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May 2012
We are also thrilled to announce the launch of the Hope for HH Blog. Sign up to receive blogs by caregivers and others touched by HH. Let us know if you would like to guest blog too!
Looking ahead - Good luck to the Tipps family on 5/19 with their M-o-o-ving Thru' The Mud fundraiser for Hope for HH. Save the date for the HH Symposium for Patients & Caregivers on 11/10/12 in Phoenix, AZ. Stay tuned for stories on HH in ABC 20/20 (tentatively mid-May) and the New York Times.
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Hope Welcomes 3 New
Medical Advisory Board Members
We are thrilled to announce 3 new Medical Advisory Board Members including:
Daniel Curry, M.D. (Neurosurgeon)
Director, Functional Neurosurgery and Epilepsy Surgery Program
Texas Children's Hospital, Houston, TX, USA
John Fulton, Ph.D. (Neuropsychologist)
Barrow Neurological Institute
Phoenix Children's Hospital, Phoenix, AZ, USA
Jeffrey V. Rosenfeld, MD (Neurologist)
Director, Monash University Institute for Brain Development and Repair
The Alfred Centre, Melbourne, AU
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Got Feedback?
If you have any questions or comments, please email info@hopeforhh.org . See something you like - let us know that too!
Happy Spring!
Hope for Hypothalamic Hamartoma
Board of Directors
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Mission
Provide information and support to HH patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and cure.
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Board of Directors
Lisa Soeby, President
Ilene Miller, VP & Treasurer
Erica Webster, Secretary
Emma Kane, Research Dir.
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Medical Advisory Board
Jack Kerrigan, MD, Chairman
BNI at Phoenix Children's
Phoenix, AZ, USA
Alexis Arzimanoglou, MD University Hospitals of Lyon Lyon, France
J. Helen Cross, MD UCL Institute of Child Health London, England
Daniel Curry, MD Texas Children's Hospital Houston, TX, USA
John Fulton, Ph.D. BNI at Phoenix Children's Phoenix, AZ, USA
Simon Harvey, MD Royal Children's Hospital Melbourne, Australia
Maya Lodish, MD National Institutes of Health Bethesda, MD, USA
Jean R�gis, MD Timone University Hospital Marseille, France
Harold Rekate, MD Chiari Institute Great Neck, NY, USA Jeffrey V. Rosenfeld, MD The Alfred Centre Melbourne, Victoria, AU
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Save The Date
11/10 Hypothalamic Hamartoma Symposium for Patients & Caregivers (Phoenix, AZ)
11/30 American Epilepsy Society Meeting (San Diego, CA)
for more info visit
www.hopeforhh.org
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