From a Board Member
Hello readers and supporters,
My name is Dick Howell, a MSQLP board member and currently the organization's Treasurer. What drew me to MSQLP was the fantastic support the organization provided my wife shortly after she was diagnosed with MS in 1998 as well as the continued support she receives during those "dark" moments that I am sure you all know well.
In the seven plus years I have been on the board, I have seen the organization have it's ups and downs, good and bad moments, just like the clients MSQLP serves. The economic slowdown a few years back resulted in drastic reductions in grant funding as well as declines in individual giving from our supporters. There was a moment when we thought we were going to run out of money and started the process to close down.
But due to the tenacity of board members like Gene Harter, Marie Swank, Tammy Jennings, and Carrieanna Hess, the board took a very "hands on" approach and began to rebuild. Andrea Dowdall had returned as executive director and the board worked tirelessly to keep the dream (and our mission) alive. With finesse, we were able to dramatically cut our costs to match the economic realities of the time and yet improve the level of services we provided to our clients.
In the last two years with the support of the local community (organizations and individual donors) as well as a shifted paradigm in the way we developed fundraisers, we were able to raise new sources of revenue to make up for reduced funding we receive from grants.
And then, just when we had a chance to catch our breath, Andrea made the extremely difficult decision to move to Florida to be closer to her family and finally take a break from working long and often challenging hours (for free) to the benefit of MSQLP. With all the hours she worked and all the hats she wore at MSQLP, I really was concerned she would not be replaceable, and we would have a real leadership vacuum. But quickly we could see one other thing that Andrea did for MSQLP...
She did a phenomenal job preparing the remaining staff, Grant and Angie, to step up and continue to run the organization. On top of all of this, through some advanced (but cheap!) technology, she has continued to give us some of her time through our new ability to video conference. This has allowed Andrea to provide ongoing advice and support.
Given the training they received from Andrea, as well as their professional training and caring personalities, Angie and Grant have seamlessly taken the clinical and administrative reigns to continue the excellent work of MSQLP. And given the stability of our financial position and experience of our core management team, I am expecting MSQLP to remain sustainable and continue to provide the high quality services that our clients deserve.
We hope you continue to support us as we make this exciting venture into 2014!
Sincerely,
Richard Howell
Board Treasurer
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Saturday, March 1st
Starts at 12:30PM
Embassy Suites- Seaside
RSVP @ 1-866-703-6293
Sponsored by Genzyme
Support GroupsFamily Caregiver Support Group
Saturday, February 15th
11:30AM-1PM @ MSQLP Office
519B Hartnell St. Monterey, 93940
Salinas MS Support Group
Friday, February 21st 11AM-1PM
@ Salinas Valley Hospital Cislini Conference Room 1
Monterey MS Support Group Saturday, February 22nd 11AM-1PM @ MSQLP Office
519B Hartnell St.
Monterey, 93940
Water Aerobics
Mondays & Wednesdays
12-1pm
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Spotlight on the state of MSQLP's expansion of services
Case management, support services, and educational opportunities for families living with Parkinson's disease in Monterey County
By Grant Helm- Executive Director
If you recall, in 2012, MSQLP completed a survey of various stakeholders as to our capacity to expand and to which population would most need our case management services. Based on the results of this survey and much discussion, the MSQLP Board made the decision to begin in 2013 to expand our Case Management services to families living with Parkinson's disease in Monterey County. People who have Parkinson's are seen, like those with MS, often belong to a marginalized, vulnerable population who sometimes falls between the cracks. Our success providing Case Management to families living with Multiple Sclerosis (MS) has led us to believe that Parkinson's patients might similarly benefit. This is going to be a very exciting year for MSQLP!
Living with a chronic illness can cause many hardships and stress on an individual and his or her family; for persons with MS this has shown to be especially true. Cognitive and emotional functions become negatively affected by MS, which leads to a negative effect on: important relationships, employment, insurance, financial matters, functionality, independence, and mobility All of these factors affect one's quality of life. We know that for MS patients, stress is particularly dangerous because it has been known to cause exacerbations of symptoms associated with the disease. We believe that the negative effects of stress can be inferred to people living with PD. Because of this risk, MSQLP will work with PD patients to alleviate excess stressors in clients' lives.
In addition to providing case management services, educational workshops and support groups are going to be available to PD clients in 2014. These services will help clients to feel engaged and empowered by improving their own quality of life and eventually lead to a more successful management of life with a chronic illness. Currently, our brand new Caregiver Support Group is open to family caregivers of individuals living with Parkinson's disease.
This year, MSQLP has already started receiving referrals to provide case management services for families living with Parkinson's disease and we plan to continue to accept PD clients as they are referred. Increasing intake of clients living with PD, and thus providing home visits, is an important but costly objective for MSQLP. Due to the physical limitations and social isolation of many of these clients, conducting home visits is essential to developing a trusting relationship, addressing care plan goals, and assessing client safety in their home.
We are a small but dedicated non-profit organization. If you would like to support us in growing our programs and services, please consider donating. Budgetary concerns are always a challenge with small but dedicated non-profits such as MSQLP. In addition, we are always looking for effective volunteers, functional assistive equipment for clients, and of course, more new client referrals. Help us spread the word, and you will be helping us help our community.
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Did You Know?
Reducing stress: A method of disease management Written by Robin Madell on Healthline.net
Being diagnosed with a long-term health condition can be frightening and disorienting. Once you move beyond the shock of the diagnosis, you have to learn how to deal effectively with the daily stresses of living with the illness.
Everyone is susceptible to the effects of stress. However, living with a long-term condition makes you particularly vulnerable. In addition to challenges you normally face, chronic illness adds new layers of stressors, such as:
- pain or discomfort from symptoms
- managing the condition and care
- adjusting to new limitations
- increased financial pressures
- feelings of frustration, confusion, or isolation
You can take steps to maximize your quality of life and minimize the challenges of living with a long-term illness. Use the following strategies to guide you on your road to coping and regaining control.
Daily decisions that affect your actions and lifestyle can play a large role in how effectively you circumvent stress. For example, eating nutritious foods and getting enough exercise can help boost mood, improve mobility, and ease symptoms.
However, taking control of your management goes beyond the basics of living a healthy lifestyle. Pay attention to additional considerations, including managing your attitude, emotions, and relationships. Attitude and approach can also make a big difference in your quality of life. Read on...
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of Multiple Sclerosis Quality of Life Project
on GuideStar and help us grow!
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MSQLP Websitewww.MSQLP.orgOur Mission:
The Multiple Sclerosis Quality of Life Project (MSQLP) recognizes that people living with chronic illness have unmet needs. MSQLP is committed to filling these gaps by improving the quality of life of persons with Multiple Sclerosis (MS) in the tri-county area of Monterey, Santa Cruz, and San Benito. Our programs have expanded to serve families living with Parkinson's disease (PD) in Monterey County. We work with clients and their families to create comprehensive individual plans and programs that support client independence.
All of our services are free.
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$30 will fund outreach services for one client.
$70 will fund one water aerobics class.
$100 will fund a HouseCall for a client.
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Click to support MSQLP
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February is the last month to donate to Birdies for Charity!
Each donation will be increased by 20% courtesy of the Monterey Peninsula Foundation!
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when you buy a shirt and bag together!

 | $15 if picked up $20 if shipped |
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Click on iGive logo for details!
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Benefit MSQLP just through shopping online!
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Tip of the Month
Awesome Life Changes That Have Nothing To Do With Losing Weight
By Andy Jacobs Excerpt edited by Grant Helm
Around this time of year, many of us are preparing ourselves for all the things we want to "give up" in order to lose weight: dessert, alcohol, carbs, late night snacking, etc. How many of us have considered finding spiritual and behavioral solutions, instead, to achieve fulfillment, rather than drastic diet changes to achieve the perfect body?
Here are some resolutions that we consider to be very reasonable. In fact, why not add more of something instead of less?
Read more.
Now, while reading tons of articles and blurbs online can keep you well informed, I'm talking about a more therapeutic version of reading - real books! It could be an informational book, a memoir, or, better yet, a novel - don't underestimate the benefits of tapping into your imagination and getting lost in a made up story. The idea is to connect to one subject or text rather than a sea of clicking on links. This is more calming and focused than surfing the web. Even as little as five pages each day will give you some fundamental brainpower!
Give more.
Volunteering your time is a great way to do this, especially if you're tight on money. Think about who and what you enjoy being around - animals, children, elderly, special events - and combine that with your strengths or availability. If you're available during afternoons, you could tutor at an elementary school. If you never know when you'll have some spare time, become a volunteer to socialize animals at the local shelter, where you can likely drop in. The time commitment may seem overwhelming at first so treat it like a real part of your schedule. The rewarding feeling is unmatchable.
Sympathize more.
This will help you to get angry less. Technically, you allow anger to arise, but you choose to not react. Of course there will always be frustrating and unfair people or situations, but how you react is your choice. Think of one reason, in every situation, why that may have understandably happened. This always helps me leave the situation peacefully. For example, what if that driver who cut you off is someone's grandma? You wouldn't want someone to flip off your grandma if she made a mistake! Sure, it could have been a jerk who always drives like a maniac, but you don't know that. Give people the benefit of the doubt, assume they're trying their best even if it doesn't show. For your own sanity if nothing else!
Forgive yourself more.
Have you ever eaten two slices of cake and told yourself you'll definitely start a juice cleanse on Monday morning, only to realize you're hungry for breakfast Monday morning? Stop making drastic promises! You're setting yourself up for failure and habitually doing this is a vicious cycle. Sometimes I'll dwell on what seemed like an awkward social interaction I had with someone. Look, its all said and done, just bounce back and move on!
If you enjoyed this article, you can read the full article here: mindbodygreen
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Amy's Corner
The Controversy around Lemtrada
By Amy Lamb Heckel, RDH
The following paragraphs offer a brief overview of the Lemtrada controversy and contain links for those who so desire to find more in-depth information.
Last December the FDA sent a letter to Genzyme stating that it would not accept Genzyme's application for approval of Lemtrada (alemtuzumab). A statement from Genzyme says, "[The] FDA has taken the position that Genzyme has not submitted evidence from adequate and well-controlled studies that demonstrate the benefits of Lemtrada outweigh its serious adverse effects."
The controversy? The FDA's own advisory committee stated "The results of the three studies demonstrating strong efficacy in relapsing MS patients, coupled with a well characterized and manageable safety profile, support a favorable benefit-risk assessment and approval..."
Lemtrada has now been approved in the European Union, Australia, Canada, and Mexico.
The concern? Because Lemtrada is given IV for five consecutive days the first year and then for three days one year later, many healthcare professionals are afraid that US MS patients may obtain treatment with Lemtrada in either Canada or Mexico and then return to a US healthcare system uneducated and/or unprepared to deal with possible side effects. Those side effects can include upper respiratory and urinary tract infections, lymphopenia, and leukopenia. All of which require knowledgeable monitoring for early detection and to obtain the best possible outcome.
Link to Genzyme's statement
Link to MS-UK's most recent article (4/2/14) about Lemtrada: http://www.ms-uk.org/
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Multiple Sclerosis Quality of Life Project
519B Hartnell Street
Monterey, California 93940
831.333.9091
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