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LFNC News
MAY IS LUPUS AWARENESS MONTH!
Look for a special email in your inbox this week describing our important activities for May 2014.
Date and Time: Tuesday, May 13 - 6:30 - 8:00 pm Location: Sutter General Hospital Cancer Center/Buhler Building 7th floor, Buhler Boardroom 717 - 2800 L Street (Across the street from the main hospital) Sacramento, CA 95816 Contact: Shauntay L. Davis, MPH, 916-893-9554, shauntayd@hotmail.com
SUPPORT GROUP LEADERSHIP SUMMIT LFNC will be hosting a leadership training summit with support group leaders from all across Northern California on May 14 in Sacramento. The training will encompass a leadership conversation about how LFNC can better support our volunteer subchapters, legislative training and a seminar on using technology. LFNC thanks the Henry L. Guenther Foundation and GlaxoSmithKline for the grants to make this summit possible.
(LFNC subchapters and support groups are encouraged to let us know of your scheduled meetings and activities. Please email: communications@lfnc.org)
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Car Giveaway - Two Winners and Counting
LFNC congratulates the winner of our second early bird drawing, Felicity Goldsby of Santa Rosa. She won a $500 shopping spree! Jean Kesgomol of Henderson, NV won the first early bird drawing of a 7-day Holland America cruise.
And you can still win the the grand prize, a 2014 Mercedes-Benz! Buy your tickets today - the more tickets you buy, the greater your chances!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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African American Women with Lupus At Higher Risk for Adverse Pregnancy Outcomes
New research indicates that African American women with lupus are at a higher risk for a adverse pregnancy outcomes than other lupus patients. The risk extends to pre-diagnosis patients as well.
Adverse outcomes occurred in 51.7% of pregnancies among African-American women with confirmed systemic lupus erythematosus (SLE) and in 34.4% of pregnancies among women who subsequently were diagnosed, compared with 19.1% of pregnancies among controls, according to Diane L. Kamen, MD, and colleagues from the Medical University of South Carolina in Charleston.
The specific findings include:
- Pregnancies before lupus diagnosis (among eventual lupus patients) have twice the rate of adverse outcomes, with risks rising further after diagnosis.
- Specific outcomes with increased risk after SLE diagnosis included low birth weight, preterm birth, and spontaneous abortion.
This new retrospective study, combined with the fact that women of color - especially African Americans - are more prone to lupus than their European counterparts makes it all the more important that patients consult with their physicians prior to, during, and after pregnancy to determine their individual risks and care for themselves and their newborn. While pregnancy with lupus in general remains considered safe by the medical community, studies like these stress the importance of an abundance of caution.
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The 20th Annual 5K: Have You Signed Up Yet?
20th ANNUAL 5K RUN & WALK FOR LUPUS
Northern California's largest lupus awareness event. Come join us - compete, or just have fun. Form a team, raise money, and enjoy a beautiful day with your fellow lupus travelers - patients, families, and the community! Prizes will be awarded for top runners, top fundraisers and largest and top fundraising teams.
Whether you run or walk, in a team or by yourself, for the medal or just for fun, you are guaranteed to have a great time thanks to cheering supporters, great food and local entertainment talent.
Sunday, June 8, 2014. Start Time: 9:00 am.West Valley College14000 Fruitvale Avenue, Saratoga Course is USATF certified. REGISTRATION IS OPEN!Register online or download the registration form. Fee: $30 pre-registration, $40 after June 6.
Proceeds will help create greater lupus awareness, provide support services for lupus patients and their families, and encourage external lupus research efforts. Bring your family and friends for a fun day, and for a good cause!
See details here.
We thank the following sponsors for making this event possible:
  Media Sponsor:  |
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Announcing: July 10 Lupus Conference to be Headlined by Dr. Maria Dall'Era, Hosted in Marin
LFNC's upcoming medical conference will be hosted in Marin County, and headlined by Dr. Maria Dall'Era. Dr. Dall'Era, who has headlined a previous conference, is considered one of the country's foremost experts on lupus. Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP).
Our July conference will be hosted in Marin, as LFNC continues our commitment to serve all of northern California. Other than Santa Clara county, we have previously brought the conference to San Francisco, Fremont, Redwood City and Oakland. The July conference will be the first to be held north of the Golden Gate Bridge.
More details will soon follow. |
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