From the President
The staff at MSQLP recently completed 2013's first quarter stats. I think this would be a good time to publish them - to let the MS and general community know what we have accomplished.
The first number will be for this past quarter. The second number will be the total from MSQLP's Case Management Program since it began in August of 2004.
Number of clients added: 12/323
Total number of calls with and for clients: 1,094/32,800
Number of client goals set: 180/5,874
Number of client goals met: 125/4,699
Percent of goals completed: 70%/80%
(We try to maintain an 80% completion rate.)
Number of HouseCalls with clients: 34/1,479
Donna Krasnow, past MSQLP Board President, always said that we were an organization who did a lot with a little. MSQLP's annual budget the last several years has been under $100,000. One of our grantors has stated that MSQLP is the little organization "that can"!
Presently, we have one part-time employee (Grant). We are lucky to have an MSW intern and 3 undergraduate interns from CSUMB's field placement programs. When school is in session, our interns are with us around 36 hours/week. It definitely would be hard to function without our wonderful CSUMB interns! I am a volunteer, trying to keep my hours here between 20-30 hours/week. Again, we do a lot with a little.
Besides our free Case Management Program & support services, there are fundraisers to be held, grants to be written, e-newsletters to be written, etc.
I felt it was important to go over MSQLP's accomplishments as they are part of Dr. Gerard Lehrer's legacy. He with Dr. Lotte Marcus spearheaded the formation of MSQLP with the support of Gene Harter, Cyndi Nelson, and Ron Grubman, JD.
Dr. Lehrer is in this month's "Spotlight".
Sincerely,
Andrea Dowdall
Board President
Program Supervisor
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Upcoming Events (click the underlined topics for more info)
Saturday, May 11th
The Marriot Hotel- Monterey 350 Calle Principal Speaker: Jay Rosenberg, MD Call 1-877-969-1722 to register! Sponsored by EMD Serono Inc. & Pfizer
Aubagio as an Oral Treatment for MS
Saturday, May 18th 10:30AM
Dream Inn- Santa Cruz
Conference Center
175 West Cliff Drive
Speaker: Edie Happs, BSN, MSN, MSCN, NP
Call 1-866-703-6293 to register! Sponsored by Genzyme
As a service and courtesy to you, MSQLP wants to inform you of this educational opportunities. MSQLP has had no role in developing the content or choosing speakers for this program.
MSQLP's 7th Annual Walk 'n Roll
SAVE THE DATE: September 14th, 2013
Register/Check-In: 9:30AM Start Time: 10AM
El Estero Park
777 Pearl Street
Monterey, CA 93940 93940
Support Groups
"Our Happy Hours" Joint Support Group Friday, May 17th 11AM-2PM Trip to Easy Access Adventure trails in Point Lobos!
Wheelchair Accessible Trails! *Transportation is required. *Admission will be paid for in advance. *Lunch will be provided.
If you are interested in attending this very special support group in Point Lobos please call MSQLP at 831-333-9091 by Wednesday, May 15th.
Water Aerobics
Mondays & Wednesdays 12am-1pm
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In Memory Of...A special memorial for a co-founder of MS Quality of Life Project
Gerard M. Lehrer, known as "Jerry" to his friends and colleagues, passed away on Friday, April 12, 2013, after a sudden illness. Born May 29, 1927, in Vienna, Austria, son of Charlotte and David Lehrer, he immigrated to New York City with his mother, when he was 11 years old.
Jerry Lehrer was a compassionate physician dedicated to multiple sclerosis (MS) patients from the time he began practice, in 1960, at Mount Sinai Hospital, New York, until his death. He pioneered research in multiple sclerosis, demyelinating disease, and experimental autoimmune encephalitis. He was a sought-after expert in significant legal cases involving multiple sclerosis patients. A Professor of Neurology and Attending Neurologist, he was also Co Director of the Headache Clinic.
He was a senior Fellow of the American Academy of Neurology and the American Neurological Association, a Fellow of New York Academy of Science, and a founding member of the International Society of Neurochemistry. Dr. Lehrer authored more than 150 original articles and book chapters on clinical neurology and demyelinating disease.
Dr. Lehrer was Senior Staff Neurologist at the Veterans Affairs Medical Center, Bronx, New York. Still not fully retired after relocation to Carmel, California, in 1994, the Palo Alto Veterans Affairs Medical Center requested his services and Dr. Lehrer served as neurologist at the Livermore, San Jose, and Monterey clinics, prior to his dedication to treatment of disabled MS patients on the Monterey Peninsula. He was a co-founder of the MS Quality of Life Project and is Director Emeritus.
Outside of his professional career, Jerry was an extremely caring individual, loved by all who met him. A past member of the Advisory Board, National MS Society, New York City, and Board of Directors of the Hunger Project, Dr. Lehrer was a strong supporter of community service.
Jerry's many interests included sailing, poetry, writings of Goethe, the Bible, philosophy, comparative religion, computer science and electronic gadgets. Jerry was a bargain shopper extraordinaire. His famous advice to friends and family: "Anything's negotiable!"
He is survived by his loving wife, Suzanne Macahilig Lehrer, his children, Richard and Alicia Lehrer, and five grandchildren, Max, Harry, Francesca Binder and Nathaniel and Jonathan Lehrer.
MSQLP has set up a memorial fund in the name of Dr. Lehrer. In making their donation, Lotte and Alan Marcus stated, "He was that rare neurologist who not only had done research on MS, treated MS patients, but also made HouseCalls in the Monterey area."
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Did You Know?
Equipment available for donation.
Often times MSQLP will receive equipment donations from families in this MS community or other organizations. Most of the time we find each piece of equipment a home right away. To continue our success of transitioning the ownership of helpful equipment from one home to another we have decided to publish a list of available equipment. These items are available at the office or within the MS community.
EquipmentArranged by Name & Quantity
Portable Toilet (QTY: 3) Raised Toilet Seat (QTY: 2) Raised Toilet Seat w/ Handle (QTY: 1) Shower Chair (QTY: 1) 2-Wheel Walker (QTY: 3) Walking Cane (QTY: 1) Cooling Vest (QTY: 1medium)
WheelchairsArranged by Name & Quantity Easy-fold Wheelchair (QTY: 1) Powerchair (QTY: 1) Small Powerchair (QTY: 1) Scooter (QTY: 1) If you would like to inquire about any of these listed items please call the MSQLP office at 831-333-9091.
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of Multiple Sclerosis Quality of Life Project
on GuideStar and help us grow!
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$30 will fund outreach services for one client. $70 will fund one water aerobics class.
$100 will fund a HouseCall for a client.
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Click on iGive logo for details!
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Benefit MSQLP just through shopping online!
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Tip of the Month-
Slowing Down & Swelling Up Ankles and Feet are at Risk when Mobility Declines
Courtesy of Multiple Sclerosis Foundation
Swollen feet and ankles are common in MS, and are caused by an accumulation of lymphatic fluid (lymphedema). They are considered to be a secondary symptom of the disease, because they most often develop due to a lack of mobility instead of arising as a direct result of demyelination.
How This Happens Lymphatic fluid delivers nutrients and other substances to and from organs in the body. Normally, the contractions of active leg muscles move this fluid along in lymphatic channels, propelling it upward towards the body cavity. When the body becomes less mobile, as may happen with MS, the kneading action does not occur, the fluid leaks from the channels and accumulates by gravity in the ankles and feet.
Read on... for more information & possible solutions.
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Multiple Sclerosis Quality of Life Project 519B Hartnell Street Monterey, California 93940 831.333.9091 msqlp@sbcglobal.net
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