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Register Now for the 5K
NEW: You can give a gift of registration for someone who can't afford to register!
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The Spice of Lupus Campaign
We all know spices are the key to marrying proper nutrition with great taste - which is especially important for lupus patients. So LFNC has launched a partnership with Ground2Table - an organic spice seller built on the idea of no waste for the month of May. 50% of your purchase price from G2T will be donated to the LFNC when you use the promo code "LFNC" at checkout! Learn more and start shopping here!
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LFNC's Mid-Year Online Auction is LIVE: Bid and Win While Helping Fund Lupus Programs
This is LFNC's first mid-year auction, but that doesn't mean we are novices at this. The mid-year auction has items ranging from the lupus pin to a hot air balloon ride, from movie tickets to VIP access to Hollywood and everything in between. The auction kicked off on Wednesday, April 15, and you can view it here.
While you are deciding on what to bid on, keep in mind that the proceeds from these sales will go directly to funding LFNC's programs focused on the northern California lupus community.
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Annual Charity Car Drawing
Now that the early birds have flown, the race is on for the brand new 2015 Mercedes. You can support a great cause and have a chance to drive away in style! All instructions to enter and purchase tickets are available here. Tickets may not be purchased online. Each ticket is $75, or you may purchase 3 tickets for $200 or 5 for $300. The drawing will be Sunday, June 14 on the site of our 5K.
Don't wait, enter now! If you have any questions or wish to enter by phone, please feel free to call us at 408-954-8600.
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Be Part of the Largest Ever Genetic Study on Lupus
Is lupus hereditary? What are its genetic components, if any? These questions have fascinated patients and scientists alike. We now know that while there are genetic predispositions to lupus, no single genetic factor probably causes it without to help of environmental factors. But just what can be done to precisely identify those genetic markers that make one prone to the disease? How does having lupus affect genetics? Can individual genetics affect how a patient responds to drugs and treatment?
23andMe, a leading genetic research firm has teamed up with Pfizer to find the answers to questions just like these. Of the study, says 23andMe:
We want to find a better way to treat lupus through genetics. By partnering with Pfizer (a pharmaceutical company developing drugs to treat lupus) on this study, we will work together to learn how your genes and your environment could play role in lupus drug treatment, and how they relate to lupus risk and progression. This will be the single largest genetics study of lupus anywhere in the world.
Lupus patients are almost universally eligible to participate in this study, but it is limited to 5,000 participants. 23andMe will send a DNA kit to participants at no cost, as well as the needed medical record and privacy paperwork. Patients who partake are eligible for up to $50 in compensation. For more information and to participate, please click here.
The Lupus Research Institute and members of its national coalition, including LFNC, are proud to support this important initiative and will work with our patient groups for inclusion in this study.
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Have You Registered for Our Conference Yet?
LFNC's lupus mini-conferences are a unique opportunity for the northern California lupus community. They provide in-depth coverage of topics related to lupus, detailed research and treatment updates, and the chance to communicate with top professionals in the field. Keenly designed to fit the needs of both patients and medical professionals, we are certified by the state's nursing board to grant continuing education credits to California Registered Nurses.
LFNC Semi-Annual Mini-Conference:
Saturday, May 23, 2015
11 am to 4 pm
Kaiser Santa Clara
The LFNC is proud to present the 2015 Spring Lupus Mini-Conference with the theme of integrative health. Dr. Barry Shibuya and Dr. Christine Elias of the Northern California Rheumatology Society will headline the conference. Key facts and research updates on lupus and how they tie into an integrative, scientific approach to lupus treatment will be the focus of the conference.
Dr. Laura Stuve, PhD, a molecular biologist and Momo Yasutake of BodyTalk will expand on the integrative health approach to immune functions of the body and share patient experiences.
Designed for patients, families and medical professionals alike, the LFNC offers CEU credits to California Registered Nurses attending the conference. Please indicate during registration if you wish to attend for credit.
Registration fees: $50 for credit attendees, $30 for non-credit attendees. Current LFNC members receive a $10 discount on either registration. No one will be turned away for inability to pay.
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Beta Sigma Phi Sisters Come Through for LFNC, Again with a Donation of $38,735
Top: California State BSP Convention Hall. Below: LFNC Executive Director Rene Astudillo (middle) and Board members Kirsten Gee Maeda and Deidre Gee Baptista pose for a photo with our theme: Drumbeat for a Lupus Cure.
The Beta Sigma Phi sorority has taken up lupus as one of the causes it has supported over the long term, and the LFNC has been tremendously grateful for their support. At their state convention in Irvine, CA this weekend, the sisters at BSP came through for LFNC again with a donation of $38,735. The funds will help us fund key research priorities and critical patient-oriented programs, and all of us at LFNC are proud to call the BSP family. |
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