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Your Community.Your Gift.Please make an
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CALENDAR:
August 28
Moving with Lupus, LFNC Office
September 4
Brown Bag on Health Reform, LFNC Office
September 29
"The Hangout" - Young Adult Support Group, LFNC Office
October 20
Patient Education Class, English, Kaiser Santa Clara
November 10
Patient Education Class, Spanish, Kaiser Santa Clara
December 18
2012 Lupus Treatment and Research Update (mini-conference), Women's Building, San Francisco
Click here to see our full calendar of events and add them to your own calendar here!
Benlysta Webcast/Teleconference Series
Presented by Human Genome Sciences/GlaxoSmithKline
Sep 26 | Oct 24 | Nov 28
8pm ET
Tune in from home!
A different lupus-related topic will be addressed each month such as Benlysta and the infusion process, how to strengthen communications with your doctors, tips for managing lupus, and information about financial assistance.
To register for these free events, call 1-877-423-6597
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35 years. $35,000. Help us get there!
Since the day we opened our doors, it has truly been a privilege to be a witness not just to the trials that lupus patients face but their triumphs, too. Thank you for letting us be a part of your lives.
As we celebrate our 35th anniversary, we are launching our fund campaign with a goal of raising $35,000. As you can see on the chart above, over 90% of your contributions go straight to services, as we continue to strive to keep that focus. Please donate online, or if you prefer to donate by mail or fax, download this form and mail or fax it back with your generous donation to our office.
Recent developments in lupus research continue to give the lupus community renewed hope not only for the best quality of life among those living with the disease, but eventually a life without lupus. Please make your contribution today!
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Information contained in this e-Newsletter should not be considered a substitute for professional diagnosis, treatment or management of S.L.E. and symptoms by a physician.
Missed a previous issue of this e-Newsletter?
You can now view our ARCHIVES.
Editor: Spandan Chakrabarti
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LFNC is an active partner in
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Connect with us on
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LFNC's Social Media Program is funded through a generous grant from THE HENRY L. GUENTHER FOUNDATION GEORGE H. SANDY FOUNDATION GLAXOSMITHKLINE |
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You are receiving this newsletter because you have subscribed or have participated in our programs or events. We respect your time and privacy. If you prefer not to continue receiving the newsletter, you can click on the "safe unsubscribe" button below. We hope, however, that you will opt to remain on our newsletter list for important information and life-saving tips that you or someone you know may benefit from now or in the future.
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Olympic Gold Medalist Living with Lupus: "I am not keeping quiet anymore."
 In a previous newsletter, we told you about Shannon Boxx, the Olympic gold medalist with lupus. Her team, the US women's soccer team, just returned with their third set of gold medals! And Boxx, the now three-time gold medalist, is speaking out, calling on Congress to focus more attention and resources on lupus research. "I am not keeping quiet anymore," says Boxx in her wake-up call to Congress.
Lupus does not share the high profile of other diseases that affect women, like breast cancer, and as a result lupus research has not been funded at a level where it can keep pace with other diseases. But the impact of lupus can be harsh. Lupus is unpredictable but typically strikes women in the prime of their lives - ages 15 to 44 years. It devastates families, careers, and even claims lives.
Boxx calls on Congress to concentrate resources in research and treatment. The LFNC has long supported outside research efforts through our partnership with the Lupus Research Institute, and our core activities are focused on getting patients the services and treatment they need. We congratulate the Gold medalist US women's soccer team, and applaud Boxx for her strength and advocacy. Let's all join her and get loud about lupus!
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Congress Gets a Bill to Spotlight Autoimmune Diseases
 Perhaps Congress is beginning to heed the calls of Boxx and others in the lupus community. A bipartisan bill has been introduced in the House by Rep. Ann Marie Buerkle (R-NY) to create an interdepartmental coordinating committee to focus on autoimmune diseases. House Bill 6218 would establish the committee that would include the Assistant Secretary of Health, the Commissioner of Food and Drugs and the Director of the National Institutes of Health and would make recommendations to develop a national curriculum on autoimmune diseases. Read more here.
Lupus is often referred to as the prototypical autoimmune disease, and this renewed focus on developing a medical curriculum was part of the push that LFNC and groups across the country made to Congress under the umbrella of the Lupus Research Institute National Coalition this summer. We are heartened to see our efforts paying off!
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Moving with Lupus - First Class Tuesday!
Leveraging small grant from the Walmart Foundation, the Lupus Foundation of Northern California has announced a series of exercise classes focused on patients with chronic pain. Led and developed by Regan Mizuno, a certified personal instructor and lupus patient herself (and her program is endorsed by rheumatologists), the classes will focus on reducing pain and giving participants the opportunity to reclaim more mobility.
Our first FREE class is tomorrow, Tuesday, August 28 from 8 pm to 9pm at the Atrium at 2635 N First St, San Jose (downstairs from LFNC offices). Come join us! Sign up here or call 408-954-8600, or simply show up!
Check out the video below for a quick look.
 | | Moving with Lupus |
The schedule for the classes from this month till the end of this year will be as follows:
- Tuesday, August 28 from 8 pm to 9pm at the Atrium at 2635 N First St, San Jose (downstairs from LFNC offices) - TOMORROW!
- Saturday, September 8 from 11 am to 12 noon.
- Tuesday, September 18 from 8 pm to 9pm.
- Saturday, September 29 from 11 am to 12 noon.
- Tuesday, October 9 from 8 pm to 9pm.
- Saturday, October 27 from 11 am to 12 noon.
- Tuesday, November 13 from 8 pm to 9pm.
- Tuesday, November 27 (burn your turkey off class!) from 8 pm to 9pm.
- Saturday, December 8 from 11 am to 12 noon.
Best of all, while the LFNC will be happy to accept donations, there is no cost for the classes for participants! Sign up here! Location TBA, schedule subject to change.
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Brown Bag Lunch on the Affordable Care Act
 The milestone health care reform law signed into law in 2010 is only now beginning to take shape, and it will take until the beginning of 2014 for it to be fully in place. But what's happening now?
Whether you are on Medicare or Medicaid, have private insurance or no health insurance at all, you have important new rights under the health care law, and even more importantly, a promise of greater access.
Come to our brown bag lunch (bring your own lunch) session at the LFNC offices on Tuesday, September 4, at noon to learn about what is changing, what is staying the same, and where you fit in. Bring your questions, and we'll be happy to answer them for you. RSVP to: communications@lfnc.org.
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Still Seeking Lupus Patients for Clinical Trial of a New Investigational Medicine
 Male and female patients with Systemic Lupus Erythematosus (SLE) are being sought for a clinical study looking at a possible benefit of an investigational medicine. The study site is in Roseville, California and in the Sacramento area and will last approximately 56 weeks.In order to be eligible for the study, patients must be:
- Between the ages of 18 and 75
- Experiencing active disease during the time you join the study
- Receiving treatment for SLE
- There are also some other medical criteria that must be met for all patients wishing to join the study. A number of screening tests will determine suitability for the study.
If you or someone you know from the Sacramento area may benefit from this study, please contact Sharon Harp of Med Investigations directly at (916) 966-7452. |
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