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Make a Donation Today
Your Community.Your Gift.Please make an
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CALENDAR:
September 29
"The Hangout" - Young Adult Support Group, LFNC Office
October 20
Patient Education Class, English, Kaiser Santa Clara
November 10
Patient Education Class, Spanish, Kaiser Santa Clara
December 18
2012 Lupus Treatment and Research Update (mini-conference), Women's Building, San Francisco
Click here to see our full calendar of events and add them to your own calendar here!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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35 years. $35,000. Help us get there!
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus. Please make your contribution today!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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LFNC is an active partner in
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Connect with us on
via "Lupus Online"
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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DNA - It's Not Just About Genes Anymore
 For the longest time, scientists have thought of DNA as simply the determinant in one's gene sequencing, ignoring parts of the DNA that does not contain genetic information to help our bodies make proteins. But what has been previously dismissed as "junk" in our DNA may now turn out to be a determinant factor in detecting exposure to diseases and developing treatments. To explain it more simply,
"It's Google Maps," said Eric Lander, president of the Broad Institute, a joint research endeavor of Harvard and the Massachusetts Institute of Technology. In contrast, the project's predecessor, the Human Genome Project, which determined the entire sequence of human DNA, "was like getting a picture of Earth from space," he said. "It doesn't tell you where the roads are, it doesn't tell you what traffic is like at what time of the day, it doesn't tell you where the good restaurants are, or the hospitals or the cities or the rivers."
But just what kind of impact could this finding have on medical treatment?
In one of the Nature papers, researchers link the gene switches to a range of human diseases - multiple sclerosis, lupus, rheumatoid arthritis, Crohn's disease, celiac disease - and even to traits like height. In large studies over the past decade, scientists found that minor changes in human DNA sequences increase the risk that a person will get those diseases.
This is an exciting research development for lupus, and while we will wait to see what promising medical applications come out of it, it's a sign of great hope.
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2012 Lupus Treatment and Research Update: December 18, 2012
 Our winter mini-conference promises to be exciting and useful for patients, families and health professionals alike. Maria Dall'Era, M.D., will be headlining our conference.
Dr. Dall'Era is an Associate Professor of Clinical Medicine and Director of the Rheumatology Clinical Research Center at the University of California, San Francisco. She is also the Director of the UCSF Lupus Clinic, UCSF Center Director of the Lupus Clinical Trials Consortium (LCTC), and Principal Investigator of the California Lupus Surveillance Project (CLSP). Her talk will focus on the latest treatment strategies and research studies on lupus and will share significant updates from the Annual Scientific Meeting of the American College of Rheumatology to be held in Washington, D.C. in November.
The conference will also feature other speakers -- experts and patients alike -- on lupus and related topics. Visit www.lfnc.org for conference program updates.
Date and Time:
Tuesday, December 18, 2012, 11 am to 4 pm.
Venue:
The Women's Building, Auditorium
3543 18th Street
San Francisco, CA 94110
Registration fee:
$50 for nurses desiring CEU credits (5 CEU credits)
$30 for non-credit attendees
Current LFNC members are entitled to $10 off registration fee. Box lunch included.
No one will be turned away for inability to pay.
Please click here to register. You may also register by mail or fax by completing this form, or by calling us at 408-954-8600.
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The Volt vs. Mercedes vs. BMW - Oh My!
Here at the Lupus Foundation, we have a long history of doing car drawings as a way to give our contributors a chance to win a first class vehicle while raising money for the Foundation. We think it only fair to let you decide which car you want for our next drawing. So will it be the environmental consciousness of the stylish Chevy Volt, the lap-of-luxury of the Mercecdes-Benz C300 4Matic Luxury Sedan, or the sports performance of the BMW 328i coupe? It's up to you!
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Moving with Lupus
Leveraging small grant from the Walmart Foundation, the Lupus Foundation of Northern California has announced a series of exercise classes focused on patients with chronic pain. Led and developed by Regan Mizuno, a certified personal instructor and lupus patient herself (and her program is endorsed by rheumatologists), the classes will focus on reducing pain and giving participants the opportunity to reclaim more mobility.
We have already had two great, fun classes. Come join us, meet people just like you, and get active! Sign up here or call 408-954-8600, or simply show up!
Check out the video below for a quick look.
 | | Moving with Lupus |
The schedule for the classes from now till the end of this year will be as follows (schedule may be subject to change):
- Tuesday, September 18 from 8 pm to 9pm.
- Saturday, September 29 from 11 am to 12 noon.
- Tuesday, October 9 from 8 pm to 9pm.
- Saturday, October 27 from 11 am to 12 noon.
- Tuesday, November 13 from 8 pm to 9pm.
- Tuesday, November 27 (burn your turkey off class!) from 8 pm to 9pm.
- Saturday, December 8 from 11 am to 12 noon.
Best of all, while the LFNC will be happy to accept donations, there is no cost for the classes for participants! Sign up here! Location TBA, schedule subject to change.
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