DAPCAN
Desert AIDS Project Community Action Newsletter
May 23, 2013 

D.A.P. will be closed on Monday!

Editorial Staff

David Brinkman

Chief Executive Officer

 

Barry Dayton

Director of Marketing and Communications

 

Alexis Ortega

Interactive Marketing

Specialist

 

Rick Vila

Volunteer Co-editor

 

John Lewis

Volunteer Co-editor

 

Steve Bolerjack

Volunteer Co-editor

 
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In This Issue
Save the Date
Positive Life Series
Community Center Events
Harvey Milk diversity breakfast
Dedicated phone line for RCHC HIV patient medications
Exhibit at JJ&P Gallery to benefit D.A.P.
No benefits seen to sharp decrease of salt in your diet
Anthem Blue Cross patients may "opt-out" of pharmacy mail order
FDA fast-tracks new Hepatitis C drug
Free summer film series
Andrew Vincent Alder: On DOMA, Prop 8, and immigration reform
Take LGBT Health Needs Survey
Help with Ryan White Program surveys
Quote of the Week
Ongoing Benefits & Resources
Save the Date
Tuesday, June 4, 6:00 - 8:00 PM 
Positive Life Series - HIV & Sex
The next Positive Life presentation,  "HIV & Sex - What You Need to Know About STDs," will feature Dr. Rick Loftus.  As always, a light supper is served at 6:00 PM, and the program begins at 6:30 PM.  The location is the Sinatra Auditorium at Desert Regional Medical Center (corner of Tachevah and Via Miraleste in Palm Springs) and the event, sponsored by Jewish Family Service of the Desert, is always free.  ASL translation is provided.  No need to RSVP.  Questions?  Email positivelifeseries@gmail.com.  Plan to attend and bring a friend!

fbfind
And Positive Life is now on Facebook!  Sign on, visit and like us here.

Upcoming Programs:
July and August:  DAPCAN will be on hiatus--have  a great summer!

September 3:  HIV & the Law--What You Need to Know, with local attorney Andrew Alder.

  

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Community Center Events

Desert AIDS Project's Community Services Wing, also known as the Community Center, houses many activities and programs including arts and crafts workshops, bingo, movies, lending library and drop-in hours when clients may come in to just hang out with friends.  The Community Center also hosts educational programs and classes designed to increase health literacy and empower clients to participate more in their own care.  Follow this link to see details about next week's featured events listed below.  If you would like to attend any of these events, please RSVP to Ray Robertson at 760.323.2118, ext. 295 or email rrobertson@desertaidsproject.org.  

   

Upcoming Community Center featured events:
    

Every Wednesday, 1:00 PM - 3:30 PM

ACUPUNCTURE THERAPY 

 

Every Thursday, 1:00 PM (no RSVP needed)
MOVIE & PIZZA!

Ongoing Community Center activities:

  • Support groups 
  • Hepatitis C therapy education
  • Diabetes education
  • Stitch in Time (needlecraft) - Third Wednesday of each month 
  • Community Center Computer Lab
  • Lending Library
  • Free films, Thursdays, 1:00 PM  
  • Afternoon tea, every Wednesday, 3:00 PM    

Check out the complete Community Center Schedule for all programs and drop-in hours.      

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D.A.P.  and Community News
 

 

Harvey Milk Diversity Breakfast serves rules to live by 

Three hundred people were in attendance this morning at the Hilton Palm Springs as George Zander, field manager for Palm Springs Equality California, recounted Harvey Milk's first rule as "everyone needs to come out." Retired 9th Circuit Court Judge Vaughn Walker gave the keynote address, stressing the second of Milk's rules: to participate in coalition building. "That is the way these transformative events occur," he said. Walker shared stories about his years on the bench, including when Prop 8 was in his court, describing the moment as "one of the high points" in his judicial career. Judge Walker was amused as he recalled when a thrice-married attorney asked a political science expert if there was any group regarded less well than gay men and lesbians in terms of political power. The expert's answer: "People married three or more times." In a nod to Harvey Milk Day, Walker said Milk was a pioneer in establishing human rights for all people, not just gay people. "All people are entitled to be who they are without regard to what role society would cast them in," he added. Click to watch the creative YouTube video played at this morning's breakfast. (rv)

 

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Dedicated phone line for RCHC HIV patient medications

The Warm Line, also  being called the Compliance Program Line,  is a separate phone line for Riverside County HealthCare's (RCHC) HIV patients to order refills and receive medications from Riverside County Regional Medical Center (RCRMC) pharmacy. By calling the number below, patients will reach a dedicated team of pharmacists to ensure they receive the medications needed. Call: 951.486.4442, Monday to Friday, 8:00 AM to 4:00 PM, excluding holidays. Also please allow 2 business days for medications to be ready for pick up at the RCRMC Pharmacy in Moreno Valley, and 7 business days for medications to be mailed to patient's home. If you leave a voice mail with your contact number, phone calls are generally returned within 1 business day. (rv)

 

New exhibit at JJ&A Pop Up Gallery will benefit D.A.P.  jja2
jjalogo Tomorrow, JJ&A Pop Up Gallery in Palm Springs will host an exhibit entitled Exposed Soul, Live Art, Jazz & Sangria.  You can't ask for much more than that!  It will feature "live art" by Demar Douglas and  new works by artists Jeff Ingram, Chris Redman, Tyree Jessie and sculptures by Snake Jagger.  And all will be accompanied by jazz music and sangria refreshment.  The event takes place on Friday, May 24 at 6:00 PM.  Twenty percent of all sales are being donated to Desert AIDS Project.  Our thanks to these artists and to JJ&A Pop Up Gallery, which is located at 687 North Palm Canyon, Suite A.  So come out, socialize, have a good time, enjoy (and maybe buy) the art and support a wonderful cause.  (sb) (rv) 

 

HIV/AIDS & Other Health News
 
No benefits seen to sharp decrease of salt in diet
In a report titled, Sodium Intake in Populations: Assessment Evidence, an expert committee, commissioned by the Institute of Medicine at the behest of the Centers for Disease Control and Prevention, said there was no rationale for anyone to aim for sodium levels below 2,300 milligrams a day. The group examined new evidence that had emerged since the last such report was issued, in 2005.  "As you go below the 2,300 mark, there is an absence of data in terms of benefit and there begin to be suggestions in subgroup populations about potential harms," said Dr. Brian L. Strom, chairman of the committee and a professor of public health at the University of Pennsylvania. He explained that the possible harms included increased rates of heart attacks and an increased risk of death.  Previously, some influential organizations, including the American Heart Association, who still affirms this position, have said that everyone, not just those at risk, should aim for very low sodium intake levels at 1500 milligrams of sodium per day. Read Gina Kolata's New York Times article. (rv)
 

Anthem Blue Cross patients with HIV/AIDS may "opt-out" of medical mail order

Anthem Blue Cross patients with HIV/AIDS may "opt-out" of a program that would have required them to obtain their medications by mail order under a settlement by Consumer Watchdog and Whatley Kallas LLC. A lawsuit alleged that Blue Cross's mandatory mail order program announced late last year illegally targeted HIV/AIDS patients, threatening their health and privacy. As a result of the settlement, which was approved today by entry of a Consent Order by the Hon. Judith Hayes of the San Diego Superior Court, any current Blue Cross member prescribed HIV/AIDS medications, and any member prescribed those medications in the future, have an unconditional right to opt-out of the Blue Cross mail-order program at any time.  Blue Cross members who opt-out can continue purchasing such medications at a retail pharmacy.  (rv)

 

FDA fast-tracks new Hepatitis C drug

hcvboomer A new Hepatitis C drug regimen has been given a breakthrough therapy designation by the Food and Drug Administration, putting it on the fast track for potential approval in the United States.  Such a designation from the FDA expedites development and review of drugs for serious or life-threatening conditions.  It requires preliminary clinical proof that the drug may provide "substantial improvement" over therapies currently on the market.  The FDA's distinction is a result of clinical trials involving patients infected with a particular strain of Hepatitis C, an infectious disease that mostly affects the liver and can ultimately lead to liver failure, cancer and other life-threatening complications.  As we know too well, Hep C has a high rate of coinfection with HIV.  The trials showed good response rates to the combination therapy and are currently in the third phase.  Patients are treated for 12 to 24 weeks and will be followed for nearly a year after treatment ends.  Read more here. (jl) (sb)

 

This & That


 
Palm Springs Art Museum announces annual free summer film schedule
annberg One of the literally coolest things about summer in the desert is the free film program presented at the Annenberg Theater (pictured) at the Palm Springs Art Museum.  The program begins on Thursday, June 6 at 6:00 PM and continues every Thursday all summer.   It starts with selections from the 2013 Global Lens foreign film series, including intriguing titles such as About 111 Girls, Life Kills Me and Beijing Flickers.  Classic American comedies come later in summer, including The Apartment, Harvey and Young Frankenstein.  Click here for the schedule and start marking your calendars as the film series is very popular and you'll need to arrive early to ensure a seat in the comfortable and cool Annenberg Theater.  (sb) 
 
Editorial

On DOMA, Prop 8, and immigration reform

By Andrew Vincent Alder

We are now a month or so away from the Supreme Court's decision on the two same-sex marriage cases argued before the nine justices last March.  One case will determine whether California's Prop 8 will survive, the other will determine the fate of one specific section of DOMA, the Defense of Marriage Act signed into law by President Clinton in 1996.  As we await those two major legal decisions, we have also been treated this week to the spectacle of the Congress doing what it so well knows how to do, the throwing of the LGBT community under the bus.  As  I predicted in a previous column, the Senate dropped any pretense of trying to protect same-sex couples such that gay U.S. citizens will not be able to sponsor for citizenship their foreign-born partners or spouses, in contrast with non-gay U.S. citizens who may routinely do so.  While this development regarding immigration reform was not unexpected, it once again lays bare the fiction that the LGBT community can look to Democrats to protect our interests.  Several Democratic senators did mourn the death of the amendment to offer equal rights in the immigration context, but it was abundantly clear that their determination to abandon LGBT folk was not a tough decision. I bring both of these issues up in this week's column because I find it ironic, indeed almost amusing, how the Congress and the Supreme Court, are effectively painting themselves into a corner.   Whatever the Court decides next month in the Perry case (the Prop 8 case from California) and the accompanying DOMA case, the fact remains that the immigration issue and the balance of DOMA (which will be unaffected by any decision the Supremes hand down in June) are on an inevitable collision course, one that will doubtless wind up back in the Supreme Court very soon.  Consider:  If gay Americans cannot sponsor foreign-born spouses into this country, even if married in states which allow it, they are by definition not equal to straight Americans who can, without question, sponsor their foreign-born spouses into the country.  That is, in essence, a manufactured equal protection case that will, once again, force the Supreme Court, and the country, into facing the question that politicians and jurists and institutions clearly do not want to confront head on:  Are LGBT Americans truly equal to those citizens who are not LGBT?  That question has never been framed so directly, and the actions of Congress ensure that it will continue to be asked even more directly.  How this question is ultimately answered, and it will be, shall speak volumes about the reality of the American dream and our place within it. (rv)

 

Editor's note: Andrew Vincent Alder is our new DAPCAN legal editor. He will write, with some regular frequency, about issues related to the law and HIV/AIDS, and the law and the LGBT community. Andrew practices law in Palm Springs and can be reached by email: andrewvincentalder@gmail.com. The opinions expressed herein are Andrew Vincent Alder's and do not necessarily reflect the opinion of D.A.P.'s board, staff, or other volunteers

 

Editor's comment: Click to read a related Salon.com story titled How policy nihilists in the Senate doomed LGBT immigrants


Advocacy

Through end of this month, take LGBT Health Needs Survey and add your voice to help ensure funding and resources

survey The LGBT Community Center of the Desert is continuing its comprehensive LGBT Health Needs Survey of the Coachella Valley through the end of this month.  In partnership with a local health research company, the Health Assessment Resource Center (HARC), the Center has designed an online survey to assess the health needs of the local LGBT community.  Information obtained from this survey will help The Center design programs and services to better meet your specific needs, and obtain additional funding to provide new programs and services.  Click here for all the information you need to take the survey.   Your editors took it and found it painless!  It's all online, completely anonymous, takes approximately 20 minutes and is ultimately for your own benefit!  (jl) (sb) 


Please let the Ryan White Program hear your voice when their survey hits your mailbox later this month!   
ryanwhite The Ryan White HIV/AIDS Program--one of D.A.P.'s largest funders--has been mailing out its satisfaction survey to most clients.  A postage-paid envelope is included.  The survey is sent only to clients who have indicated they accept mail on their intake or update forms.  So if your mailing preferences have changed, please contact your medical case manager, so we can update records accordingly.  For clients who don't receive mail, hard copies will be provided upon request at D.A.P.  Surveys in Spanish are also available.  If you have  visited another agency funded by the Ryan White Program in Riverside or San Bernardino Counties, you may receive survey multiple surveys.  Look for the agency name at the top of the survey before completing it.   Although the Ryan White Program will provide D.A.P. with a cumulative summary of comments and ratings, your responses to the survey will be completely anonymous.  D.A.P. is eager to learn where improvements can be made and this survey is a great opportunity to contribute your thoughts, so if you haven't done so already, please complete and return the survey.  (jl)  (sb) 
 
Quote

 
 
 
"Dogs are our link to paradise. They don't know evil or jealousy or discontent. To sit with a dog on a hillside on a glorious afternoon is to be back in Eden, where doing nothing was not boring -- it was peace." 
 
                                                     -- Milan Kundera
  
Ongoing Benefits, Resources & Information

CDC launches re-designed HIV website

cdchiv The Centers for Disease Control and Prevention (CDC) recently launched its newly designed HIV website.  With more than 8 million page views in 2012, the CDC site is one of the most-visited HIV websites on the Internet.  Because so many people depend on CDC for the latest HIV science and public health information, as well as for campaign and educational materials, policies, and guidelines, the site was redesigned to give various audiences a more intuitive and useful way to find relevant, personal and useful information.  Be aware that the site is somewhat front-heavy on HIV prevention but has portals to many other types of information.  Click through sub-sections for more on living with HIV, treatments, etc.  Click www.cdc.gov/hiv to experience the new site. (jl) (sb)

 

Positively Aware's online HIV drug guide   guypills
palogo You can check here anytime for the latest information about your antivirals--dosages, side-effects, etc,  courtesy of Positively Aware.  (sb)   

   

        

Keep track of healthcare reform changes  

hcgov The Affordable Healthcare Act is being implemented and it's important to keep track of changes in coverage and payment options.  Regardless of your current insurance situation, click here for a government website that provides some guidance regarding Medicare, Medicaid and other possible insurance options (albeit limited) for those living with disabilities and/or chronic health issues (pay particular attention to the Medicare and Timeline tabs).  And click here for an even more detailed summary.  (sb) 

      

 

 

 

   

ADAP may pay Medicare Part D premium

ADAP-eligible clients who have to purchase Part D prescription drug coverage may qualify to have their Part D premium paid by the State of California. Follow this link to the Part D Premium Payment Program Application. You can also call the State of California at 916.449.5900 for more information.  (jl) 

   

Help with Medicare
medicarewallet The State Health Insurance Assistance Program (SHIP) offers one-on-one counseling and assistance to people with Medicare and their families.  This includes information about original Medicare, Medicare Health Plans, Medicare Prescription Drug Plans, Medicare Supplemental policies and Long-term Care Insurance.  The California Department of Aging (CDA) is responsible for statewide administration of SHIP, which is delivered through the Health Insurance Counseling and Advocacy Program (HICAP).  HICAP services can be accessed via a toll-free line at 800.434.0222.  The local HICAP counselor is located at the Mizell Center in Palm Springs and can be reached at 760.323.5689.  Follow this link for more information.

Help paying for prescription medications  

needymeds4 Among the resources available to HIV-positive people to help pay for prescription medications is NeedyMeds. The mission of NeedyMeds is to make information about assistance programs available to low-income patients and their advocates at no cost.  Go  to www.needymeds.org, look up the  medications you need and you'll be directed to the patient assistance program website for that manufacturer.  The site  also offers a free drug discount card that is accepted at more than 62,000 pharmacies.  If you are having trouble paying for your medications this site is worth a look!  (jl) (sb) 

 

Help paying for private health insurance premiumshealthinsu  
If you or someone you are close to is HIV-positive and paying for private health insurance, there may be help in paying premiums. The California Department of Public Health, Office of AIDS (OA) administers the Health Insurance Premium Payment (OA-HIPP) Program.  OA has expanded OA-HIPP to make this program available to more individuals with health insurance who are at risk of losing it, and to individuals currently without health insurance who would like to purchase it.  You do NOT need to be a D.A.P. client to access OA-HIPP.  Follow this link to see if you qualify, and also check out the above links in the healthcare reforms article. (jl) (sb)  

Medically Indigent Services Program  (MISP) 

AIDS Drug Assistance Program (ADAP)      

For those who qualify, medical care and help paying for your medications are available through the MISP and ADAP programs.*  Find out if you qualify: schedule an appointment by calling the numbers below.  You can schedule your MISP and ADAP appointments together for Moreno Valley office ONLY.  Call no sooner than four weeks before your ADAP qualifying expiration date (usually around your birthday).  If you qualify for ADAP only, the local ADAP office is right across the driveway, south of D.A.P., at the Palm Springs Family Care Center.  Specify the Palm Springs office when you call.  Here are the numbers:  


877.501.5085 - toll free                                                                951.486.5375 - English         

951.486.5400 - Spanish                                                              951.486.4635 - fax     

 

*NOTICE:   Faxed MISP/ADAP applications can get lost in the process.  It's best to apply in person in Moreno Valley, and get a "receipt of application," and use that as proof that you applied to avoid uninterrupted services with your D.A.P. medical doctor visits.  Otherwise, follow up your annual meeting with ADAP with a call to ensure all your paperwork was received and is complete.
 

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D.A.P. contact information   Computer Lab

phoneshirtless The local phone number of Desert AIDS Project is  760.323.2118. The toll-free phone number is 866.331.3344 and the website is desertaidsproject.org.  

 

 

Back issues always available online
filecabgirl Need another look at something you read in DAPCAN?  Find past issues online by clicking this link.  As always, you can also read the most current edition of DAPCAN on the D.A.P. website here.  And we've recently updated these links to ensure that the very latest issues of DAPCAN are always available. (jl)

D.A.P. holiday closings for 2013  

  bebacksoon  

May 27 - Memorial Day  

July 4 - Independence Day

September 2 - Labor Day

October 14 - Columbus Day

November 11 - Veteran's Day

November 28-29 - Thanksgiving

December 25 - Christmas Day

 

Call 211 for essential human services in Riverside County

211red 2-1-1 is a toll-free service for residents looking for information about essential human services such as affordable housing, food pantries, help for an aging parent, free or low cost health services, addiction prevention programs, employment, support groups, volunteer opportunities, and 1,700 additional services! (jl)

Contact information for state and federal officials--click on name:


President Barack Obama
Senator Diane Feinstein
Senator Barbara Boxer
Representative Raul Ruiz
Representative Mark Takano
Governor Jerry Brown
State Senator Bill Emmerson
State Assembly member Brian Nestande
State Assembly member Manuel Perez
 

 

Desert AIDS Project - Community Action Newsletter (DAPCAN) presents published material, reprinted with permission, and neither endorses or opposes any material.  All information contained in this newsletter, including information relating to health conditions, products, and treatments is for informational purposes only.  It is often presented in summary or aggregate form.  It is not meant to be a substitute for the advice provided by your own physician or other medical professional.  Always discuss treatment options with a physician who specializes in treating HIV.  Publication of the name or likeness of any individual in articles in this newsletter is not to be construed as any indication of the HIV status of such individual.  If you do not wish to receive this e-newsletter, please notify us by using the email address below:

 

For questions, comments, or unsubscribe contact us at: DAPCAN@DesertAIDSProject.org 

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