DAPCAN
Desert AIDS Project Community Action Newsletter
May 2, 2013 
ndr

A Day to Celebrate Critical Thinking, Enlightenment, Science,
Secular Education and  
Separation of Church and State  

Editorial Staff

David Brinkman

Chief Executive Officer

 

Barry Dayton

Director of Marketing and Communications

 

Alexis Ortega

Interactive Marketing

Specialist

 

Rick Vila

Volunteer Co-editor

 

John Lewis

Volunteer Co-editor

 

Steve Bolerjack

Volunteer Co-editor

 
   Top   

In This Issue
Positive Life Series
Community Center Events
Dining Out for Life--early results
New Cancer Center holds first screening
Write for DAPCAN
Meningitis update
Latest on HIV and cardiovascular health
Latest on HIV and mental healthcare
Revised label warnings for Atripla
HIV cure--where are we?
Broadway in the desert
National Day of Reason
Take the LGBT Health Needs Survey
Immigration bill and LGBT rights
Ongoing Benefits & Resources
Save the Date
Next Tuesday, May 7, 6:00 - 8:00 PM: Positive Life Series
CROI Update
Updates on the latest in HIV treatments and cure research from the Retrovirus Conference (CROI), with D.A.P. medical director Dr. croi2013 Homayoon Khanlou, and local treatment activist Jeff Taylor.  As always, a light supper is served at 6:00 PM, and the program begins at 6:30 PM.  The location is the Sinatra Auditorium at Desert Regional Medical Center (corner of Tachevah and Via Miraleste in Palm Springs) and the event, sponsored by Jewish Family Service of the Desert, is always free.  ASL translation is provided.  No need to RSVP.  Questions?  Email positivelifeseries@gmail.com.  Plan to attend and bring a friend!

fbfind
And Positive Life is now on Facebook!  Sign on, visit and like us here.

Upcoming Programs:

June 4:  HIV & Sex--What You Need to Know About STDs, with Dr. Rick Loftus.
July and August:  We'll be on hiatus--have  a great summer!
September 3:  HIV & the Law--What You Need to Know, with local attorney Andrew Alder.
  

Back to top 

Community Center Events

Desert AIDS Project's Community Services Wing, also known as the Community Center, houses many activities and programs including arts and crafts workshops, bingo, movies, lending library and drop-in hours when clients may come in to just hang out with friends.  The Community Center also hosts educational programs and classes designed to increase health literacy and empower clients to participate more in their own care.  Follow this link to see details about next week's featured events listed below.  If you would like to attend any of these events, please RSVP to Ray Robertson at 760.323.2118, ext. 295 or email rrobertson@desertaidsproject.org

 

Upcoming Community Center featured events:  

 

Every Thursday, 1:00 PM (no RSVP needed)
MOVIE & PIZZA!     

Ongoing Community Center activities:

  • Support groups 
  • Hepatitis C therapy education
  • Diabetes education
  • Stitch in Time (needlecraft) - Third Wednesday of each month 
  • Community Center Computer Lab
  • Lending Library
  • Free films, Thursdays, 1:00 PM  
  • Afternoon tea, every Wednesday, 3:00 PM    

Check out the complete Community Center Schedule for all programs and drop-in hours.      

Back to top 

D.A.P. News
 
Dining Out for Life--early results     

dofl Final figures are not yet in for Dining Out for Life on April 25, but early numbers  suggest that is was, as usual, a great success.  Trio Restaurant and Spencer's contributed 60% and 75%, respectively, of the day's sales.  Volunteer ambassadors sponsored by Bank of America helped bring customers into restaurants and bars, which helped raise awareness of D.A.P.'s programs and services and solicited more than $26,000 in direct donations!  Brighthaus Marketing also helped bring in many of the Tuesday Night Social Club's 1200 members to a variety of restaurants.   Brighthaus also held a special kick-off event for the Club at Random Haus Palm Springs, with catering by El Mirasol and cocktails by Ketel One Vodka.  That event contributed more than $2,800 to Dining Out for Life.  (sb) 

 

Back to top  
First event at Annette Bloch Cancer Center brings in many for screenings cs      

The April 19 free cancer screening offered by D.A.P.'s new Annette Bloch Cancer Care Center served 66 people (a good number for a new event and the size of our community), examining them for oral, head and neck cancers in observation of the awareness week for those types of cancers.  Several were referred for further consultation.  Desert Regional Medical Center and City of Hope partnered with D.A.P. on this outreach.  We hope such screenings will become a regular event at the Cancer Care Center.  (sb)

 

Back to top  
Want to see your own byline?  Write something for DAPCAN!
DAPCAN is a client- and volunteer-driven newsletter loyally published every Thursday by three willing but sometimes harried editors.  Our growing list of subscribers now numbers more than 1500.  Sometimes, we could use some help!  Do you have a message to convey?  A particular expertise in HIV health or advocacy issues?  An unusual or unique experience?  Asnoopydarkstorym cautionary tale?  A constructive rant?  Have you fantasized about being published?  We're looking for people who would like to occasionally contribute stories, ideas and content to DAPCAN.  Even if you don't consider yourself a good writer, we can help craft and edit your message.  We welcome all non-offensive submissions and also encourage our readers to let us know what type of stories you want to read in DAPCAN.  Remember, you can always contact us via email at dapcan@desert.aids.project.org.  (rv) (jl) (sb)

 

Women's clothing sale at Revivals
revwomen As always, Revivals will have various sales throughout the upcoming summer season.  DAPCAN will keep you posted on the best deal days.  (sb)
  
HIV/AIDS & Other Health News
 
Meningitis update 

As we reported last week, no other cases of bacterial meningitis have been reported in either our local area or in southern California.  Last month, there was great concern when a visitor to Palm Springs during White Party weekend contracted the disease and later died in a Los Angeles hospital.  But where and how he was exposed to meningitis remains unknown.  Neither local hospitals nor the D.A.P. Health Center here have received any menshot patients presenting with meningititis symptoms.  However, public health officials still recommend vaccinations for those at risk of exposure and those with immune suppression.  Click here to read WebMD's summary and here for more information.  D.A.P. continues to provide free vaccinations for anyone who wants one, regardless of HIV or client status.  Call 760.323.2118, ask for the Health Center and make an appointment if you would like the vaccination.  Your editor got his and despite the photo, it didn't hurt a bit!  (sb) 

 

Cardiovascular health now "risk management" part of HIV care

heart8 We have long known that long-term antiviral therapy, aging and the fact of being HIV-positive all increase our risk for developing cardiovascular disease.  Illness and fatigue which prevent exercise, hyperlipidemia, chronic inflammation, stress and depression only add to that risk.  Yet so far, there has been only sporadic data and sparse comprehensive guidance in helping HIV patients manage cardiovascular issues.  But now, a clearer picture is developing although it's far from clear.  David Wohl, MD, and HIV specialist at the University of North Carolina, has done extensive research on HIV and cardiovascular health.  He recently gave a detailed interview describing the latest information and what we can expect in managing our cardiovascular issues as we get older.  Especially interesting is his discussion of specific effects numerous antiviral drugs may have on our heart health.  Click here to read the interview and take some time with it--it's current vital information and worth a close read.  (sb) 


Is mental healthcare getting lost among the pills and paperwork?

hivdepression Do you sometimes feel that living with HIV/AIDS is often all about labs, t-cell counts, pillboxes, pharmacies, doctors, insurance and worrying?  There is fortunately, much discussion about HIV patients' physiological health, but far less focus on their overall mental well-being.  As we live longer but age quicker with the disease, it's increasingly clear that one's psychological state is as critical a factor as any other in managing HIV/AIDS.  Researchers and healthcare providers (well, some) are becoming more inclusive of mental health issues in treating patients.  "We have made this mind/body distinction, especially in our culture," says licensed HIV client therapist David Fawcett, Ph.D.  "It allows a lot of providers--and society in general--to turn a blind eye toward some of the things that are less convenient or more difficult to approach.  The medical community treating those with HIV tends to look at the objective data--the raw values and because of time shortages, they may choose to prescribe an antidepressant or an antianxiety medication--and that's the end of it.  But from the patient's point of view, that's not the end of it.  They get into all kinds of issues that often go unaddressed.  And there is a real lack of resources for people to turn to."  In addition to depression, isolation and stigma, cognitive decline is also becoming more common in aging HIV patients.  Click here for more about that, and here for a general discussion about why mental health of HIV patients is often sidelined and how we hope that is finally changing.  And watch DAPCAN for upcoming stories featuring our mental healthcare professionals here at D.A.P.  (sb)  


FDA revises label on Atripla--possible interactions with Hep C drugs
The U.S. Food and Drug Administration (FDA) has made changes to the label  for the single-pill triple combination Atripla (efavirenz/emtricitabine/tenofovir).  They include: atripla
  • An advisory against taking Atripla with Stribild (elvitegravir/cobicistat/emtricitabine  /tenofovir).
  • Information on drug interaction for raltegravir, boceprevir and telaprevir, drugs commonly used in treating Hepatitis C. 
  • Additional information about rash warning and rare but life-threatening reaction such as Stevens-Johnson syndrome to consider alternative antiviral therapy.
  • Reminder that appropriate dosing combining efavirenz boosted with Invirase (saquinavir/ritonavir) has not been established.
  • Advisory that adding Kaletra (lopinavir/ritonavir) with Atripla may produce adverse reactions.

If you are on Atripla, it's wise as always, to consult your doctor about any possible effects these new advisories may have on your drug therapy.  For more information and other links, click here and here.  (sb)

 

Cure quandary: don't hold your breath 
curedofaids Since the inception of DAPCAN, your editors have tried to keep on top of any news about a cure for HIV/AIDS.  We want it as much as anyone.  And we've reported on many so-called "promising," "partial" and "functional" cures that got lots of media and medical attention... then petered out.  During this past week alone, reliable sources such as WebMD, Business Insider and London's Daily Telegraph all reported that Dutch scientists "may be close" to a cure.  Well, great...we hope.  But other major outlets have ignored the story and NBC News reported that yet another HIV vaccine clinical test had been suspended due to "dismal failure."  We're not sure what to make of all these qualified and decidedly mixed reports but are anxious to hear more concrete results.  Click here for a good summary story in The New York Times about how close a real cure may be.  Meanwhile, take your meds.  (sb)  

This & That

Broadway in the desert
alixk Feel like some very affordable musical 'theatuh?'  Broadway star, desert resident and D.A.P. pal Alix Korey (pictured left) is previewing her one-woman show, Celebrating Ethel Merman, this Sunday, May 5 at the Arthur Newman Theater, 73750 Catalina Way in Palm Desert at 2:00 PM (box office opens at 1:00 PM).  Tickets are only $10, cash-only at the door.  Alix's ethelmerman Broadway resume includes roles in Hello Dolly!, Show Boat, Chicago, Pirates of Penzance, An Evening with Jerry Herman and many others.  She will be accompanied by musical director and pianist extraordinaire, Chris Marlowe.  And if you're too young to remember who Ethel Merman was (pictured right), catch up!  (Hint: she was the original Mama Rose in the 1959 Broadway production of Gypsy.  Research accordingly!)  Click here for Alix's website and here for all about Ethel.  (sb)
 
Advocacy

National Day of Reason an alternative to Day of Prayer  crithink2
The National Day of Reason was created in 2003 by the American Humanist Association as a day of observance for secularists, constitutionalists and as an alternative to the National Day of Prayer, which some feel is unconstitutional.  Since secular humanism as a philosophy and belief system is not well-known among average Americans and is downright unpopular among the religiously inclined, it's not surprising that National Reason Day gets little media attention.  Click here and here for more information on this relatively new landmark for rationality and reason.  (sb)
 
Take LGBT Health Needs Survey and add your voice

survey The LGBT Community Center of the Desert is proud to announce the first comprehensive LGBT Health Needs Survey of the Coachella Valley!  In partnership with a local health research company, the Health Assessment Resource Center (HARC), the Center has designed an online survey to assess the health needs of the local LGBT community.  Information obtained from this survey will help The Center design programs and services to better meet your specific needs, and obtain additional funding to provide new programs and services.  Click here for all the information you need to take the survey.  It's all online, completely anonymous, takes approximately 20 minutes to complete and is ultimately for your own benefit!  (jl) (sb) 


Stuck between an immigration rock and LGBT hard place 
by Andrew Vincent Alder, Attorney-at-Law 

avalder

Immigration reform remains a volatile issue in Congress as the political ramifications fall along predictable lines.  Democrats want to provide some pathway to citizenship for millions of undocumented people already in the country while Republicans take a much harder line, some even urging deportation. Conventional political wisdom suggests that Republicans must arrive at some type of compromise on immigration or they will continue to lose elections among the nation's increasing numbers of Hispanic citizens.  Recently,  eight members of the US Senate (four Democrats and four Republicans) drafted a bill they hope will be sufficiently tough on border security to attract some Republican support and adequately supportive of some path to citizenship to satisfy Democrats. But it's increasingly clear that both parties are quite willing to abandon any LGBT interests in the bill in order to get something passed and sent to the president.  The "Gang of Eight's" bill now excludes any provision to permit LGBT American citizens to sponsor their foreign-born partners into the country the same way that heterosexual citizens would be allowed.  In fact, language allowing such gay equality in immigration was simply removed from all drafts of the bill after Senators Schumer of New York and Leahy of Vermont (usually LGBT allies) bowed to Gang of Eight Republicans--LGBT protections were just eliminated from the final proposed legislation.  The bill comes before the Senate Judiciary Committee next week where an amendment to reinstate LGBT immigration provisions will get a vote.  But even if that inclusive amendment passes, there is a strong possibility the entire immigration bill will be defeated.  Republicans who might otherwise support immigration reform have, predictably, already stated that any protections for same-sex couples will doom the entire effort.  As this bill progresses, we should closely watch which Democrats  stand with the LGBT community and which ones join Republicans.  Of course, this is not the first time we've been thrown under the proverbial bus by supposed political friends, but it's rare that something desired by so many across the political spectrum--long overdue immigration reform--may fail simply due to conservatives' dismissal of LGBT equality.  Click here for more on this issue.

   

Andrew Vincent Alder is a local attorney specializing in many areas of interest to the LGBT and HIV/AIDS communities.  He can be reached at andrewvincentalder@gmail.com.

Quote of the Week
 
"Each of us put our hand on the Bible and swore to uphold the Constitution.  We did not place our hands on the Constitution and swear to uphold the Bible."

                                                                     --Brian Sims, Pennsylvania State Representative
Ongoing Benefits, Resources & Information

Positively Aware's online HIV drug guide  bottles2
palogo You can check here anytime for the latest information about your antivirals--dosages, side-effects, etc,  courtesy of Positively Aware.  (sb)   

   

        

Keep track of healthcare reform changes  

hcgov The Affordable Healthcare Act is being implemented and it's important to keep track of changes in coverage and payment options.  Regardless of your current insurance situation, click here for a government website that provides some guidance regarding Medicare, Medicaid and other possible insurance options (albeit limited) for those living with disabilities and/or chronic health issues (pay particular attention to the Medicare and Timeline tabs).  And click here for an even more detailed summary.  (sb) 

      

ADAP may pay Medicare Part D premium

ADAP-eligible clients who have to purchase Part D prescription drug coverage may qualify to have their Part D premium paid by the State of California. Follow this link to the Part D Premium Payment Program Application. You can also call the State of California at 916.449.5900 for more information.  (jl) 

   

Help with Medicare
medicarewallet The State Health Insurance Assistance Program (SHIP) offers one-on-one counseling and assistance to people with Medicare and their families.  This includes information about original Medicare, Medicare Health Plans, Medicare Prescription Drug Plans, Medicare Supplemental policies and Long-term Care Insurance.  The California Department of Aging (CDA) is responsible for statewide administration of SHIP, which is delivered through the Health Insurance Counseling and Advocacy Program (HICAP).  HICAP services can be accessed via a toll-free line at 800.434.0222.  The local HICAP counselor is located at the Mizell Center in Palm Springs and can be reached at 760.323.5689.  Follow this link for more information.

Help paying for prescription medications  

needymeds4 Among the resources available to HIV-positive people to help pay for prescription medications is NeedyMeds. The mission of NeedyMeds is to make information about assistance programs available to low-income patients and their advocates at no cost.  Go  to www.needymeds.org, look up the  medications you need and you'll be directed to the patient assistance program website for that manufacturer.  The site  also offers a free drug discount card that is accepted at more than 62,000 pharmacies.  If you are having trouble paying for your medications this site is worth a look!  (jl) (sb) 

 

Help paying for private health insurance premiumshealthinsu  
If you or someone you are close to is HIV positive and paying for private health insurance, there may be help in paying premiums. The California Department of Public Health, Office of AIDS (OA) administers the Health Insurance Premium Payment (OA-HIPP) Program.  OA has expanded OA-HIPP to make this program available to more individuals with health insurance who are at risk of losing it, and to individuals currently without health insurance who would like to purchase it.  You do NOT need to be a D.A.P. client to access OA-HIPP.  Follow this link to see if you qualify, and also check out the above links in the Healthcare reforms article. (jl) (sb)  

Medically Indigent Services Program  (MISP) 

AIDS Drug Assistance Program (ADAP)      

adapmylife For those who qualify, medical care and help paying for your medications are available through the MISP and ADAP programs.*  Find out if you qualify: schedule an appointment by calling the numbers below.  You can schedule your MISP and ADAP appointments together for Moreno Valley office ONLY.  Call no sooner than four weeks before your ADAP qualifying expiration date (usually around your birthday).  If you qualify for ADAP only, the local ADAP office is right across the driveway, south of D.A.P., at the Palm Springs Family Care Center.  Specify the Palm Springs office when you call.  Here are the numbers:  


877.501.5085 - toll free                                                                951.486.5375 - English         

951.486.5400 - Spanish                                                              951.486.4635 - fax     

 

*NOTICE:   Faxed MISP/ADAP applications can get lost in the process.  It's best to apply in person in Moreno Valley, and get a "receipt of application," and use that as proof that you applied to avoid uninterrupted services with your D.A.P. medical doctor visits.  Otherwise, follow up your annual meeting with ADAP with a call to ensure all your paperwork was received and is complete.
 

Back to top  
D.A.P. contact information  computercool

retphone The local phone number of Desert AIDS Project is  760.323.2118. The toll-free phone number is 866.331.3344 and the website is desertaidsproject.org.  

 

 

Back issues always available online
archives Need another look at something you read in DAPCAN?  Find past issues online by clicking this link.  As always, you can also read the most current edition of DAPCAN on the D.A.P. website here.  And we've recently updated these links to ensure that the very latest issues of DAPCAN are always available. (jl)

D.A.P. holiday closings for 2013  

  bebacksoon  

May 27 - Memorial Day  

July 4 - Independence Day

September 2 - Labor Day

October 14 - Columbus Day

November 11 - Veteran's Day

November 28-29 - Thanksgiving

December 25 - Christmas Day

 

Call 211 for essential human services in Riverside County

211red 2-1-1 is a toll-free service for residents looking for information about essential human services such as affordable housing, food pantries, help for an aging parent, free or low cost health services, addiction prevention programs, employment, support groups, volunteer opportunities, and 1,700 additional services! (jl)

Contact information for state and federal officials--click on name:


President Barack Obama
Senator Diane Feinstein
Senator Barbara Boxer
Representative Raul Ruiz
Representative Mark Takano
Governor Jerry Brown
State Senator Bill Emmerson
State Assembly member Brian Nestande
State Assembly member Manuel Perez
 

 

Desert AIDS Project - Community Action Newsletter (DAPCAN) presents published material, reprinted with permission, and neither endorses or opposes any material.  All information contained in this newsletter, including information relating to health conditions, products, and treatments is for informational purposes only.  It is often presented in summary or aggregate form.  It is not meant to be a substitute for the advice provided by your own physician or other medical professional.  Always discuss treatment options with a physician who specializes in treating HIV.  Publication of the name or likeness of any individual in articles in this newsletter is not to be construed as any indication of the HIV status of such individual.  If you do not wish to receive this e-newsletter, please notify us by using the email address below:

 

For questions, comments, or unsubscribe contact us at: DAPCAN@DesertAIDSProject.org 

Additional Contacts/Social Networking 

 

Join Our Mailing List! 

 

Find us on Facebook

 

Follow us on Twitter