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LFNC News
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SUMMER LUPUS MINI-CONFERENCE
Registration for the Summer Lupus mini-conference, headlined by Dr. Maria Dall'Era is now open. Please visit our website for details and to register.
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(LFNC subchapters and support groups are encouraged to let us know of your scheduled meetings and activities. Please email:
communications@lfnc.org)
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
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Editor: Spandan Chakrabarti
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For patients in remission, stopping immunosuppressants may be possible
 It has long been conventional wisdom that lupus patients have to be on constant or increasing dosages of immunosuppressants for the rest of their lives. That conventional wisdom may be about to change.
A new study presented at the European League Against Rheumatism Annual Congress (EULAR 2014) showed that, for the majority of lupus patients who are in remission, it is possible to successfully stop immunosuppressant therapy without triggering a flare of their disease. Within two years, it was possible to stop the immunosuppressant in about 70% of clinically stable patients. Half were successful within three years, and this proportion remained stable for up to five years.
Dr. Zahi Touma, lead author of the study, expressed optimism that this study may provide the best guideline yet on how, when, and whether to stop immunosuppressants for lupus patients who are in stable condition. The study also noted that patients who taper off the use of immunosuppressants over a longer period of time are at a lower risk of flare-ups than those who taper off faster.
As always, please consult your team of caregivers, including your rheumatologist, about your specific treatment, and always follow your doctor's advice.
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It was Colleen and Joe Brown this year. Will it be you next year?
When she got the call, Colleen Brown was ecstatic about winning the grand prize in this year's Mercedes drawing. Colleen, who recalls purchasing her tickets at the 5K only after getting on the phone with her husband Joe, recounts almost losing her lucky charm bracelet (a gift from her sister) at the event, until a volunteer at the event found and returned it to her. Needless to say, she felt lucky. And not for no reason, either! Check out Colleen, Joe, and daughter Kira picking up their brand new Mercedes just last week!
Colleen and Joe have supported the Lupus Foundation for the past 15 years.
Do you want to join the Browns in the list of our winners? Because we know you do, we have opened up next year's drawing early, and you can already buy tickets!
The tickets are only $75, but you can get three (3) for $200 and five (5) for $300. Buy early, and you will be eligible for two incredible early bird prizes - a shopping spree and a cruise - in addition to the 2015 Mercedes!
To buy your tickets, fill out the form, or call the office at 408-954-8600. And keep your lucky charm bracelet handy!
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Summer Lupus Mini-Conference to answer more of your questions
 | | Dr. Dall'Era speaks at an previous LFNC conference |
Got questions about things like your or a loved one's risk factors of stroke or other lupus related concerns? There is no better place to ask and have those questions answered than at one of our semi-annual medical conferences, designed for patients and professionals alike. We have just such a conference coming up on July 12!
Licensed by the State of California to grant 5 CEU credits to attending California Registered Nurses, the conference will be headlined by Dr. Maria Dall'Era of UCSF, who is considered one of the country's foremost experts in lupus.
Please come and join us on Saturday, July 12 in our first conference north of the Golden Gate Bridge. Details below:
Saturday, 7/12/14, 11 am to 4 pm
Marin Nonprofit Resource Center
555 Northgate Drive
San Rafael, CA 94903-3611
Please visit this page for registration and information. If you have any questions, please call us at 408-954-8600.
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