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Heard in the Halls

Threat to Open Access to  Medications for Mental Illness

May 15, 2013

Edition 47

 

ACTION ALERT!

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We are at a critical time.  There are serious threats to open access to much needed mental illness medications.  The Governor's budget is projecting major savings through cutting this line item, which means people will have to change from the drugs they are on to ones that may not work as well.  We need to make it as easy as possible for people to get the medicines they need to get well and stay well.  Help us fight this- take action today!

 

Debra Dihoff, MA

Executive Director

NAMI North Carolina

What is the Issue?

 

North Carolina has an exemption from requiring people on medicaid to go through an authorization process to get the drugs that they need to treat their mental illness.  This may change!!  The state is trying to limit overall drug expenditures.  This may mean just saying no to a drug that works for you or your loved one.  It may mean failing first on a cheaper drug before you can get back on a drug that has worked.  It is hard on the doctors who must complete much more elaborate paperwork, it is hard on those living with a mental illness, and it is hard on their families. 

 

We need to work to continue protecting these vital medications, we need to continue the exemption.  Do not balance the budget on the backs of those with mental illness.

 

Important Points:

  1. Drug expenses in NC have actually decreased by $153M from 2009 to 2012 due in part to increased rebates
  2. We must preserve the Doctor-Patient decision making authority; drugs work differently on everybody.  Don't limit the number of products available, as you may not have access to the one that works for you. 
  3. Studies show that this idea for balancing the budget doesn't work well.  In Maine, they found a 6% greater likelihood of a gap in medication occurring from prior authorization, and an 18% greater risk of a person going 30 days or more without medication when they made this policy change.
  4. A study in Alabama with medicaid claims data around ER visits found that admissions related to behavioral health could have been avoided if people were able to consistently take their medications.  Consequently, they showed an increase in hospital costs of over $264M
  5. There are better ways to be smart about money but not endanger those with mental illness. There is the A+ Kids program, and a similar one for adults which works on safety monitoring of antipsychotics prescriptions that may not be consistent with FDA requirements.  We need more focus on these educational programs to help doctors get the dosage and match of medication  right.   Much money can be saved with this approach without imposing prior authorization requirements.

In short- this approach will balance the budget at the expense of people with mental illness, making it harder to get well and stay well.  We know from other states who have gone this way that it may in the short run save money, but it will end up costing more when adverse events occur:  people landing in the emergency room, in hospital beds, even in homeless shelters, jails, and prisons.  It costs our society much, much more than keeping people on the medications that keep them well

 

 Act Now.. Do it Today! We can Make a Difference...
  
1.  Call the Senate Chairs of Appropriations to tell them not to remove the medication exemption and not to balance the budget based on cutting medication costs:
  
Senator Ralph Hise (Mitchell)  919 733 3460 Ralph.Hise@ncleg.net
Senator Louis Pate (Wayne) 919 733 5621 Louis.Pate@ncleg.net
Senator Harry Brown (Onslow) 919 715 3034  Harry.Brown@ncleg.net
Senator Pete Brunstetter (Forsyth)  919 733 7850  Peter.Brunstetter@ncleg.net
Senator Neal Hunt (Wake)  919 733 5850  Neal.Hunt@ncleg.net
  
2. Call your local legislator and inform him/her about this issue.    Click here to find your legislator (you will need to enter your address in the search box in the top right corner of each interactive map to find your district)
3.  If you are involved in CIT in your community, get your stakeholders to write a letter opposing the removal of the exemption.  Click here to see a sample letter.  Except for families and those living with mental illness, no one knows better than law enforcement the effect that this will have in disrupting the lives of those who need these medications.  Ask law enforcement or your local hospital administrator to send a letter or make a call
  
We expect to see a budget in the Senate next week so it is vital that you TAKE ACTION.  Let's overwhelm them with calls and emails.  This is IMPORTANT.  Make the call
  
Making it personal... a story from Gloria Harrison, NAMI NC Helpline Coordinator
  
My husband is on Medicare and has had to "prior authorize" his psych meds recently.  But, the headlines are that I have too!  And our office has private insurance, of course.  Nothing like making me feel more guilty and worried about my anti-depressant. Depression is a source of constant worry and guilt already.  How about YOU?  Are you going through this?  You know, begging the doctor and pharmacy for your normal meds? 
  
Gloria Harrison
Helpline Coordinator
National Alliance on Mental Illness (NAMI) North Carolina