Mercedes Giveaway
The deadline for the first early bird drawing is now passed. But you can still win! You can win a shopping spree, and of course, the grand prize, a 2014 Mercedes-Benz! Click Here to learn more and find out how to get your tickets. Tickets are $75 per ticket, $200 for 3, or $300 for 5 tickets. And you can do it all while helping keep alive critical programs for patients and a highly functional information hub for lupus alive.
Get your tickets now.
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter? You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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The LFNC Office will be closed on Wednesday, January 1st, in observance of the new year.
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Lupus Can Strike at an Early Age
Some media reports are suggesting that the young, 21-year-old star Selena Gomez has been diagnosed with lupus, and that may be why she is taking time off her tour. If true, the Lupus Foundation of Northern California offers heartfelt sympathy to Gomez and her family and loved ones as they go through a difficult process.
Though Gomez hasn't confirmed her diagnosis - and we certainly hope that the rumors are just that - the stories highlight a serious fact about lupus: it's a disease that can strike at an early age. While medical advances are making early diagnosis a welcome reality, a diagnosis can be particularly difficult for teenagers and young adults. It is with their specific needs in mind that LFNC hosts a once-a-month youth support group in our San Jose offices, called The Hangout. If you - or anyone you know - is dealing with lupus at an early age, we welcome you to become part of this group.
CORRECTION FROM LAST NEWSLETTER: In last week's news letter, we had reported that another celebrity figure, actor Kristen Johnston had revealed her lupus diagnosis, but misspelled her name. We sincerely apologize.
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LFNC Year in Review
2013 was a productive year from the Lupus Foundation of Northern California. We brought you news of new discoveries, therapies and treatments via our newsletters. Our patient education classes taught newly diagnosed patients techniques to cope with lupus in their daily lives. A new support group has taken hold in Marin County, alongside our dozen-and-a-half others throughout northern California.
We held two successful medical conferences in Fremont and Oakland, both well attended and informative. Our annual 5K Run and Walk continued to be the area's largest lupus awareness event as friends, families and the community came together to support lupus patients and celebrate their spirit. We held a workshop to educate our patients and the community on health insurance options effective January 1 under the Affordable Care Act. Our staff and volunteers staffed booths at numerous health fairs and spoke to attendees about lupus.
And we joined with our national research partners at the Lupus Research Institute in Washington, DC to lobby for more lupus research and education funding.
None of this would have been possible without the crucial work that our volunteers perform - whether they take up projects at the office, run a support group or help out at events. With a small staff, we rely on our volunteers for mission critical activities, and they always come through for us. We are grateful.
As busy and productive as 2013 has been for us, we look forward to 2014 being an even more exciting year as new treatments and therapies approach the market, we ramp up our services, and look forward to growing the Foundation's reach. We will start off the year with our very first Purple Ribbon Awards Gala - honoring individuals and institutions that have been instrumental to Lupus research and LFNC's mission. Come join us!
We hope you will stay with us and come along for the ride as we enter 2014 with new optimism - knowing our work will not be easy but with you, it will be rewarding.
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Holiday Wishes from the Lupus Foundation: A Reminder to Give
As 2013 draws to a close and we gather with our friends and families for the holidays, we have our own holiday wishes at the Lupus Foundation of Northern California: first and foremost, of course, we wish the new year brings us new lupus treatments, discoveries, and ever closer to a cure. And we wish everyone living with lupus, their families, and their loved ones safe and pleasant holidays.
But before the year ends, we ask you to give your final gift of the year to the LFNC. You can visit this page to give, or simply call 408-954-8600 to make a contribution. Your gift will help sustain support groups where lupus patients find people like themselves and open up, patient education classes where patients and their loved ones learn how to live productively with this disease, lupus awareness and services, and our research support efforts. Please give generously, but please remember, no gift is too small.
We thank you from the bottom of our hearts, and look forward to a bright 2014 for the lupus community.
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