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LFNC News
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LFNC Announces 37th Anniversary Gala and the 2nd Purple Ribbon Awards
You are cordially invited to:
37th Anniversary Gala and the 2nd Purple Ribbon Awards
celebrating:
37 Years of Service and
Honoring Outstanding Contributions to the Lupus Community
Saturday, January 24, 2015
Hilton San Jose
300 Almaden Boulevard
San Jose, CA 95110
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It was Colleen and Joe Brown this year. Will it be you next year?
Check out Colleen Brown, Joe, and daughter Kira picking up their brand new Mercedes!
Colleen and Joe have supported the Lupus Foundation for the past 15 years.
Do you want to join the Browns in the list of our winners? Because we know you do, we have opened up next year's drawing early, and you can already buy tickets!
The tickets are only $75, but you can get three (3) for $200 and five (5) for $300. Buy early, and you will be eligible for two incredible early bird prizes - a shopping spree and a cruise - in addition to the 2015 Mercedes!
To buy your tickets, fill out the form, or call the office at 408-954-8600. And keep your lucky charm bracelet handy!
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Connect with us on
via "Lupus Online"
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LFNC offices will be closed on Thursday, November 27 and Friday, November 28 in observance of Thanksgiving.
You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Will the FDA Listen to the Lupus Community? It's up to You!
The Food and Drug Administration is about to embark on a project to get patients' take on chronic illnesses, and lupus is not (yet) on the list! But you can change that. The following is an appeal LFNC is actively joining as part of the Lupus Research Institute National Coalition.
The FDA is currently inviting public comment on what disease areas it should include in public meetings to be held in the next couple of years. So let's get lupus included!
We're urging everyone to write to the FDA about why lupus must be included.
Please hurry; you need to respond by December 5.
What You Need To Do (click here for sample letter):
- Use the outline below as a guideline to write your own letter, in your own words.
- The FDA is using four criteria to determine what conditions it will hold meetings about. In your letter, please describe your own situation or that of a loved one to illustrate how lupus meets the following criteria:
- Disease areas that are chronic, symptomatic, or affect functioning and activities of daily living;
- Disease areas for which aspects of the disease are not formally captured in clinical trials;
- Disease areas for which there are currently no therapies or very few therapies, or the available therapies do not directly affect how a patient feels, functions, or survives; and
- Disease areas that have a severe impact on identifiable subpopulations (such as children or the elderly).
- Must include that you are responding to Docket No. FDA-2012-N-0967.
- Submit electronically using this link. Or, mail your letter to: Division of Dockets Management (HFA- 305), Food and Drug Administration, 5630 Fishers Lane, Rm. 1061, Rockville, MD 20852
Once again, a sample letter is available here. Please let us know that you have contacted the FDA by replying to this email.
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LFNC Hosts Volunteer Appreciation Day
If you have followed the LFNC for any amount of time, you know that our volunteers are mission critical. We pride ourselves on being a small organization that makes a big difference, and without the dedication of our volunteers, we could never make that claim. Last week, the LFNC hosted our annual thanksgiving potluck and volunteer appreciation.
For every volunteer in the photo and everyone who isn't - whether you volunteer to run a support group or volunteer at events or at the office, please know how much you mean to us. |
Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
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Editor: Spandan Chakrabarti
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