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LFNC News
Date and Time: Saturday, April 19, 10 am - 12 noon.
Location: 30 San Pedro Road, San Rafael, CA.
Contact: Marilyn Wedner. 415-383-1920 or 415-225-1486. E-mail: mwedner@att.net.
Date and Time: Tuesday, May 13 - 6:30 - 8:00 pm Location: Sutter General Hospital Cancer Center/Buhler Building 7th floor, Buhler Boardroom 717 - 2800 L Street (Across the street from the main hospital) Sacramento, CA 95816 Contact: Shauntay L. Davis, MPH, 916-893-9554, shauntayd@hotmail.com
SUPPORT GROUP LEADERSHIP SUMMIT LFNC will be hosting a leadership training summit with support group leaders from all across Northern California on May 14 in Sacramento. The training will encompass a leadership conversation about how LFNC can better support our volunteer subchapters, legislative training and a seminar on using technology. LFNC thanks the Henry L. Guenther Foundation and GlaxoSmithKline for the grants to make this summit possible.
(LFNC subchapters and support groups are encouraged to let us know of your scheduled meetings and activities. Please email: communications@lfnc.org)
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Car Giveaway - Two Winners and Counting
LFNC congratulates the winner of our second early bird drawing, Felicity Goldsby of Santa Rosa. She won a $500 shopping spree! Jean Kesgomol of Henderson, NV won the first early bird drawing of a 7-day Holland America cruise.
And you can still win the the grand prize, a 2014 Mercedes-Benz! Buy your tickets today - the more tickets you buy, the greater your chances!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
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You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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Chinese Researchers Find Stem Cells a Promising Treatment for Lupus
A study spearheaded by Lingyun Sun, MD, of Nanjing University Medical School in China has found that lupus patients who have high disease activity despite being aggressively treated by traditional methods respond well to mesenchymal stem cell transplantation. In the study, 60% of patients had a major or partial clinical response, 81% were able to reduce steroid treatment, and 54% reduced intake of immunosuppressants. The survival rate was 92.5% for a group of patients whose average disease duration at the time of the study was 7.5 years.
"Mesenchymal stem cells are multipotent, nonhematopoietic progenitor cells that are being explored as a promising new treatment for tissue regeneration. Although their immunomodulatory properties are not yet completely understood, their low immunogenic potential, together with their effects on immune responses, make them a promising therapeutic tool for severe and refractory autoimmune diseases," Sun and colleagues stated.
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The 20th Annual 5K: Have You Signed Up Yet?
20th ANNUAL 5K RUN & WALK FOR LUPUS
Northern California's largest lupus awareness event. Come join us - compete, or just have fun. Form a team, raise money, and enjoy a beautiful day with your fellow lupus travelers - patients, families, and the community! Prizes will be awarded for top runners, top fundraisers and largest and top fundraising teams.
Whether you run or walk, in a team or by yourself, for the medal or just for fun, you are guaranteed to have a great time thanks to cheering supporters, great food and local entertainment talent.
Sunday, June 8, 2014. Start Time: 9:00 am.West Valley College14000 Fruitvale Avenue, Saratoga Course is USATF certified. REGISTRATION IS OPEN!Register online or download the registration form. Fee: $30 pre-registration, $40 after June 6.
Proceeds will help create greater lupus awareness, provide support services for lupus patients and their families, and encourage external lupus research efforts. Bring your family and friends for a fun day, and for a good cause!
See details here.
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Announcing: July 10 Lupus Conference to be Headlined by Dr. Maria Dall'Era, Hosted in Marin
LFNC's upcoming medical conference will be hosted in Marin County, and headlined by Dr. Maria Dall'Era. Dr. Dall'Era, who has headlined a previous conference, is considered one of the country's foremost experts on lupus. Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP).
Our July conference will be hosted in Marin, as LFNC continues our commitment to serve all of northern California. Other than Santa Clara county, we have previously brought the conference to San Francisco, Fremont, Redwood City and Oakland. The July conference will be the first to be held north of the Golden Gate Bridge.
More details will soon follow. |
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