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Ilene Miller & Lisa Soeby put HH on the map at AES San Diego, CA December 2012.
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December 2012
 If you missed the live HH Symposium for Patients & Caregivers co-sponsored by BNI and Hope for HH in November 2012, you can watch it all here. The speakers covered every topic from the latest surgical breakthroughs to legal considerations as HH children transition to adulthood. Dr. Kerrigan presented a great overview. Other highlights included talks from:
Put HH on the map in 2013.
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John & Kim Gregory walked in memory of Grace Webster and put HH on the map Disneyland (CA).
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We are an international community and we need to take a stand to face down this condition. Download our flyer and take a picture in your home town, with your doctor, at your school or on vacation. Post your photo to our facebook page today and let's sp  | |
Dr. Wilfong (TX Children's Hospital) puts HH on the map in San Diego, CA @ AES
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read the word about HH until we can find a cure.
Want to get involved with Hope for HH in 2013?
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Got Feedback?
If you have any questions or comments, please email info@hopeforhh.org . See something you like - let us know that too!
Wishing Your Families a Happy & Healthy New Year!
Hope for Hypothalamic Hamartomas
Board of Directors
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Mission
Provide information and support to HH patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and cure.
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Board of Directors
Lisa Soeby, President
Ilene Miller, VP & Treasurer
Erica Webster, Secretary
Emma Kane, Research Dir.
Wendi Tipps, Fundraising
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Medical Advisory Board
Harold Rekate, MD
Chairman (2013-2015)
Chiari Institute
Great Neck, NY, USA
Alexis Arzimanoglou, MD
University Hospitals of Lyon
Lyon, France
J. Helen Cross, MD UCL Institute of Child Health London, England
Daniel Curry, MD Texas Children's Hospital Houston, TX, USA
John Fulton, Ph.D. BNI at Phoenix Children's Phoenix, AZ, USA
Simon Harvey, MD Royal Children's Hospital Melbourne, Australia
Jack Kerrigan, MD,
Past Chairman (2010-2012)
BNI at Phoenix Children's
Phoenix, AZ, USA
Maya Lodish, MD National Institutes of Health Bethesda, MD, USA
Jean R�gis, MD Timone University Hospital Marseille, France
Jeffrey V. Rosenfeld, MD The Alfred Centre Melbourne, Victoria, AU
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