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LFNC News
VOTING WILL START SOON! Who will be our 2014 Mascot for the 5K Run and Walk for Lupus?
There is still time to enter your furry best friend in this friendly competition to help raise funds for lupus.
Email US for details!
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MAY IS LUPUS AWARENESS MONTH!
Find out what the LFNC is doing to raise lupus awareness this month and how you can become involved. Click here.
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Date and Time: Tuesday, May 13 - 6:30 - 8:00 pm Location: Sutter General Hospital Cancer Center/Buhler Building 7th floor, Buhler Boardroom 717 - 2800 L Street (Across the street from the main hospital) Sacramento, CA 95816 Contact: Shauntay L. Davis, MPH, 916-893-9554, shauntayd@hotmail.com
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SUPPORT GROUP LEADERSHIP SUMMIT
LFNC will be hosting a leadership training summit with support group leaders from all across Northern California on May 14 in Sacramento. The training will encompass a leadership conversation about how LFNC can better support our volunteer subchapters, legislative training and a seminar on using technology. LFNC thanks the Henry L. Guenther Foundation and GlaxoSmithKline for the grants to make this summit possible.
(LFNC subchapters and support groups are encouraged to let us know of your scheduled meetings and activities. Please email: communications@lfnc.org)
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Car Giveaway - Two Winners and Counting
LFNC congratulates the winner of our second early bird drawing, Felicity Goldsby of Santa Rosa. She won a $500 shopping spree! Jean Kesgomol of Henderson, NV won the first early bird drawing of a 7-day Holland America cruise.
And you can still win the the grand prize, a 2014 Mercedes-Benz! Buy your tickets today - the more tickets you buy, the greater your chances!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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THANK YOU, BETA SIGMA PHI! At its annual California state convention held last weekend in Monterey, the eight councils and Beta Sigma Phi International contributed $36,491 to LFNC for patient services and research. Since 1985, Beta Sigma Phi has contributed almost $800,000 to lupus.
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New Treatment for Lupus Nephritis Studied in University of Houston
A biomedical research team at the University of Houston led by Dr. Chandra Mohan is looking into the effectiveness of a new therapy already in clinical trials for other kidney diseases in trating lupus nephritis, or lupus of the kidney. Kidney disease in lupus is the leading cause of lupus related deaths, and traditionally, kidney disease in lupus has been treated with steroids. Dr. Mohan and his team hopes to find in the new treatment a way to target B1 receptors and keep them from attaching to an enzyme which allows it to attack the kidney.
The study is funded by a novel research grant from the Alliance for Lupus Research, and is part of the initiative announced by LRI President Margaret Dowd at LFNC's January gala. The initiative is targeting existing or proven-efficacy therapies for other diseases for approval for treatment of lupus, where appropriate.
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The 20th Annual 5K: Have You Signed Up Yet?
20th ANNUAL 5K RUN & WALK FOR LUPUS
Northern California's largest lupus awareness event. Come join us - compete, or just have fun. Form a team, raise money, and enjoy a beautiful day with your fellow lupus travelers - patients, families, and the community! Prizes will be awarded for top runners, top fundraisers and largest and top fundraising teams.
Whether you run or walk, in a team or by yourself, for the medal or just for fun, you are guaranteed to have a great time thanks to cheering supporters, great food and local entertainment talent.
Sunday, June 8, 2014. Start Time: 9:00 am.West Valley College14000 Fruitvale Avenue, Saratoga Course is USATF certified. REGISTRATION IS OPEN!Register online or download the registration form. Fee: $30 pre-registration, $40 after June 6.
Proceeds will help create greater lupus awareness, provide support services for lupus patients and their families, and encourage external lupus research efforts. Bring your family and friends for a fun day, and for a good cause!
See details here.
We thank the following sponsors for making this event possible:
  Media Sponsor:  |
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Announcing: July 10 Lupus Conference to be Headlined by Dr. Maria Dall'Era, Hosted in Marin
LFNC's upcoming medical conference will be hosted in Marin County, and headlined by Dr. Maria Dall'Era. Dr. Dall'Era, who has headlined a previous conference, is considered one of the country's foremost experts on lupus. Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP).
Our July conference will be hosted in Marin, as LFNC continues our commitment to serve all of northern California. Other than Santa Clara county, we have previously brought the conference to San Francisco, Fremont, Redwood City and Oakland. The July conference will be the first to be held north of the Golden Gate Bridge.
More details will soon follow. |
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