NODCC Logo
E-Connection
 December 2009
Greetings!
We hope you are having a wonderful holiday season!  Below are excerpts from our latest newsletter.  Full articles are available exclusively online so check it out by clicking here.  When you read all the wonderful things the NODCC is doing, we know you will be inspired to include the NODCC in your year-end giving.  Thank you for your involvement and generosity.  You make this vital work possible! 
In This Issue
Invitation to Give
Behavior and DCC: The Research
One Adult's Journey
Educational Resources
One 13 Year Old Makes a Big Difference
Your are invited:  A Holiday Stay-At-Home Fundraiser!
We hope you received your invitation in the mail to our "Holiday Stay-At-Home Event".

We are not inviting you to pay for an expensive dinner, dress-up in a tuxedo or cocktail dress, arrange childcare, or add stress to your already busy schedule.  In light of all the money we are saving you and the NODCC, we ask you to stay at home with your family during this holiday season and contribute generously to the NODCC!

We appreciate your tax-deductible donations and generosity!   

Donate by clicking here or email [email protected] for more information. 
Is that behavior DCC or something else?
Angelina"How many times have you thought "is that behavior a result of the corpus callosum disorder or is it because of something else?"  Many individuals with callosum disorders, as well as their family members, have asked me that question.  Usually they are looking for a way to change a particular behavior, or at least cope with it more effectively.  The Caltech Corpus Callosum Research Program is working in collaboration with other laboratories to unravel this mystery."
Full article by Lynn Paul available in the NODCC Newsletter.  Click here or go to www.nodcc.org. 
Tom's remarkable journey with ACC
Tom and Spouse"Although we ACCers as a people, can make others cry, scream, and shout, we can also make them smile and laugh, in ways no others can.....although we may face challenges and present challenges not often understood, or sometimes misunderstood, we all have character and spirit, which always shines through.
My name is Tom.  I am a 35-year old individual with C-ACC.  I just completed ten years in the Information Technology industry as a full-time Software Developer, after having attained a B.S. in Computer Science.  I found out about my C-ACC two years ago."
Read the rest of Tom's moving story in the NODCC Newsletter by clicking here or visiting www.nodcc.org. 
Frustrated at school?
School BusA new school year often causes extra amounts of stress for our children with a DCC and their parents. We are already a few months in and you are probably recognizing things you liked and things you would have done differently to start out this school year.
The latest NODCC Newsletter has a wealth of information to help you navigate your child's educational journey.  Check it out here or at www.nodcc.org.
Here are some additional education links to help you:
Education Resources and Parent-Professional Packet
Telling Your Child, Sibling, and Classmates about DCC (Podcast)
Special Education and IEP's (Podcast)
High School Education Strategies (Podcast)
More podcasts available here
Angelina's Brilliant Idea
Angelina"Angelina may be missing part of her brain, but she has a brilliance that we all strive for - the ability to see her challenges as a way to benefit others!
For Angelina's thirteenth birthday, her grand entrance into teenager-hood, she wanted to do something a little different.  She and her mom decided to use this milestone as an opportunity to raise awareness about disorders of the corpus callosum (DCC) and raise funds for the NODCC.  On her party invitations, Angelina asked that people donate to the NODCC rather than give her gifts.   When asked how she felt about not receiving gifts at her own party, Angelina responded:
'It wasn't hard not to receive gifts because I wanted to give the money to other people like me, other people with ACC.  It made me so happy to send $503, I couldn't believe it was that much!'"
Read the entire story in our latest newsletter at www.nodcc.org. 
Thank you!
Thank you for all your support.  Please let us know if there are any ways that we can serve you better. 
 
The NODCC Staff

Save the Date!
Three Girls
The 8th Annual NODCC Conference will be in Santa Clara, CA this July 30-August 1, 2009
******
With amusement parks, wine country, and San Francisco all a short walk or drive, this is the perfect family vacation!

Email [email protected] for more details
Fundraising Corner
Use GoodShop for your holiday gifts
Buying holiday gifts online?  Use GoodShop to buy from all your favorite retailers (From Amazon to Old Navy to Williams Sonoma) and the NODCC gets up to 30% of your purchase!

Go to www.goodshop.com or email [email protected] for help with this or fundraising in your area
   GoodSearch: You Search...We Give!
Quick Links
More DCC Resources
DONATE
NODCC Mission
The NODCC exists to enhance the lives of those affected by a Disorder of the Corpus Callosum through education, advocacy, networking, and research.
Join Our Mailing List
GoodSearch: You Search...We Give!