|
Support Groups Get Busy in July
 In the month of July - on July 20, in fact, big support group events are coming in San Francisco and Marin Counties. Marin:
A new support group is being organized in Marin, and the first meeting is on July 20.
DATE: Saturday, July 20
TIME: 10 am to 12 noon
PLACE: 401 Ash St, Apt 10, Mill Valley, CA 94941
HOST: Marilyn Wedner
If you have any questions, please e-mail or call
San Francisco:
The SF Subchapter is organizing a lupus education day on July 20.
DATE: Saturday, July 20.
TIME: 12 noon to 4 pm.
PLACE: Kaiser Medical Center, 2238 Geary Blvd @ Divisadero, 3rd Floor, Diamond Conference Room San Francisco, CA 94115
CONTACT: Evanne Grate. 415.452.4270 or egrate@comcast.net
|
Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
|
|
Connect with us on
via "Lupus Online"
|
|
LFNC is an active partner in
|
|
|
|
|
You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
|
|
Women with Lupus are at a Higher Risk for Hip Fractures, Study Finds
A six-year study just published in Arthritis Care and Research suggests that women who are suffering from lupus may have a higher risk of cervical hip fractures. NIH's Health Day blog reports:
Having lupus, the researchers concluded, raised the risk for cervical fractures compared to the general population, but not for the other fracture type. And women with lupus got cervical fractures at younger ages, the researchers said.
But now that you know the risk factor, what can you do about it? Our friends at the Lupus Research Institute have some good starting points.
For those reasons, experts in recent years have been focusing on using the lowest dose possible of steroids to control symptoms, [LRI] Scientific Advisory Board member Dr. David Pisetsky said. To help preserve bone health, Pisetsky tells his lupus patients to get enough calcium and vitamin D and to take bone-maintenance drugs, if their doctor decides they are necessary. Getting regular exercise can help too, he said. With age, lupus patients should try to preserve their balance, which also can reduce the risk of falls.
Read the entire LRI advisory here. If you feel the need, please speak to your physician about your bone health.
|
|
Case Links Chemotherapy to Cutaneous Lupus
Could chemotherapy be triggering cutaneous lupus in certain cases? A new but developing body of medical data seems to suggest just that, reports Medpage Today:
A patient who developed subacute cutaneous lupus erythematosus (SCLE) during chemotherapy adds to a small but growing literature linking multiple chemotherapeutic agents to the skin disorder.
A 71-year-old woman with a history of multiple sclerosis developed SCLE after receiving a second dose of gemcitabine for a pulmonary metastasis from breast cancer. At diagnosis of SCLE, the woman had scaly erythematous patches on her arms and pink papules on her chest. Low-grade fever and severe fatigue soon followed, Jennifer N. Choi, MD, of Yale University, and co-authors reported online in JAMA Dermatology.
Medpage Today goes on to say:
A literature review identified 17 additional cases of SCLE associated with seven cancer chemotherapeutic agents: docetaxel, paclitaxel, tamoxifen, fluorouracil, capecitabine (Xeloda), and doxorubicin with cyclophosphamide. All of the patients were women, who ranged in age from 42 to 84, and 12 of 17 had new-onset, metastatic, or recurrent breast cancer.
As you read the report, please keep in mind that evidence on this is still developing in the medical community. The preliminary data, though not yet conclusive, can help patients going through chemotherapy as well as their doctors identify symptoms post-chemotherapy by knowing what to look for. This research can also be helpful in determining environmental and physical factors contributing to lupus (such as, for example, possibly the exposure to radiation).
|
LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
|
|
|
|
|
|
