CALENDAR:
October 20
Patient Education Class, English, Kaiser Santa Clara
November 10
Patient Education Class, Spanish, Kaiser Santa Clara
December 18
2012 Lupus Treatment and Research Update (mini-conference), Women's Building, San Francisco
Click here to see our full calendar of events and add them to your own calendar here!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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35 years. $35,000. Help us get there!
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus. Please make your contribution today!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Benlysta Gains Mainstream Status in Europe for Lupus Treatment
Anyone who has been following news about lupus treatments and drugs welcomed the news last year when the FDA and agencies around the world approved Benlysta as the first lupus-specific prescription drug in 50 years. Now, in some welcome news for patients in Europe, more than half of rheumatologists in Germany and Spain report prescribing it to their patients, and more importantly, they are reporting a moderate level of satisfaction with it.
BioTrends Research Group, one of the world's leading research and advisory firms for specialized biopharmaceutical issues, finds that rheumatologists in Germany and Spain indicated they have prescribed GlaxoSmithKline's Benlysta (belimumab) for their patients, which is the first newly approved agent for systemic lupus erythematosus (SLE) in approximately 50 years. The findings come from the recent, TreatmentTrends(R): Lupus EU report in which 198 online physician surveys from the EU5 countries--France, Germany, Italy, Spain and the U.K.--were analyzed.
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Have You Signed Up for Our Patient Education Class Yet?
 Our patient education program is presented by a trained instructor and is designed for lupus patients who have been recently or newly-diagnosed to enable them to learn the basic facts about lupus in a comfortable setting. Family members are welcome to attend. You will learn about:
- Lupus diagnosis, causes and medical treatments
- Lupus self-management, including the use of CAM
- Available resources for Lupus patients; and
- Current research related to Lupus
Education Class in English: Education Class for Newly and Recently Diagnosed Lupus Patients
Saturday, October 20, 2012, 11:30 a.m. to 2:00 p.m.
Santa Clara Kaiser Permanente Medical Office Building.
710 Lawrence Expressway, Santa Clara, CA 95051
Please complete this web form and enter your payment information after you have completed submitting the form. You may also download the offline form, complete it and mail or fax it with your payment or payment information. Our fax number is 408-954-8129. The class fee is $20 for individuals and $35 for couples, but no one will be turned away for inability to pay. If you have any question or would like to register by phone, call 408-954-8600. Light refreshments will be served.
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What Could be Better than Helping a Great Cause? Doing it While You Earn a Chance to Win A Mercedes!
Longtime supporters will recall that some time ago, the vehicle of choice for our car drawings was often a Mercedes. Well, it's back by popular demand! In our online poll, you chose the Mercedes Benz 300 4Matic.
This is a great way to help out the Lupus Foundation and support our work in patient services, education and research, you can start buying tickets right away!
Grand Prize Drawing: Wednesday, May 15, 2013.
Ticket prices are changing a bit this year: you will be able to buy each ticket for $75, three (3) tickets for $200 and five (5) for $300. In addition to the Mercedes, participants who buy their tickets early will also have the chance to win up to two iPads! Early bird drawings will be held on December 14 and March 15.
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2012 Lupus Treatment and Research Update: December 18, 2012
 Our winter mini-conference promises to be exciting and useful for patients, families and health professionals alike. Maria Dall'Era, M.D., will be headlining our conference.
Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP). Her talk will focus on the latest treatment strategies and research studies on lupus and will share significant updates from the Annual Scientific Meeting of the American College of Rheumatology to be held in Washington, D.C. in November.
The conference will also feature other speakers -- experts and patients alike -- on lupus and related topics. Visit www.lfnc.org for conference program updates.
Date and Time:
Tuesday, December 18, 2012, 11 am to 4 pm.
Venue:
The Women's Building, Auditorium
3543 18th Street
San Francisco, CA 94110
Registration fee:
$50 for nurses desiring CEU credits (5 CEU credits)
$30 for non-credit attendees
Current LFNC members are entitled to $10 off registration fee. Box lunch included.
No one will be turned away for inability to pay.
Please click here to register. You may also register by mail or fax by completing this form, or by calling us at 408-954-8600.
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Moving with Lupus
Leveraging small grant from the Walmart Foundation, the Lupus Foundation of Northern California has announced a series of exercise classes focused on patients with chronic pain. Led and developed by Regan Mizuno, a certified personal instructor and lupus patient herself (and her program is endorsed by rheumatologists), the classes will focus on reducing pain and giving participants the opportunity to reclaim more mobility.
We have already had a few great, fun classes. Come join us, meet people just like you, and get active! Find out more here (schedule is being re-worked) or call 408-954-8600, or simply show up!
Check out the video below for a quick look.
 | | Moving with Lupus |
Best of all, while the LFNC will be happy to accept donations, there is no cost for the classes for participants! Sign up here!
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Liven Up Your Kitchen and Help Out the LFNC?
 Many of you may not know that LFNC's executive director, Rene Astudillo, has a passion for writing and cooking! He has an upcoming book titled, "My Bay Kitchen: Memories of my homeland, travels and more..." He has designated LFNC as a beneficiary of a portion of the proceeds from sales of his book. To learn more about the book while helping LFNC raise some funds for its programs and services, please visit: www.MyBayKitchen.wordpress.com.
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