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May 2015 Newsletter

Amy Burkhart, MD, RD


The Celiac MD™

Amy Burkhart, MD, RD



Celiac Disease, Gluten and POTS (Postural Orthostatic Tachycardia Syndrome):  

An Undiscovered Connection?



Adeline was so tired that at the age of 12 she couldn't find the energy to run around a baseball field during PE. The fatigue was affecting her concentration, grades and life. Getting to school was a struggle, and making it through, nearly impossible. Jace, 17, was experiencing dizziness and palpitations when he stood for any prolonged period of time.  His legs ached when he stood. Taking a shower made his pain worse. Standing in line for anything was intolerable; his legs turned a purplish color and he became exhausted until he could sit down.  Claire, 35, had headaches that weren't responding to multiple treatments, and hot weather made them worse. Ruby, 37, suffered from persistent brain fog.  Her blood pressure often "ran low" and her doctor told her this was "healthy." She felt awful. Despite the wide range in ages and symptoms, these patients of mine* are connected by one explanation.  Read more


Stanford Launches Genetic Study on Celiac Disease with Plenty of Volunteers


Great job, national celiac community! Stanford University put out a call for volunteers for its genetic study just two weeks ago and received a high level of response. Special thanks to the Celiac Disease Foundation for helping spread the word! 


Here's a statement of appreciation from the Stanford team:

"We would like to thank all the people who have responded and expressed interest in the study. Our research would not be possible without you. Because of the overwhelming response from the community, we do not need additional participants at this time. If you have already responded to express your interest, thank you. We are still working to get through the emails and will respond as soon as we can."

Celiac disease has the attention of top scientists at Stanford, including an immunologist and a bioengineer. Read more about the research team and study goals in our article on the celiac genetic study. 



Gluten-Free Vacation in West Sonoma County

By Vic Dolcourt  

Northern California has a range of vacation offerings, from the big city bustle of the Bay Area to the secluded north coast Pacific beaches. Happily, there is a middle ground between the mob scene of Highway 101 and the almost hermit-like qualities of Salt Point State Beach. This is western Sonoma County and the wonderful small towns, antique shops, family wineries, artisan food producers and the Pacific Coast west of Santa Rosa. It is an easy trip from virtually anywhere in the Bay Area and Sacramento. The area offers gluten-free options, plenty of scenery, the ocean, beaches, roads that are easy to navigate, virtually no chain businesses, and interesting people who like it just that way - an ideal getaway.    Read more




Gastroenterology journal highlights how food impacts health and disease

Our board member is co-editor of special "13th issue"



This special issue of Gastroenterology on food, the immune system and the gastrointestinal tract includes two articles on celiac disease and one on non-celiac gluten sensitivity. The issue was co-edited by our foundation's board member, Douglas A. Corley, MD, PhD, MPH, who is also known as "Dr. Doug" to the last 8 years of Camp Celiac campers.


Abstracts of the articles are available here. A subscription is needed to read the full articles.


Congratulations, Dr. Corley! We feel lucky to have you serving on our board and volunteering as camp doctor.



Join us in Santa Rosa for our May 23 support group meeting

Saturday, May 23, from 10:00am-12:00pm



The Celiac Community Foundation of Northern California partners with Whole Foods in the Coddingtown Mall in Santa Rosa to offer quarterly gluten-free support meetings on Saturday mornings. The events are free and open to the public. We meet in the community room next to the Customer Service Desk.


Sign-ups are optional. RSVP to by May 16th to receive a Whole Foods goody bag at the meeting. If you haven't replied, please join us anyway!


Always double check our Events Calendar for any update prior to attending an event for which you have not signed up. 



Walnut Creek Support Meeting at Mary's Pizza Shack on May 12th


We have moved our meeting to an evening time slot in order to allow more people to attend without missing work time. Please tell your friends and neighbors that are interested in a gluten-free life style to join us. We will be meeting Tuesday, May 12, 2015 at 6:30 PM. We will meet at Mary's Pizza Shack at 2246 Oak Grove Rd, Walnut Creek, CA 94598 in Walnut Creek, CA. Their phone number is (925) 938-4800, if you need directions.  Please confirm that you will be attending, since we need advance confirmation of the number for gluten-free pizza or gluten-free pasta dinners.  Please confirm by emailing us at GlutenFreeWC@GMail.Com or call Walter Moeller at 925-930-8875.


Mary's Pizza Shack states on their website: Mary's Italian restaurant in Walnut Creek also offers a selection of gluten-free items, carefully prepared away from the flour in the kitchens, and a variety of options for vegetarians.


Donuts at Miglets!




Miglets in Danville is now offering gluten, dairy, egg, soy and nut free donuts on Fridays, Saturdays and Sundays.




Mariposa Baking is fundraising for the University of Chicago Celiac Center this month



In partnership with The University of Chicago Celiac Disease Center for the third year, Mariposa Baking is helping to raise funds for their important research seeking treatment and the cure for celiac disease. A percentage of Mariposa's sales on select items will go directly toward funding research at The University of Chicago Celiac Disease Center.


Customers can purchase the celebrated rye bread, chocolate chunk cookies and delicious butter croissant in our retail locations, online store for pick up or mail order shipments all across the USA and support finding a cure!  


Get your gluten-free groceries delivered Tuesday - Friday with Good Eggs! There are plenty of the essentials and seasonal treats available on our webstand, like breads,cookieswhoopies and more!



 Inn on Randolph in Napa Selected as a Tesla Driving Destination Partner

Napa's 100% gluten-free inn put out an exciting announcement:


Inn on Randolph "The Inn on Randolph is now inviting electric vehicle owners to plug in for the night while they unplug and enjoy the boutique inn's luxury amenities. The property has been selected as a Tesla Driving Destination Partner, joining a roster of high-end destinations across the country to offer Tesla-specific chargers, including the Meadowood Resort in St. Helena, the Post Ranch Inn in Big Sur and the Ritz-Carlton in Half Moon Bay. Tesla's High Power Connecter allows Tesla Model S owners to fully replenish an empty battery in just less than five hours. In addition, the inn is outfitted with a second charging unit for all other electric vehicles."


Gluten-Free Taste-O-Rama at Whole Foods in Campbell a Success



Whole Foods Market Campbell held a Gluten-Free Taste-O-Rama on April 12th. The event, which was free and open to the public, was an opportunity to sample a variety of gluten-free products throughout the store and learn about celiac disease. Our board member Vic Dolcourt and his wife Hallie staffed a table for our foundation at the event, spread awareness and made a number of new connections. Thanks to Vic and Hallie for their dedication to the cause!



We have a winner for our April cookbook giveaway
Gluten-Free Baking Classics: The Heirloom Collection by Annalise Roberts


Congratulations to our community member Whitney Liu, the winner of our April gluten-free cookbook contest! Whitney won this lovely new cookbook by Annalise Roberts.


Here is Whitney's winning entry: 


"I just wanted to say that the Celiac Community Foundation of Northern California has been extremely helpful for me by providing so much up-to-date news on being gluten-free.  Especially recently, this foundation has informed me like no other in the harmful effects of eating too much rice on this kind of diet.  I cannot thank them enough for providing all of this information for free."


Thanks to author Annalise Roberts for donating a copy of the cookbook!

Events Calendar for May

Check out our monthly listing of support groups, events, classes and news in the greater Bay Area, Sacramento and Central California.  
Events Calendar



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Jennifer Iscol
Celiac Community Foundation of Northern California
P.O. Box 1506
Healdsburg, CA  95448