|
|
Please visit us at www.stoptheclot.org
|
|
A Message from our Chief Executive Officer, Joe Isaacs
|
 Spring has finally arrived, and it's a very busy time for the National Blood Clot Alliance! As many of you are aware, NBCA is fortunate to be the beneficiary of numerous volunteer-led fundraising events, and I would like to take this opportunity to thank those whose passion for our organization and its mission, and commitment to raising funds and awareness is so impressive. Our walk events continue to grow, popping up across the country from Maryland to Los Angeles to Ohio and Pennsylvania. Our athletes who run marathons and triathlons add fundraising to their already strenuous training programs. Shopping nights, fundraising pages, Bar and Bat Mitzvahs, there is no end to the creativity and drive of the many people who support us.
I recently had the pleasure of attending a first-time golf tournament that was held as an NBCA fundraiser in Florida. It was an inspiring reminder of why NBCA's work is so important. I joined in honoring the memory of a special young man, Rob Koziura, whose life ended prematurely at age 31 due to blood clots. The event was entirely planned and implemented by Rob's family. It was an amazing testament to the power of family, friends and love. Together, they extended Rob's legacy as someone who urged others to take blood clot risks seriously. I thank the Koziura family for helping to raise awareness and inviting me to participate in their celebration of Rob. Read more about the event here.
To all of our volunteers, I offer a heartfelt thank you for supporting NBCA.
We are very grateful to each and every one of you.
|
|
World Thrombosis Day is October 13, 2014!
| |
 The International Society on Thrombosis and Haemostasis is partnering with thrombosis-related organizations from every continent to launch World Thrombosis Day, focused on the single cause of the top three cardiac deaths worldwide; heart attack, stroke and venous thromboembolism (VTE). National Blood Clot Alliance was honored to lead the patient component of this recognition in North America. Stay tuned for announcements of upcoming activities.
See the press release here and Facebook page here.
|
Study on Home Monitoring Released
|
 A study was recently released in the American Journal of Managed Care regarding home point-of-care international normalized ration (INR) monitoring. The study, co-authored by NBCA MASAB member Dr. Jack Ansell, documents the ability of patients to monitor their own warfarin therapy outside of a clinical trial setting. Click here to read more.
|
Professional Test Strip Recall
| |
Alere has initiated a voluntary urgent recall of the INRatio�2 PT/INR Professional Test Strips. Healthcare professionals should stop using the strips. Read more here.
|
The "Clot Trot":
Mike Beamesderfer's Story - with help from Ava and Jenna
|
 Like so many other patients, Mike Beamesderfer's blood clot came as a complete surprise. "I am familiar with many things with regard to medicine, anatomy and the like, however, I was woefully lacking knowledge in the areas of veins and hematology. As a NASA engineer, the feeling of not knowing, nor understanding what was happening to me, was nearly as unsettling as the pain in my leg." Read Mike's story here. |
|
An Opportunity to Participate in Research
to Improve the VTE Patient Experience
| |
 The Johns Hopkins University School of Medicine is embarking on an important project to build patient education for the prevention of venous thromboembolism (VTE).
Read more here.
|
Patients with Antiphospholipid Syndrome Needed for Clinical Trials
| |
NBCA has been advised by our colleagues at APS ACTION, an International Clinical Research Network, that they are seeking patients with Antiphospholipid Syndrome (APS) for clinical trials. Please click here for more information about the trials. To learn more about APS, an autoimmune clotting disorder, click here. 
|
|
Know the Facts!
|
 There are at least 100,000 deaths in the U.S. annually due to pulmonary embolism (PE). That's at least 274 deaths each day. Someone experiences a PE in this country every minute. Don't be a statistic. Know the symptoms: A PE may cause sharp chest pain and rapid heart rate OR simply an unexplained cough. Ask your doctor if you could be suffering from a blood clot. Get the facts here. Spread the word.
|
| New Clinical Trials for Xarelto� (rivaroxiban) |
Janssen Research & Development, LLC has announced the addition of three new clinical trials under the EXPLORER global cardiovascular research program for the oral anticoagulant XARELTO� (rivaroxiban). Click here for more information.
|
|
New Tool to Help Doctors Manage Anticoagulation
During Invasive Procedures
|
A new, free-of-charge tool designed and produced by New York State Anticoagulation Coalition will enable clinicians to more easily determine how, whether and when to stop the use of warfarin and other anticoagulants prior to surgery and other invasive procedures.
Read more.
|
|
Coming Soon to NYC - Walk to Stop the Clot
| |
New York, NY: June 7, 2014 - 5th Annual ABWA Walk for Blood Clot Awareness.
For more information on other upcoming events, please click here.
|
|
"Son Shine" on iTunes to Benefit NBCA
|
 Cassius D. Kalb, renowned rap artist and Grammy Award winning songwriter, lost his mother to a blood clot when he was 8 months old. To honor her memory and to support NBCA, he wrote and performed an original song titled "Son Shine." Cassius has graciously agreed to donate to NBCA a percentage of the sales of this new iTunes release. Click here to listen to Cassius perform the song, then please buy it from iTunes to support NBCA!
|
|
We hope you enjoy receiving eNews from NBCA!
Please join us on Facebook and Twitter for daily posts and more "in the news" messages.
Your support helps us save lives by informing patients, healthcare providers and communities about the signs, symptoms, and risks factors of blood clots and clotting disorders.
NBCA Gold Corporate Sponsor:
 Please visit us at
www.stoptheclot.org
National Blood Clot Alliance | 110 North Washington Street | Suite 328 | Rockville | MD |20850
(301) 825-9587 (877) 4-NO CLOT
877- 466 - 2568
|
|
|
|
