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E-Connection
 May 2010
Greetings!

Many of us are looking forward to those lazy, hazy days of summer... The days of sun, water, games and cookouts but we may need some ideas for our children with a DCC to get them and us into the summer mood!

For some of us summer provides an opportunity to relax and refresh while others may wish to take advantage of the myriad of sport and learning opportunities available, like swimming lessons, tee-ball and summer camp. Regardless of your summer plans, it is helpful to plan ahead and research options for much needed R&R or organized summer fun.  Despite the economy, many communities have recreation programs that offer a variety of outdoor activities and education enhancement programs.  Summer camps are an option for parents who want to provide their children with a new experience and a way to instill a sense of independence. 

In fact, parents of children with developmental disabilities may have a number of choices to investigate near their homes or even a bit farther away.  There are many quality summer camps for special needs children. 

Most camps ensure fun and recreation but also include therapy, education enhancement, daily living skills and socialization.  Some camps even have twenty-four hour nursing support for children with severe disabilities.  When researching recreation or summer camp programs, parents should look for the American Camp Accreditation seal and request safety records from previous years.
 
For parents and caregivers looking for some much needed R&R, respite camps are available in some communities. For some families respite care can be subsidized or free, depending on the state in which the family resides. 

To learn more about respite opportunities and affordable options, based on state supplementation, visit National Respite Locator  Respite therapy camps designed specifically for disabled children can be found at Therapy Camps.  Consider a respite - even a two-day break can provide much needed rest and relaxation this summer.

Patient Protection and Affordable Care Act

Regardless of your political view of healthcare reform, the newly enacted Patient Protection and Affordable Care Act offers benefits for children with disabilities. 

  • Beginning this year the new law prohibits health insurers from including pre-existing condition clauses for children.
  • On January 2, 2011, the Community Living Assistance Services and Supports (CLASS) Act creates a national, voluntary insurance program to help individuals receive long-term care coverage for expenses not covered by public or private insurance. 


This act may help individuals with disabilities to maintain independence or get assistance that would otherwise be unavailable or require an out-of-pocket expense.





This Summer don't miss the
DCC Conference July 30 - August 1st, 2010


If you haven't visited the website to look at the conference agenda, now is the time to do so DCC Conference Registration.

Early bird registration has been extended and ends June 14 !
Don't miss this opportunity to save money on your conference registration fees.



 
The NODCC Staff-


Barbara Fonseca, Donna Doherty and Cheri Robertson
Conference 2010
Conference Teens
The DCC Conference
will be in 
Santa Clara, CA
 July 30-August 1, 2010
******
With amusement parks, wine country, beaches and San Francisco all a short walk or drive, this is the perfect family vacation!

Email Cheri Robertson, Conference Director at conference@nodcc.org
for more details

Registration is open!

Sign up now via the Conference Tab on our web site to attend this amazing weekend.
Fundraising Corner
Getting in shape for swimsuit season!
Do you love to exercise and stay in shape?  Consider running a 5K, half-marathon or triathlon to benefit the NODCC.
We can help you partner your fitness goals with our fundraising goals benefiting the NODCC. 
Contact us for resources and more information. 


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The NODCC exists to enhance the lives of those affected by a Disorder of the Corpus Callosum through education, advocacy, networking, and research.
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