October 20, 2014
LFNC Announces 37th Anniversary Gala and the 2nd Purple Ribbon Awards


You are cordially invited to:

37th Anniversary Gala and the 2nd Purple Ribbon Awards

celebrating:

37 Years of Service and
Honoring Outstanding Contributions to the Lupus Community

Saturday, January 24, 2015
Hilton San Jose
300 Almaden Boulevard
San Jose, CA 95110

Tickets and information available on our website.

LFNC News
 
PAID USABILITY STUDY FOR LUPUS PATIENTS
 
InterfaceAnalysis is conducting a drug delivery systems usability study among SLE patients and nurses. Participants will receive $140 for their time between Oct 22 and Nov 4. See this flyer for more.
 
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DROP YOUR PIN ON THE WOLD LUPUS GOOGLE MAP
 
 
 
Find out how to put yourself on the map!
 
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In the Black: Read LFNC's Annual Report for FY 2014, highlighting a financial comeback, new programs, and low administrative overhead.

It was Colleen and Joe Brown this year. Will it be you next year?

Check out Colleen Brown, Joe, and daughter Kira picking up their brand new Mercedes!


 
Colleen and Joe have supported the Lupus Foundation for the past 15 years.

Do you want to join the Browns in the list of our winners? Because we know you do, we have opened up next year's drawing early, and you can already buy tickets!
 
 
The tickets are only $75, but you can get three (3) for $200 and five (5) for $300. Buy early, and you will be eligible for two incredible early bird prizes - a shopping spree and a cruise - in addition to the 2015 Mercedes!
 
To buy your tickets, fill out the form, or call the office at 408-954-8600. And keep your lucky charm bracelet handy!

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Lupus Research and Treatment Update
 Coming on November 10 - Are You Registered Yet?  
LFNC's Lupus Mini-conferences are a place for patient, professionals and others interested to come together and learn about the latest in lupus research and treatment. Our Fall Lupus Mini-Conference will be held on Monday, November 10, 9:30 am to 2:30 pm. If you haven't registered yet, please do so now (see below). The medical conference will be hosted at the UC Davis Medical Center Sacramento, and headlined by Dr. Nancy E. Lane of the UCDMC. Dr. Lane is a renowned expert in the fields of both osteoporosis and osteoarthritis. She is an Endowed Professor of Medicine, Rheumatology, and Aging Research, Director for the Center for Musculoskeletal Health, Director of the K12 NIH Building Interdisciplinary Research Careers in Women's Health (BIRCWH), and Principal Investigator of the NIH funded Program on Sex Differences in Musculoskeletal Diseases Across the Lifespan at the University of California at Davis School of Medicine.

In addition to Dr. Lane, Kandice Stellmon, a certified nutrition consultant will address the conference on the importance of a proper diet as it relates to lupus and bone health.

Details:

What: Fall Lupus Mini-Conference
Where: UC Davis Medical Center, Center for Health and Technology, Conference Room #1341LH. 4610 X St, Sacramento, CA 95817.
When: Monday, November 10, 2014 from 9:30 am - 2:30 pm.

Registration: LFNC's conferences are certified by the State of California for 5 CEUs for California registered nurses, but the conference is open to all. Here are the registration fees: $50 for CEU attendees, $30 for non-credit attendees. Current LFNC members get a $10 discount. Refreshments are served, and no one is turned away for inability to pay. FREE parking is available. Please visit this form to register. If you wish to register offline, please download and complete this form and return it to LFNC offices.
NIH Awards $18 Million to Stanford Scientists to Accelerate Research on Lupus, Rheumatoid Arthritis
The Accelerating Medicines Partnership is a one-of-a-kind effort by the NIH, multiple biopharmaceutical companies and several non-profits to identify biologic targets of autoimmune disease - most prominently Lupus and Rheumatoid Arthritis - in order to accelerate the development of new treatments.

As part of this effort, the NIH has now awarded two groups of Stanford scientists grants totaling $18 million.

The National Institutes of Health has awarded two groups of Stanford scientists grants that could exceed $18 million to help speed up research on arthritis and lupus.

 

The NIH is funding a total of 11 research groups nationwide to establish the Accelerating Medicines Partnership in Rheumatoid Arthritis and Lupus Network. NIH director Francis Collins, MD, PhD, who initiated the five-year, $41.6 million program, described the network as "the first phase of an unprecedented approach to identify pathways that are critical to disease progression in rheumatoid arthritis and lupus."


Read more about the grant here. The LFNC welcomes the NIH's stewardship in accelerating lupus research and congratulates the Stanford scientists who received this grant to make a difference in our community.

 

Medicine Focus: BENLYSTA Educational Program


In 2011, BENLYSTA became the first medication approved by the FDA for lupus in 50 years. It is used to treat individuals with active systemic lupus.

GSK, the maker of BENLYSTA is hosting a live educational program for BENLYSTA for patients, medical professionals and others concerned. Details are below:

Educator: Hilary Spyers-Duran, Clinical Nurse Educator

Tuesday, October 21, 2014, at 6:00 pm
Oakland Marriott
City Center
1001 Broadway
Oakland, CA 94607

More information is available here.
 
Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.   
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Editor: Spandan Chakrabarti
LFNC is an active partner in 

2010 Mercedes