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The 2013-2014 Fund Campaign: JOIN US
We will be candid. One of the things it takes to keep us going is money. Our annual fund campaign is geared to raise a good amount of those funds while giving you the opportunity to show your support. This year, our goal is to raise $50,000.  Click Here to Give Now and Show Your Support. What your gift means:
A PLATINUM ($1,000) gift will enable 20 patients to attend an all-day medical conference.
A GOLD ($500) level gift will enable 16 newly-diagnosed patients to attend a patient education class.
A SILVER ($250) level gift will enable 10 patients to receive a free copy of the LFNC's twice-yearly newsletter.
A BRONZE ($100) level gift will pay for lunch for 12 volunteers to help with office projects.
A FRIEND ($50) level gift will enable 5-8 patients participate in a support group.
A SUPPORTER ($25) gift will help pay travel expenses for a patient to take part in a clinical trial.
These are just examples of the kind of difference your gift makes. Whatever level you commit at, please rest assured that your fully tax-deductible contribution is being put to great use as the LFNC spends more than 90% of its funds directly to support programs.
So please give today.
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Study: Sleep Disturbance Common in Women with Lupus
 In a new study, more than 75% of women with lupus erythmatosus have sleep disturbances. About.com reports on the new study:
There were 60 participants in the study (30 women with lupus and 30 without the disease). They were evaluated using the Pittsburgh Sleep Quality Index for seven components of sleep: subjective sleep quality, sleep latency, sleep duration, habitual sleep efficiency, sleep disturbances, use of sleep medications, and daytime dysfunction. Women with lupus showed significantly greater sleep disturbance when the seven components were compared with the healthy participants. The biggest difference between the lupus group and the healthy group was daytime dysfunction. Two factors were noted upon analysis of what contributed to greater sleep disturbance in women with lupus -- disease activity and organ damage.
You may also read the full study here. The study also found that despite higher occurrences of sleep problems, only 30% of patients report taking sleep medication. |
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Save the Date: LFNC 36th Anniversary Gala
The Lupus Foundation of Northern California will be honoring outstanding contributions to the Lupus community at our 36th Anniversary Gala to be held on Saturday, January 25, 2014 at the Silicon Valley Capital Club in downtown San Jose. Further detail and ticket information will be forthcoming.
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Support Groups Meet: Mid-Peninsula, Marin
Mid-Peninsula Lupus Support Group will meet Wednesday, September 11, 2013 from 12:30PM to 2:30PM at El Camino Hospital, 2500 Grant Road, Mt. View, CA, conference room B on the lower level. Bring your lunch or pick something up at the cafeteria or bistro. Valet parking is available in front of the hospital. No speaker is scheduled. We will be catching up after our summer break.
Marin Support Group: Our newly formed Marin County Support Group meets on the third Saturday of every month. Here are the details of the next meeting:
DATE: Saturday, September 21
TIME: 10 am to 12 noon
PLACE: TBA
The Hangout: Young Adult Support Group:
DATE: Saturday, September 21
TIME: 11 am
PLACE: LFNC Office, 2635 N. First Street, Suite 211, San Jose, CA 95134
CONTACT: minilopez04@yahoo.com or outreach@lfnc.org, tel. 408-954-8600
Details HERE.
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Fall Lupus Medical Conference
C. Michael Neuwelt, MD, Professor of Medicine at UCSF, will headline the conference.
Dr. Neuwelt is a clinical professor of Medicine at the University of California San Francisco, Chief of Rheumatology at Alameda County Medical Center in Oakland and Director of Rheumatology Core Curriculum at St. Mary's Medical Center in San Francisco. He has been challenged and fascinated by Systemic Lupus Erythematosus (SLE) since 1973 during his third year of medical school. This challenge has persisted in his private clinical practice and teaching at a county hospital since 1979. Dr. Neuwelt will discuss latest trends in disease management of lupus and present an update on several lupus research projects he is involved in.
The conference will also feature a presentation on the psychological problems commonly associated with SLE by LFNC Board Member and pain psychology therapist, Sarah S. Goozee, Ph.D.
Date: Saturday, November 9, 2013
Time: 11 am to 4 pm
Venue: Sutter Health Alta Bates Summit Medical Center. 350 Hawthorne Ave, Oakland, CA 94609
Registration: Please register online or complete the form on the back of this flyer and mail or fax it with your payment to the LFNC.
Fee: $50 for California Registered Nurses (5 CEU credits) | $30 for non-credit attendees. Includes refreshments; Current LFNC members are entitled to $10 off the registration fee.
The Lupus Foundation of Northern California wishes to thank the following for their assistance in making this conference possible: Lupus Research Institute and GlaxoSmithKline.
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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