ADDP NEW BANNER 2011
Commonwealth Releases  Draft HCBS Community Rule Transition Plan

 public hearing2

As part of the public input process for the statewide HCBS transition plan, Massachusetts will hold two public forums. The first public forum will take place in the auditorium on the campus of MassBay Community College, located at 50 Oakland Street, Wellesley, Massachusetts on November 6, 2014 at 6 p.m. Please visit the MassBay Community College website for directions at  www.massbay.edu/.

 


The second public forum will be held in Scanlon Hall at the Westfield State University campus, located at 577 Western Avenue, Westfield,  Massachusetts on November 12, 2014 at 10:30 a.m. Parking for those attending this forum can be found in the campus South Lot. There will be an accessible shuttle bus service that runs every 10 to 15 minutes to take people from the parking lot to Scanlon Hall. Please visit the Westfield State University website for directions
at  www.westfield.ma.edu/.

The public can  also submit their input/comments on the Massachusetts Statewide Transition Plan Compliance with the CMS Home and Community Based Services Community Rule by: E-Mail:  
HCBSWaivers@MassMail.State.MA.US
Mail: HCBS Waiver Unit, 1 Ashburton Place, 11th Floor, Boston, MA 02108

Please Note: Comments must be submitted by November 15, 2014.
Autism Family Group Express Final Rule Discomfort

 

According to a variety of communications from some family members of individuals with autism, there may be objections to the Mass Health/DDS Transition Plan and it's impact upon residential opportunities for individuals with autism.

 

 

From the website: 

 


 

 

Cheryl Ryan Chan:
We are parents and community leaders in the autism community who are extremely concerned that new policies being formulated by Massachusetts DDS have failed to take into consideration the needs of individuals moderately to severely impacted by autism.


Catherine Boyle: 

..the main way to pay for residential and day services is with Medicaid money. Unless your family member chooses to live in an institution (such as a nursing home, the Hogan Regional Center, or someplace similar), you can only use Medicaid money in places the government considers to be part of the community. Up until now, "community" has not been clearly defined. Now, a new Medicaid rule (called the "CMS rule") defines community. Settings will have 5 years to conform to the rule.

MassHealth, with input from DDS, is developing a transition plan to submit to Medicaid. States can use the transition plan to make a case that certain settings are part of the community. But MassHealth needs to hear from us!

 

Is there a setting in which your family member is thriving, or which you've always dreamed of? Make your voice heard if you want it to be an option! There is a very real possibility that, otherwise, certain settings, such as farmsteads or campuses, will be ruled out altogether.

  

 

 

 

Transition Plan Outlines State's Response to CMS Final Rule on Community Living

 

In an effort representing years of effort by the Center for Medicare and Medicaid Services, the federal government is calling upon each state to revise its Home and Community Based programs to create a more outcome based definition of home and community based settings.

What this means is the the federal government plans to limit the use of Medicaid Waiver funds unless residential settings can prove that they comply with CMS's new FINAL RULE that seeks to insure that community programs:
  • include full access to the greater community
  • provide choice within the context appropriate for the individual
  • ensure the protection of privacy, dignity and freedom from coercion or restraints
  • optimization of autonomy & independence

While many applaud the efforts of the federal and state governments to close state institutions, many wonder the extent to which CMS and DDS will interpret this new FINAL RULE from CMS.

 

All residential programs, including state operated properties, are expected to comply with the following no later than March 16, 2019:

  • lease agreements for residents
  • lockable bedroom doors and privacy for residents, unless proven clinically inappropriate
  • choice in determination of roommates
  • the ability to have visitors
  • a physically accessible setting if needed by the resident

The state transition plan, released by Mass Health and DDS, cites 14 providers, with a total of 58 settings that may face greater challenges requiring more substantive changes to their programs in order to comply with the CMS Final Rule by March 16, 2019.

 

The 14 providers are programs that are viewed as having campus or congregate living arrangements which may be in conflict with the CMS Final Rule.  The extent to which it is in conflict is a subject of contention between these 14 providers and the state and potentially CMS.

 

Many of the 14 providers are asking both DDS and CMS for greater clarification with regard to the FINAL RULE. Some believe that CMS's outcome oriented definition does not necessarily focus as much on residential settings as it does on total community involvement and integration.  Simultaneously, it appears that state officials believe that CMS may prohibit Medicaid funding of the 14  programs unless these programs restructure.

 

Restructuring could range from extreme measures including closing residential sites with more than five people living together to ceasing operations.   

 

ADDP has established a workgroup headed by New England Village CEO Gail Brown and staffed by ADDP Attorney Tara Hopper Zeltner that is trying to determine the scope of what may be allowed or required by both DDS and CMS in order to maintain operations, federal funding and quality community services for the 58 settings cited by DDS; and determining the likely opportunity for people to remain in their homes and maintain choice of settings. Whether this can be accomplished is in the hands of both the state and federal governments. 

 

The 14 programs are required by DDS and CMS to submit an individual transition plan by September 30, 2015 that outlines how the 58 settings will come into compliance with the FINAL RULE by March 16, 2019.

 

DDS, at the request of ADDP, has agreed to establish as part of the state's transition plan, a workgroup to assist providers in implementing their transition plan.  Providers are concerned about the cost of restructuring, the right of consumer choice and the extent to which CMS interprets and clarifies its FINAL RULE regarding settings.   

Autism Self Advocacy Network Promotes Community Rule Toolkit
from ASAN:

ASAN has published a toolkit for advocates, families and administrators on how to ensure that people with disabilities receive Medicaid-funded Home and Community-Based Services in integrated settings that offer full access to the community.

 

Home and community-based services are an important source of support for many people with disabilities who need help to live in the community. But so far, many of these services have been provided in restrictive or group settings, instead of people's own homes, communities, or integrated workplaces.

 

In January, the Centers for Medicare and Medicaid Services (CMS) announced a new rule that may help people get the services they need in truly integrated settings. The new rule sets forth standards for the settings where people receive home and community-based services, including standards for privacy, choice, integration, and access to jobs in the community. Each state must write a five-year plan for how it will change its home and community-based services programs to meet these new standards.

 

The new rule is the result of several years of conversations between CMS and the disability rights community. In 2011, ASAN worked with Self Advocates Becoming Empowered (SABE) and the National Youth Leadership Network to publish a report on which types of settings people with disabilities believe give them actual, meaningful opportunities to participate in the community.

 

ASAN's new toolkit includes:

  • A Resource for Advocates and their Families explaining what the new rule means and how to make their voices heard as their states make plans to comply with the new rule. The resource includes scripts for writing to state Medicaid agencies about how they'd like their state's HCBS program to change.
  • A Resource for State Administrators and Professionals  on how to come into compliance with the new rule. This resource includes detailed guidance on the implications of the new rule, suggestions for elements to be included in the transition plan, and examples of useful tools and questionnaires for assessing provider compliance.
  • A Research Brief  explaining how scattered-site supported housing can help states meet the integration and choice standards in the New Rule.
  • A Fact Sheet  on integrated housing for people with disabilities.

ASAN's toolkit on home and community-based services is the third of four toolkits for advocates on health care issues facing the disability community. These toolkits were made possible by funding from the Special Hope Foundation.