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Weekly Update
December 26, 2012
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Greetings!
Talk about a let down, not only do I have Christmas behind me but also the newsletter. After weeks of being busy and overwhelmed with details I feel a little at loose ends with nothing pressing to do, don't get me wrong I'll take it! My to-do list is actually endless and it will be nice to cross a few things off it!
Hoping that everyone had a wonderful holiday and enjoyed being with family, it's always a mixed bag I know. As my son has grown it has been a challenge to find age appropriate gifts, but we hit it right this year and enjoyed being together yesterday, however I am really grateful to be "back to normal" today and back at my desk. I know that for many of you the week ahead will be stressful with kids at home lacking the usual structure. Tomorrows weather event may further complicate our vacation activities plans with the bus trip out to see the lights in Springfield. I will be taking my computer home with me tonight so that IF we get socked and have to cancel I will be able to post this on our website.
Speaking of the website, now that we've some time I'll be posting new pictures to the site, I asked a few weeks ago for pictures of your children and a few of you sent me some nice pictures, if you'd like to see your child on the website, send me a jpeg and complete the permission slip below & return to me.
The Center will close tomorrow at 12 noon, so that staff can celebrate the holidays together, we'll re-open at 2:30 PM, we're on vacation schedule here with no evening hours this week, but will resume regular hours after January 1st.
Kwanzaa begins tonight, given my children's history of wanting to capitalize on EVERY possible holiday this uniquely African -American holiday is one we investigated and learned about when my children were younger. The principles of Kwanzaa were designed to strengthen the black community, but those principles could well be applied to other communities, including our own. The seven principles are: Unity, self-determination, collective work and responsibility, cooperative economics, purpose, creativity, and faith. Think about the autism community and how these principles, if applied to all that we do would improve the lives of our children and our families. If you'd like to know more about Kwanzaa you can check it out on wikipedia. Here at HMEA we embrace diversity and I encourage you to do the same.
This is my last note for 2012, when I next write it will be 2013. It's been a pretty good year here at the Autism Resource Center, we had record breaking fundraising events under Kara White's tutelage, but we're already back to planning for 2013. Because we've also had record numbers of families call us for help, we aren't able to sit back and rest on our laurels, there is much more to do.
For many of our families, ARICA has meant having access to meaningful therapeutic programs that we see are making a great difference and kids are making great progress, this is truly exciting. But for families who do not have insurance coverage for therapies we need to redouble our efforts to provide them with as much as we can so that their children can flourish as well.
This will mean MORE fundraising. We've put together a FUNdraising activity for February 23rd, with the Worcester Sharks, when you buy tickets to attend this special night, you'll be helping the Center to raise the funds we need to meet the growing needs in our community.
It also means MORE political advocacy, we need to make our needs known on Beacon Hill. I'd LOVE to see a large contingent from Central Massachusetts at the State House on April 11th for AFAM's annual Autism Awareness and Acceptance Day at the State House. We'll also be holding a Meet your Legislator event here in Central Massachusetts on an evening before April 11th.
Finally it means we need MORE trainings for parents here at the Autism Resource Center where anyone can access what we provide. We will need your help, as we seek to address the needs of ALL children and adults on the spectrum. I hope I can count on you.
Happy New Year Everyone.
Sue
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Autism Resource Center Calendar
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You may register for events by clicking here
DECEMBER
December Vacation Family Fun Activities
December 27, 2012
Bus Trip to Bright Nights Display in Springfield
Leaves parking lot at The Manor Restaurant at 2:25 PM
CLOSED
December 28, 2012
Bowling & Pizza Party
Gardner Ten Pins
560 West Broadway
Gardner MA
10 AM
CLOSED
December 30, 2012
New Years Eve Eve Dinner Dance for Teens, Young Adults and Their Families
Manor Restaurant
6:30 PM
Reservations Required CLOSED ON DECEMBER 21ST
December 31, 2012
CENTER CLOSED
JANUARY
January 1, 2013
CENTER CLOSED
January 2, 2013 Support Group for Parents of Children on the Spectrum 7-9 PM
January 9, 2013 Asperger/ High Functioning Autism Support Group 7-9 PM
January 12, 2013 Sibshop THEME: Pajama Party Emanuel Lutheran Church 1200 John Fitch Highway, Fitchburg MA 10AM- 2 PM Cost: $10.00/child $15.00 family cap
January 14, 2013 Parent's Network Brunch 10 AM-12 Noon
Moms & Tots Group 4:30- 6 PM
January 16, 2013 Family Fun for Teens Pizza & Movie 6 PM
January 19, 2013 ANNIE An Autism Friendly Production Open Door Theater R J Grey Junior High School 17 Charter St Acton Ma 12 Noon Cost:$5.00 /family
January 21, 2013 CENTER CLOSED
January 23, 2013 Accessing Public Supports Workshop 7-9 PM
January 30, 2013 Social Group for older Teens (16 and older) and Young Adults Facilitated by Deb Gonzalez & Lori Lauria 7-9 PM ( limited to 12 participants)
Support Group for Parents of Teens and Young Adults Options for the Future: Adult Family Care and Shared Living
Presented by HMEA's David Placido
Director of Shared Living and Adult Family Care
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A VERY Belated Note of Thanks
or otherwise, Is our Face Red?
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National Junior Honor Society of Charlton Middle School
Sibling Lindsey Ljungberg and friends in the Honor Society, Emily Novack, and Jennifer Wade held a bake sale last spring and donated the proceeds to the Center , in honor of Lindsey's older brother Bobby. Our thanks to these wonderful girls, their parents can be proud, we apologize for the very belated acknowledgement, their effort was accidently rolled in to Walk files and unearthed this week .
To Lindsey, Emily and Jennifer our apologies and heartfelt thanks.
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PHOTO RELEASE
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AUTHORIZATION FOR CONSENT TO USE PHOTOGRAPH
I, _________________________________________________, the parent/ guardian of
___________________________________________________, agree to give consent for
his/ her/ my (please circle) photograph to be published by The Autism Resource Center of Central Massachusetts . I understand his/ her /my (please circle)
picture is being used for the following reason:
________Use on Website,_______________________________________________
___________________________________________________________________________.
I understand the photograph will not be used in any other way without my consent.
_________________________________________________________ ______________
Individual/Parent/Guardian Date
_________________________________________________________ ______________
Photographer Date
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Leadership Series from the Massachusetts Developmental Disabilities Council
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The Self-Advocacy Leadership Series is a FREE nine-week training sponsored by the Massachusetts Developmental Disabilities Council for people with intellectual and developmental disabilities interested in learning about leadership. Each class focuses on a different aspect of leadership increasing self-esteem and providing opportunities for students to meet new people and try something new. The series is scheduled to begin January 23, 2013 and will be held on Wednesday evenings from 6 p.m. -8 p.m. at Cambridge College, 1000 Massachusetts Ave., Cambridge, MA. Please forward this information to anyone you think might be interested.
We only have 12 places available for the class so please make sure you get your application in by the deadline which is January 8, 2013.
For more information and to request an application, please contact Lee Larriu, Training Coordinator at 617-770-7676 ext. 118.
To learn more about the Massachusetts Developmental Disabilities Council, please feel free to check out our web page
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Autism in the Media
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Simons Foundation for Autism Research Initiative
Top Ten autism Research Papers for 2012
2012 was an exciting year in Autism research. The Simons Foundation's list is astounding when you read of the advances all in one sitting. Take a look by clicking here
Chelation doesn't help kids with autism: study By Genevra Pittman
NEW YORK (Reuters Health) - Removing heavy metals from the body through a process traditionally used to treat mercury and lead poisoning doesn't help relieve autism symptoms, a new analysis suggests. read more
Resources for discussing the Sandy Hook Tragedy From Our Friends at CANDI
Following are some internet sites that provide guidance to families and care givers : 1. Restoring a Sense of Safety in the Aftermath of a Mass Shooting: Tips for Parents and Professionals
2. "Children and Grief/American Academy of Child and Adolescent Psychiatry". When a family member dies children react differently from adults.
3. Tips for Talking to Children about the Connecticut School Shooting by AACAP member, David Fassler, M.D.: .
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It's a FUNdraiser !
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We're hoping everyone will jump on board and purchase tickets to an evening out at the Worcester Sharks, which will benefit YOUR center. February 23, 2012 is Autism Resource Center Night at the Worcester Sharks. We've tickets at a discounted price which would make for an enjoyable evening this winter for your friends and family. The game will help cure the cabin fever we all suffer from by mid February and is appropriate for all ages!
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Social Skills Through Music and Movement
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Music and Movement with Janice Kenyon and Liz Johnson
Children's Room, Leominster Library 30 West Street , Leominster MA Children: preschool- Grade 3 children who are AUTISM DIVISION ELIGIBLE Dates and Time:January 10, 17, 24, 31, February 7, 14, 28, March 7 4:15 PM - 5:15 PM Fee: $40.00 Register on- line |
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Building Social Skills Through Legos
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We are pleased to bring back a program which was very successful 5 years ago when the Autism division first began to fund Social Skills Training for Autism Division Eligible Children.
This group is for children with Asperger Syndrome or High Functioning Autism who are verbal and are ages 11-14. The group will meet once a month, at the Autism Resource Center, from 4:30 PM - 6 PM followed by pizza and drinks 6 - 6:30 PM. The group will be facilitated by Deb Beauregard M.Ed. with Resource Center staff assisting. Utilizing LEGO (R) building sets the participants will learn to work cooperatively in a group setting while building the social skills of sharing, turn-taking, making eye contact, following social rules, using greetings and names and perspective taking.
Dates : January 9, February 6, March 6, April 3, May 1 and June 5th Fee: $30.00 Register on-line
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AFAM Newsletter and Autism License Plate
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Apply today for an Autism Speaks / Advocates for Autism Massachusetts Specialty License Plate!
A portion of every plate sold and renewed will go to Autism Speaks and Advocates for Autism Massachusetts!
Once we reach 3,000 paid applications the MA Registry of Motor Vehicles will then start the process of distributing our Autism Speaks / AFAM Specialty License Plate. Sign up today! To learn more or to get involved with the campaign, please email greaterboston@autismspeaks.org www.autismspeaks.org | www.afamaction.org
Click here to download an application
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Research Studies Seeking Participants
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The Lurie Center Expands Research Opportunities The Lurie Center of Massachusetts General Hospital, a Lexington based clinical care and research center of the Lurie Center for Autism, offers children and adults with autism spectrum disorders an opportunity to participate in clinical research that provides new and promising treatment options. For more information regarding current research at the Lurie Center please email LurieCenterResearch@partners.org, call (781) 860-1711, or visit the website: www.LurieCenter.org or research page.
Targeted Pharmacological Interventions for Autism: A Double-Blind, Placebo-Controlled Study of Atomoxetine in Children and Adolescents with Autism
The Massachusetts General Hospital for Children at the Lurie Center is conducting a research study for children and adolescents ages 5-15 who have autistic disorder, Asperger's disorder, or pervasive developmental disorder, not otherwise specified and who also have symptoms such as: overactivity, impulsivity, and/or inattention. The study involves a non-stimulant medication and clinic visits at no charge. If you would like to find out more about this research study at the Lurie Center, please contact us at (781) 860-1711 or LurieCenterResearch@partners.org. Institution - MGH - Massachusetts General Hospital, Boston, MA; Lurie Center, Lexington, MA. Principle Investigator: Christopher J McDougle, MD
Guanfacine and Methylphenidate in the Treatment of Hyperactivity in Children with Pervasive Developmental Disorder
The Massachusetts General Hospital for Children at the Lurie Center is conducting a Research Study for children 5-14 years old who have Pervasive Developmental Disorders (autism, Asperger' disorder, or PDD-NOS). If your 5-14 year old has autism, Asperger' disorder, or PDD-NOS, he or she may qualify for a research study involving study medication and clinic visits with a child psychiatrist and qualified research staff at no charge. The purpose of this study is to find out if the medication, extended release guanfacine, is helpful for the treatment of hyperactivity and impulsiveness in children. Participation requirements and risks involved in this study will be disclosed prior to study enrollment. If you are interested in participating or would like more information, please contact us at (781) 860-1700 or LurieCenterResearch@partners.org. Institution - MGH - Massachusetts General Hospital, Boston, MA; Lurie Center, Lexington, MA. Principle Investigator: Christopher J McDougle, MD
Pervasive Developmental Disorders Research Study
The Massachusetts General Hospital for Children at the Lurie Center is conducting a study designed to evaluate the effects of mirtazapine in children with Pervasive Developmental Disorders (PDDs). Participants must be children between the ages of 5 and 17 with autistic disorder, Asperger's disorder or PDD not otherwise specified, as well as difficulties with anxiety. Participants must have no significant medical illness and not have had a previous adequate trial of mirtazapine. Participants will receive study medication and all study related evaluations at no charge. For additional information about study requirements and study procedures, please contact Dr. Christopher McDougle's study staff at 781-860-1711 or LurieCenterResearch@partners.org.
UMass Medical School Child and Adolescent Neuro Development Initiative
Study Seeking Boys ages 13-17 with an IQ over 70 with ASD and Typically Developing Boys for a Study on Brain Imaging EXPANDING!
I received an update from Dr David Cochran at UMass in regard to this study and I am excited to share with you this update and that the Study is being expanded and so is in need of subjects as described above. From Dr Cochran
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The preliminary data for this study was presented at both the Autism Consortium meeting in Boston, and the American Academy of Child and Adolescent Psychiatry meeting in San Francisco. There was a great deal of enthusiasm about the findings of differences in glutamate and GABA systems (primary neurotransmitters in the brain) in the adolescents with autism spectrum disorders. This work has far-reaching implications, and is also being explored as potentially informing the development of new treatments for Autism Spectrum Disorders.
Given the impact of the preliminary data, we are extending the study to try to recruit a larger number of subjects, both in the Autism Spectrum Disorder group and the Typically Developing group. So we'd like to ask you again to get the word out that we are still recruiting, and would love to get more adolescent males (age 13-17) to help move this research forward. Feel free to pass along the excitement that has been generated by this study to date."
Participants will be compensated for time and travel
Please click here for a brochure and more information
Mass General Transcend Study
Visit our website for other studies seeking participants Research Studies
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CONFERENCES & WORKSHOPS
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______________________________________________________________________________ Community Autism ResourcesThe 18th Annual ASD SymposiumFor More information on registration click here This Years Schedule THURSDAY, MARCH 21 Paula Kluth, Ph.D.
Joyful Learning: Using Active and Collaborative Structures to Differentiate Instruction for Students with ASD & Related Disabilities Too often a "one-size-fits-all" approach is used to design lessons leaving some learners struggling to participate and leaving teachers feeling they have not reached all of their students. In this interactive session, participants will apply principles of differentiation by exploring a number of collaborative, active, and brain-compatible learning techniques aimed at engaging students and making learning joyful. This session is appropriate for educators in K-12 classrooms as well as parents and others working with children with disabilities and is structured for participants to experience these active techniques through demonstrations. Paula Kluth, Ph.D. is a consultant, teacher, author, advocate, and independent scholar who works with teachers and families to provide inclusive opportunities for students with disabilities and to create more responsive and engaging schooling experiences for all learners. Paula is a former special educator who has served as a classroom teacher and inclusion facilitator. Her professional interests include differentiating instruction and inclusive schooling. She is the author or co-author of nine books including; You're Going to Love this Kid: Teaching Students with Autism in Inclusive Classrooms and A Land We Can Share: Teaching Literacy to Students with Autism. Paula is also a director of a documentary film titles "We Thought You'd Never Ask": Voices of People with Autism.
FRIDAY, MARCH 22 Justin Canha, Person with Autism Maria Teresa Canha, Parent and Autism Advocate Nicole Turon-Diaz, M.A>, Ed.?SpEd., Learning By Design, LLC A Young Man with Autism's transition to Adult Life: How Talent, Perseverance, Advocacy and Training Carve the Path to Independence Justin Canha showed a passion for drawing early in his life. His parents were instrumental in giving him as many opportunities as possible to develop his talent and ability. He is now a renowned artist. His mother, Maria Teresa Canha has been advocating for him since his diagnosis at 31/2. Justin, now 22, in on the threshold of entering into the adult world and independence. NicoleTuron-Diaz, M.A, owns Learning By Design, LLC. She is a Certified College Coach for individuals with ASD and has been working with individuals on the spectrum for last decade. Lindsey Biel, M.A., OTR/L Sensory Smart Strategies for Students with ASD The sensory issues experienced by most people with ASD can make everyday function difficult and even painful. Lindsey will demystify these sensory issues and provide real-life techniques you can use immediately to make school and other environments more tolerable. She will share practical strategies for challenges such as oversensitivity to sound, touch, lighting and other sensory input plus simple environmental modifications and "sensory diet" activities that can help students stay tuned in all day long. Lindsey Biel, M.A., OTR/L is co-author of the award-winning Raising a Sensory Smart Child: The Definitive Handbook for Helping Your Child with Sensory Processing Issues, foreword by temple Grandin. She is an occupational therapist based in NYC where she evaluates and treats children and adolescents with sensory processing issues, autism spectrum disorders, and other challenges. Please visit www.sensorysmarts.com |
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The Autism Resource Center does not endorse any treatments, programs or products. Articles, announcements and resources are provided for information purposes only.
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