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LFNC News
EARLY BIRD DRAWING TOMORROW - See more in the main part of the newsletter to your right.
SUPPORT GROUP LEADERSHIP SUMMIT LFNC will be hosting a leadership training summit with support group leaders from all across Northern California on May 14 in Sacramento. The training will encompass a leadership conversation about how LFNC can better support our volunteer subchapters, legislative training and a seminar on using technology. LFNC thanks the Henry L. Guenther Foundation and GlaxoSmithKline for the grants to make this summit possible.
SACRAMENTO SUPPORT GROUP Date and Time: Tuesday, April 8 - 6:30 - 8:00 pm Location: Sutter General Hospital Cancer Center/Buhler Building 7th floor, Buhler Boardroom 717 - 2800 L Street (Across the street from the main hospital) Sacramento, CA 95816 Contact: Shauntay L. Davis, MPH, 916-893-9554, shauntayd@hotmail.com
(LFNC subchapters and support groups are encouraged to let us know of your scheduled meetings and activities. Please email:
communications@lfnc.org)
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The 20th Annual 5K: Have You Signed Up Yet?
 20th ANNUAL 5K RUN & WALK FOR LUPUS
Sunday, June 8, 2014. Start Time: 9:00 am.West Valley College14000 Fruitvale Avenue, Saratoga Course is USATF certified. REGISTRATION IS OPEN!Register online or download the registration form. Fee: $30 pre-registration, $40 after June 6.
Proceeds will help create greater lupus awareness, provide support services for lupus patients and their families, and encourage external lupus research efforts. Bring your family and friends for a fun day, and for a good cause!
See details here.
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Connect with us on
via "Lupus Online"
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LFNC is an active partner in
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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In DC, Lupus Advocates Urge Congress to Fund Research
Last week, the Lupus Foundation of Northern California joined local lupus groups from across the country in Washington, DC to advocate for research funding. Under the umbrella of the Lupus Research Institute National Coalition, the advocates had three key demands of lawmakers: improve patient access to biologic drugs, support funding for biomedical research at the National Institutes of Health, and keep lupus included as part of the Defense Department's medical research program. In more detail:
Please join us in asking your member of Congress to support these three initiatives. You can find your member of the House on House.gov and your senators at Senate.gov.
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Car Giveaway - Second - and FINAL Early Bird Drawing is TOMORROW!
You still have time for the second early bird - a $500 shopping spree, but only if you enter soon!
Early bird drawing on April 1, and we will accept entries until noon tomorrow. Please call the office at 408-954-8600 instead of mailing your entries in so that we will have it in time.
And of course, with each ticket, your chance increases for the the grand prize, a 2014 Mercedes-Benz!
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SLE Patients Needed for Study on Cost of Medications: Complete Online Survey
 Researchers from California Northstate University and the University of Oklahoma are conducting a study on the cost of treatments for patients with multiple sclerosis, rheumatoid arthritis, or systemic lupus erythematosus to better understand the out-of-pocket costs of treatments.
The researchers, Dr. Ana Hincapie of California Northstate University and Craig F. Burns, MS, of the University of Oklahoma College of Pharmacy have as their goal improving the quality of care for patients. They have created an online survey for patients to answer, from which they and the medical community can gain better understanding of out-of-pocket costs associated with treatment of diseases like lupus, and how to best address the issue.
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Announcing: July 10 Lupus Conference to be Headlined by Dr. Maria Dall'Era, Hosted in Marin
LFNC's upcoming medical conference will be hosted in Marin County, and headlined by Dr. Maria Dall'Era. Dr. Dall'Era, who has headlined a previous conference, is considered one of the country's foremost experts on lupus. Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP).
Our July conference will be hosted in Marin, as LFNC continues our commitment to serve all of northern California. Other than Santa Clara county, we have previously brought the conference to San Francisco, Fremont, Redwood City and Oakland. The July conference will be the first to be held north of the Golden Gate Bridge.
More details will soon follow. |
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