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Register Now for the 5K
NEW: You can give a gift of registration for someone who can't afford to register!
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LFNC's Mid-Year Online Auction is LIVE: Bid and Win While Helping Fund Lupus Programs
This is LFNC's first mid-year auction, but that doesn't mean we are novices at this. The mid-year auction has items ranging from the lupus pin to a hot air balloon ride, from movie tickets to VIP access to Hollywood and everything in between. The auction kicked off on Wednesday, April 15, and you can view it here.
While you are deciding on what to bid on, keep in mind that the proceeds from these sales will go directly to funding LFNC's programs focused on the northern California lupus community.
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Annual Charity Car Drawing
Now that the early birds have flown, the race is on for the brand new 2015 Mercedes. You can support a great cause and have a chance to drive away in style! All instructions to enter and purchase tickets are available here. Tickets may not be purchased online. Each ticket is $75, or you may purchase 3 tickets for $200 or 5 for $300. The drawing will be Sunday, June 14 on the site of our 5K.
Don't wait, enter now! If you have any questions or wish to enter by phone, please feel free to call us at 408-954-8600.
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LFNC is an active partner in
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Connect with us on
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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LFNC Urges Immediate Patient Access to Treatments, Calls for End to "Fail First"
At its April meeting, members of the Board of Directors of the LFNC unanimously approved a statement of policy calling for an end to "fail first" treatment requirements often imposed by insurance plans and urged for no-red-tape patient access to FDA-approved treatments.
What is "fail first"? Some insurance plans refuse to pay for treatments or medications doctors think are necessary for a patient simply because they consider it too expensive. Instead, they require the patient to try up to 5 less expensive treatments and only when those fail will they approve treatment the patient needs.
Not only do these policies unduly interfere with the doctor-patient relationship, they often delay critical and necessary treatments for patients who can least afford to wait.
The LFNC has joined forces with patient advocates throughout California in support of AB 374, a bill introduced by California State Assemblymember Adrian Nazarian that would stop the application of the "fail first" policies to patients whose physicians determine that it's medically inappropriate.
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May is Lupus Awareness Month: How LFNC is Working in the Community
In just a few days, we will enter May, Lupus Awareness Month. This May, the LFNC is working in the community with activities ranging from education for patients to familiarizing the youngest members of our community with lupus. Some highlights on our May activities:
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Spring Patient Education Class at LFNC - for newly-diagnosed lupus patients and their family members. Register here.
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Assembly at Del Roble Elementary School to Launch Student Projects on Lupus - Del Roble Elementary has chosen lupus as the topic for student's community learning this year. LFNC is joining with Del Roble to develop student project goals and will discuss them at a student assembly. Students will also hear from their peers about lupus.
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LFNC at Rotary Club of Pacifica - LFNC has been invited to present before members of the Rotary Club of Pacifica as part of the commemoration of Lupus Awareness Month.
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LFNC at Beta Sigma Phi State Convention - LFNC has been invited to present before members of Beta Sigma Phi during their annual state convention to be held this year in Irvine.
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Spring Mini-Conference - LFNC's semi-annual mini conference featuring updates on lupus research, treatment and other lupus-related issues, to be held at the Santa Clara Kaiser Medical Center. Registration is now open. CEU credits for CA Registered nurses. Sign up here.
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Meet LFNC's New Class of Patient Instructors
Our patient education classes are among the most important of LFNC's programs. These classes help newly diagnosed and other patients understand the disease in their own terms, learn how to cope with it in their daily lives, and how to best use their medical care and support teams to live with lupus. We are proud to announce that this past weekend we concluded the training of six new patient education instructors - all volunteers from our community - with standardized material approved by the American College of Rheumatology. Our new educators are pictured above.
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