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WE NEED YOUR HELP!
 In the last three years, LFNC has been honored with the GreatNonprofits Top-Rated Award, based on feedback from clients, volunteers and supporters who gave favorable reviews regarding their experience with the organization.
We are again hoping for the Award for 2014. Being named to this small circle of outstanding nonprofits helps create more exposure for LFNC and generates funding and support from foundations and other philanthropic organizations.
Please help us achieve this honor again this year by answering a few questions on the review site for LFNC. Clicking HERE will take you to the review site. It just takes a few minutes. We thank you in advance!
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LFNC News
DROP YOUR PIN ON THE WOLD LUPUS GOOGLE MAP
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The Summer NewSLEtter is Here!
The Summer 2014 issue, headlined "The Heart of Lupus", features articles ranging in subject from cardiovascular disease in lupus to exciting new lupus drug trials to a detailed discussion of the immune system and updates on LFNC's activities.
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It was Colleen and Joe Brown this year. Will it be you next year?
Check out Colleen Brown, Joe, and daughter Kira picking up their brand new Mercedes!
Colleen and Joe have supported the Lupus Foundation for the past 15 years.
Do you want to join the Browns in the list of our winners? Because we know you do, we have opened up next year's drawing early, and you can already buy tickets!
The tickets are only $75, but you can get three (3) for $200 and five (5) for $300. Buy early, and you will be eligible for two incredible early bird prizes - a shopping spree and a cruise - in addition to the 2015 Mercedes!
To buy your tickets, fill out the form, or call the office at 408-954-8600. And keep your lucky charm bracelet handy!
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Connect with us on
via "Lupus Online"
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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One Girl's Case Brightens Hope for Finding Genetic Origin of Lupus
For some time now, scientists have known that there is at least a genetic component to lupus - or perhaps to be more accurate, genetic components to lupus. But the question of exactly what those components are have eluded researchers.
Some researchers in Australia took a different path. Rather than trying to identify common genetic factors in a large number of patients, they focused on one 10-year-old girl with lupus, and last week they announced that they have found that genetic factor - for this particular patient.
Scientists from the Australian National University (ANU) have been able to identify the genetic cause of lupus in a specific individual for the first time.
ANU lead researcher, Dr Julia Ellyard, said scientists have used personalised medicine to identify the cause of the autoimmune disease in a 10-year-old girl. [...]
"Using DNA sequencing, the approach we've taken, we've been able to identify the specific cause of this child's disease," Dr Ellyard told 666 ABC Canberra.
"[It is an] increased amount of a particular molecule, called interferon-alpha, being produced."
Though this is one specific case, Dr. Ellyard pointed out that treatments for lupus triggered by that specific factor are already in clinical trials.
"We're hoping that now this girl can have specialised treatment using anti-interferon therapies, which are currently in clinical trials," she said.
"Now we are able to tailor treatment for her disease."
Rather than one or one set of umbrella genetic factors, individual lupus patients with specific types of lupus may well have specified genetic factors triggering their disease. This case seems to indicate that, and if true, it opens the door to individualized genetic factor targeting for lupus patients and thus more specific treatments.
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Lupus UK Gets on Nephritis' Case
This week just seems to be dedicated to international lupus research and organizations. Just as Australian researchers look to open up a new horizon in lupus treatment through individual genetic targeting and treatment, Lupus UK has published a timely informational booklet for lupus of the kidney, or Lupus Nephritis. The booklet describes the functions of the kidney, the nature of lupus in general and Lupus Nephritis specifically, as well as its diagnosis and treatment.
Lupus UK also discusses best practices such as keeping blood pressure under control, staying on a healthy and balanced diet, and preventing infections.
The LFNC thanks Lupus UK for the publication of this booklet, and encourages our readers to review the entire publication. As always, the best treatment and lifestyle decisions are made in consultation with your physician and medical care team.
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
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Editor: Spandan Chakrabarti
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