomes much easier when you have legitimized template for your Health Care Agent to follow. For example, life support treatments (medical care to try and help you live longer) are one of the biggest decisions to make for your health care agent. Do you want medical personnel to perform Cardio Pulmonary Resuscitation, also known as CPR, on you? Would you like to be hooked up to a breathing machine or ventilator that pumps air into your lungs and breathes for you? Would you like the Doctors to perform Dialysis, a machine that cleans your blood if your kidneys stop working? Would you like to use a feeding tube, which is placed down your throat and into your stomach? What about blood transfusions, medications, or surgeries? Yes, all of these questions are intimidating. Imagine how intimidating it would be for a family member to have to make these decisions without knowing what you truly wanted. Figuring out what you do or do not want can be overwhelming; however you can always consult your physician, social worker, or nurse to guide you through this process.


 

By electing a family member, loved one, or trusted individual to be your health care agent you are one step closer to completing an advanced health care directive. MS Quality of Life Project encourages that you continue to move forward and finalize an Advance Directive. MSQLP is co-hosting a seminar about Advance Directives that will be held on Friday, November 7th, 2014 from 11AM to 1PM at the Marina Library. This seminar will include a presentation panel from the local organization Compassionate Care Alliance. Everyone is invited to join us, whether you have questions regarding completing an Advance Directive, or if you are just interested in exploring this topic further. Hope to see you there!

Did You Know?
Equine Therapy
By Melissa Bowling- MSQLP Intern

As another form of physical therapy, equine therapy, also known as horse therapy, has been found to have dramatic results with helping people, both adults and children, with more severe health conditions, like Multiple Sclerosis, to be able to function better again. Exercising on the horse strengthens the muscles and increases balance, which allows the person to be able to stay on the horse without falling off. Exercises and experiences can also be done off the horse.  Working with horses provides a wonderful opportunity to engage in therapeutic activities outside of a traditional therapeutic environment. 

 
Located ocean side in beautiful La Selva Beach, South Santa Cruz County, California, is the Monterey Bay Horsemanship and Therapeutic Center.  It is a fully inclusive equestrian center that provides exciting, rewarding and meaningful experiences through programs for all ages and ability levels, including those with special needs. More information, as well as testimonials, are available at: 


Another local non-profit that focuses on equine therapy is DreamPower.  They are located in Gilroy and have a variety of programs.  In the past, they had an equine facilitated group specifically for individuals with MS.  It was an equine empowerment group that focused on strengthening coping skills, setting goals and identifying steps to reach those goals, as well as having fun outdoors with friendly, well-trained horses.  To learn more about DreamPower and their programs, visit:

NEWLY REDESIGNED
MSQLP Website:
www.MSQLP.org

Our Mission:     

The Multiple Sclerosis Quality of Life Project (MSQLP) recognizes that people living with chronic illness have unmet needs. MSQLP is committed to filling these gaps by improving the quality of life of persons with Multiple Sclerosis (MS) in the tri-county area of Monterey, Santa Cruz, and San Benito. Our programs serve families living with Parkinson's disease (PD) in Monterey County. We work with clients and their families to create comprehensive individual plans and programs that support client independence. 

All of our services are free.

Make a Donation
$30 will fund outreach services for one client.
$70 will fund one water aerobics class.
$100 will fund a house visit with a client.
Benefit MSQLP just through shopping online!
Click on logo for details!
Click on logo for details!
 
Like us on Facebook

 

Follow us on Twitter

Monthly Tip
Taking a Step Towards Financial Wellness

By Osiris Salgado- MSQLP Case Manager


 

Financial Wellness can greatly affect the overall health of individuals living with MS or Parkinson's. Navigating bills and benefits while managing an illness can be overwhelming. At times we may not know where to start when it comes to improving our financial wellness. It is important to remember that people who don't succeed at making changes often fail because they try to make too great a change too quickly - they try to "eat an elephant" all in one bite. In order to succeed we must try taking smaller bites as in one step, one task, one measure, to achieve your overall goal (National Disability Institute, 2014).


The first step and often the hardest step to financial wellness is getting organized. This includes getting all of your bills and important documents in one safe place. Choose a method that works for you! This can be an accordion file, shoebox, file cabinet, scan documents into a computer, etc. Whatever method you may choose, has to work for you. It has to be a place where you can easily put your paperwork. As you find the papers that need to be filed, you can put them in there. You don't have to rip the house apart on a Saturday afternoon and build it right then, but, as you find them begin filing them.

It is important that we also keep a separate file of important document such as Social Security cards, birth certificates, medicalrecords,Advance Directives,warranties, vehicle information, bank accounts, etc. If you pay bills online, it is important to keep a record of the user IDs and passwords in your filing system just in case one day you are unable to pay the bills yourself. A family member or friend, in case of an emergency can pay your bills for you because they have access to this information (National Disability Institute, 2014).

So, that first bite towards getting financially organized, while challenging, can lead to improved financial wellness. Therefore improving the long-term quality of your life and reducing stress associated with an your past or present finances.

If you would like additional information of steps to take to improve financial wellness click here to visit the National Disability Institute's full financial wellness program.
Amy's Corner
Laughter is the Best Medicine
By Amy Lamb Heckel RDH
These jokes may make you laugh, or groan, or both. Either way they are likely to make you smile - whether you laugh with them or at them.  

* I lost my job at the calendar factory simply because I took a day off.

 

* Why don't spiders go to school? Because they learn everything on the Web.

*What's the difference between a pizza and my pizza jokes? My pizza jokes can't be topped.

 

*What's a witch's favorite subject in school? Spelling.

 

*How do astronomers organize a party? They planet.

* What happens to a frog's car when it breaks down? It gets toad away.

 

* I want to be buried in a spring-loaded coffin filled with confetti so a future archaeologist will have one awesome day at work.

 

* There was a guy telling his friend that he and his wife had a serious argument the night before." But it ended," he said, "When she came crawling to me on her hands and knees." "What did she say?" asked the friend. The husband replied, "She said, 'come out from under that bed you coward!'"

 

* Blood is thicker than water, but maple syrup is thicker than blood. So technically pancakes are more important than family.

 

* This woman said she knew me from the local vegetarian restaurant. But I'd never met herbivore.


 

And as a parting thought --
 

A negative mind will never give you a positive life!

BIRTHDAY BLOCK!
Happy Birthday Month to these great individuals:


William Booth 11/16
Estefana Capetillo 11/10
Helen Chow 11/17
Norma Delgadillo 11/29
Gail Dettman 11/20
Robin Flaherty 11/22
Tammi Fletcher 11/11
Lisa Greenwell 11/6
Pam Hopkins 11/4
Marilyn Howell 11/8
Joyce Kinch 11/18
Phylois Norman 11/21
Dianne Sigman 11/30


Don't see your name on here when it should be? Call us at 831-333-9091 and remind us about your birthday!
of  Multiple Sclerosis Quality of Life Project
on GuideStar and help us grow!

Multiple Sclerosis Quality of Life Project
519B Hartnell Street
Monterey, California 93940
831.333.9091