Registry Sign Up, Family Conference, International Epilepsy Day, & Rare Disease Day - make 2015 the year you get involved with HH! Read how below.

Warmly,

Lisa, Erica, Wendi, Julie, Emma & Ilene

HH Board & Caregivers

REGISTER BY FEB 14 for THE RARE EPILEPSY NETWORK

Want to know why your loved one was diagnosed with an HH? What's the best to treat and cure it? How to minimize their side effects from drugs and interventions? Only if ALL HH patients come together and share information will we learn the answers to these important questions. In less than 45 minutes, you can complete the Rare Epilepsy Network survey and do your share! Give the Valentine of HOPE! Register someone you love by February 14th here. Need help, contact: Ilene Miller

JOIN OTHER HH FAMILIES IN HOUSTON, TX JULY 11-12

Please come and join us for a three day weekend of support, education and empowerment!

Friday July 10th- meet and greet with other families and individuals with HH
Saturday July 11th - All day symposium with physicians that specialize in HH from all over the country
Sunday July 12th- In the morning we will have family forums to discuss subjects related to HH and how other families deal with those challenges. In the afternoon we will have closing ceremonies

For more information about hotels (great group rates) and transportation, click here. To RSVP contact Lisa Soeby.


Feb 9		Feb 28
TODAY is International Epilepsy Day - join with other patients and caregivers internationally to stand together to end epilepsy! What can you do? Complete the REN, sign up for the family conference, or just post a selfie in support of International Epilepsy Day - TODAY!		HH is one of many rare diseases! Pledge to tell 3 new people about HH on rare disease day, post the logo to your social media, do you part to help spread the word about HH and the rare diseases!