CALENDAR:
September 18
Moving with Lupus - exercise class - LFNC office.
September 29
"The Hangout" - Young Adult Support Group, LFNC Office
October 20
Patient Education Class, English, Kaiser Santa Clara
November 10
Patient Education Class, Spanish, Kaiser Santa Clara
December 18
2012 Lupus Treatment and Research Update (mini-conference), Women's Building, San Francisco
Click here to see our full calendar of events and add them to your own calendar here!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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35 years. $35,000. Help us get there!
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus. Please make your contribution today!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Advocacy Matters: Lupus Groups Across the World Push Britain's NHS to Reconsider Benlysta
 When Great Britain's National Health Service rejected Benlysta for treating lupus patients on the grounds that it was too costly, lupus patients and advocates throughout the world began to act. Lupus UK came together with groups like our national research partner Lupus Research Institute to launch a petition to get NHS to reconsider their decision.
News broke on Wednesday that thanks to both the advocacy and the drugmaker GSK's appeal, the regulatory body in Great Britain that makes decisions about which medications to include will revisit their decision. This is an encouraging sign not just for lupus patients in the UK but all over the world. Benlysta is the first lupus drug approved in Europe and in North America in over 50 years, and it brings with it a hope of a better tomorrow for many suffering from lupus.
That is the difference you can make. The power of advocacy cannot be understated. When we come together for a common cause, we can change things!
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Back to the Mercedes We Go!
Longtime supporters will recall that some time ago, the vehicle of choice for our car drawings was often a Mercedes. Well, it's back by popular demand! In the past couple of weeks, we have asked our readers to choose between three vehicles for our next drawing: the Chevy Volt, the Mercedes-Benz 300 4Matic, and the BMW 328i Coupe. And you chose, by a 38% plurality, the Mercedes. The BMW finished a closed second at 31% of the votes, and the Volt got 24%.
Grand Prize Drawing: Wednesday, May 15, 2013.
As those of you who voted in the poll know, ticket prices are changing a bit this year: you will be able to buy each ticket for $75, three (3) tickets for $200 and five (5) for $300. In addition to the Mercedes, participants who buy their tickets early will also have the chance to win up to two iPads! Early bird drawings will be held on December 14 and March 15.
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Moving with Lupus - Next Class Tomorrow!
Leveraging small grant from the Walmart Foundation, the Lupus Foundation of Northern California has announced a series of exercise classes focused on patients with chronic pain. Led and developed by Regan Mizuno, a certified personal instructor and lupus patient herself (and her program is endorsed by rheumatologists), the classes will focus on reducing pain and giving participants the opportunity to reclaim more mobility.
We have already had two great, fun classes. Come join us, meet people just like you, and get active! Sign up here or call 408-954-8600, or simply show up!
Check out the video below for a quick look.
 | | Moving with Lupus |
The schedule for the classes from now till the end of this year will be as follows (schedule may be subject to change):
- Tuesday, September 18 from 8 pm to 9pm at the LFNC offices at 2635 N First St, Ste 211, San Jose.
- Saturday, September 29 from 11 am to 12 noon.
- Tuesday, October 9 from 8 pm to 9pm.
- Saturday, October 27 from 11 am to 12 noon.
- Tuesday, November 13 from 8 pm to 9pm.
- Tuesday, November 27 (burn your turkey off class!) from 8 pm to 9pm.
- Saturday, December 8 from 11 am to 12 noon.
Best of all, while the LFNC will be happy to accept donations, there is no cost for the classes for participants! Sign up here! LSchedule subject to change.
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2012 Lupus Treatment and Research Update: December 18, 2012
 Our winter mini-conference promises to be exciting and useful for patients, families and health professionals alike. Maria Dall'Era, M.D., will be headlining our conference.
Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP). Her talk will focus on the latest treatment strategies and research studies on lupus and will share significant updates from the Annual Scientific Meeting of the American College of Rheumatology to be held in Washington, D.C. in November.
The conference will also feature other speakers -- experts and patients alike -- on lupus and related topics. Visit www.lfnc.org for conference program updates.
Date and Time:
Tuesday, December 18, 2012, 11 am to 4 pm.
Venue:
The Women's Building, Auditorium
3543 18th Street
San Francisco, CA 94110
Registration fee:
$50 for nurses desiring CEU credits (5 CEU credits)
$30 for non-credit attendees
Current LFNC members are entitled to $10 off registration fee. Box lunch included.
No one will be turned away for inability to pay.
Please click here to register. You may also register by mail or fax by completing this form, or by calling us at 408-954-8600.
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