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Website Update - Jan. 2012
Members of Hope for HH's Board of Directors & Medical Advisory Board attended the American Epilepsy Society annual meeting in Baltimore, MD Dec. 2-6.
For conference highlights, new research articles and more - visit the website. More to follow in 2012.
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Remembering Grace 12/24/03-12/11/11
The entire HH community extends its deepest sympathies to the Webster Family. This is a terrible loss for Erica, Perry, Sarah, Garrett - and their extended HH family & community.
Erica is the HEART of Hope for HH and she and her family are in our prayers.
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Got Feedback?
If you have any questions or comments, please email info@hopeforhh.org . See something you like - let us know that too!
Happy New Year!
Hope for Hypothalamic Hamartoma
Board of Directors
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Mission
Provide information and support to HH patients, caregivers, and healthcare providers and to promote research toward early detection, improved treatments, living with HH, and cure.
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Board of Directors
Lisa Soeby, President
Ilene Miller, VP & Treasurer
Erica Webster, Secretary
Emma Kane |
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Medical Advisory Board
Jack Kerrigan, MD, Chairman
BNI at Phoenix Children's
Phoenix, AZ, USA
Alexis Arzimanoglou, MD University Hospitals of Lyon Lyon, France
J. Helen Cross, MD UCL Institute of Child Health London, England
Simon Harvey, MD Royal Children's Hospital Melbourne, Australia
Maya Lodish, MD National Institutes of Health Bethesda, MD, USA
Jean R�gis, MD Timone University Hospital Marseille, France
Harold Rekate, MD Chiari Institute Great Neck, NY, USA
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Volunteer Opps
We are currently looking for an experienced database manager. Just a few hours a month will go a long way. To learn more, please contact: imiller@hopeforhh.org.
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Save The Date
2/4 Join Hope for HH for the Epilepsy Therapy Project Family Day. (San Francisco, CA)
3/31 Walk for Hope for HH (Washington, DC)
11/30 American Epilepsy Society Meeting (San Diego, CA)
for more info visit
www.hopeforhh.org
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