November 2014 Newsletter

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The Celiac MD™

Amy Burkhart, MD, RD

Celiac disease and gluten sensitivity: The doctor-patient disconnect

I recently gave a grand rounds lecture on celiac disease and gluten sensitivity at a local hospital. For those of you not familiar with the term, grand rounds are weekly or monthly lectures to update physicians on medical topics. As I was waiting to speak, I watched about 50 physicians and other health care providers file nonchalantly into the lecture room. Some came out of interest, others perhaps for the free lunch. Read more

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Patti's Perfect Pantry
By Vic Dolcourt

Patti's Perfect Pantry in Gilroy

- the small gateway city to Los Angeles, the Monterey Peninsula and the Central Valley, south of San Jose - is a gluten-free oasis, or at least it seemed so at the time. I had just spent more than a week in Fresno visiting a number of restaurants from web searches and finding out that they were actually gluten-free-ish, but not suitable for anyone who is seriously gluten-free. Patti's, on the other hand, is advertised as the real deal - a dedicated gluten-free bakery that serves breakfasts and lunches. It is in a nice part of Gilroy, about eight minutes west of Highway 101 at the same exit as the outlet mall. Patti's sports a whimsical Alice in Wonderland theme. As my wife and I sat in the shop during lunch we noticed a steady stream of clientele.

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Fall Cookbook and Cup4Cup Giveaways

We are giving away one more gluten-free cookbook and a box of Cup4Cup products this fall! Congratulations to our October winner, Donna Nielsen, who won Carol Fenster's new cookbook "100 Best Quick Gluten-Free Recipes" and delicious products donated by Cup4Cup!

November CONTEST

We are giving away the Nosh on This: Gluten-Free Baking Classics from a Jewish-American Kitchen by Lisa Stander-Horel and Tim Horel, the Gluten-Free Canteen blogging duo. The book features over 100 recipes for the gluten-free baker who craves traditional Jewish baking. From Apple Upside-Down Cake to Cherry Chocolate Mandelbrot and more, there are recipes for cookies, cakes, pies & tarts, bars & brownies, pastries, cupcakes, donuts, macaroons, quick breads, muffins, and biscuits, breads, savories, matzoh, and crackers. Many recipes are dairy-free or have a dairy-free option.

The giveaway includes these four Cup4Cup products:

* Gluten Free Flour Blend (3lbs)

* Pizza Crust Mix (1.02lbs)

* Pancake & Waffle Mix (.54lbs)

* Chocolate Brownie Mix (.89lbs)

HOW TO ENTER: If you are not already on our free email list, join it here . Then send us a sentence or two describing a way in which the Celiac Community Foundation of Northern California or Camp Celiac has been helpful or had a positive impact on your life. Camp, website, support events, newsletter etc.

Send your entry to info@celiaccommunity.org with "Cookbook contest" in the subject line.

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Ivy's Garden expands distribution

Ivy's Garden Foods, gluten-free Asian food products, are in 82 Safeway stores in California, and will be in dozens of independent stores by year end (Lunardi's, Molly Stone's, New Leaf, Draeger's, etc). Chef Ivy Lau and Mark Ivey launched their company over two years ago with the goal of bringing healthy, delicious, gluten-free dishes to the public, starting in California and Oregon (they are based in San Jose). Please try them out (look in the freezer section) and spread the word. Visit the link to find a store near you.

http://www.ivysgardenfood.com/stores-or-online/

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Internship opportunities at Celiac Disease Foundation in Los Angeles

Summer 2013 interns

Are you, or is someone you know, interested in gaining experience working in a nonprofit? The Internship Program at Celiac Disease Foundation allows you to work directly with senior management on marketing, PR, communications, and nonprofit management! CDF's year-round Internship Program allows college students to gain hands-on experience, directly impact the celiac and gluten-free community, and earn course credit at your university. Interns must be 18 years or older. Visit our website for more information:

http://celiac.org/about-cdf/internship-program/

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Events Calendar for November

Check out our monthly listing of support groups, events, classes and news in the greater Bay Area, Sacramento and Central California. Events Calendar

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Celiac Disease and Gluten Sensitivity Awareness Campaign

Dominican Hospital, Santa Cruz

In October, board member Amy Burkhart, MD, RD, presented a grand rounds lecture to the physicians at Dominican Hospital in Santa Cruz, CA, updating them on celiac disease and non-celiac gluten sensitivity, as part of our Celiac Disease Awareness Campaign.

Juvenile Diabetes Research Foundation, San Francisco

On October 26th, our foundation had a table at the Juvenile Diabetes Research Foundation walk in San Francisco at Fort Mason. One in ten people with Type 1 Diabetes also have celiac disease, but most are undiagnosed. We handed out educational materials from the National Foundation for Celiac Awareness to help spread awareness. Thanks to JDRF and NFCA.

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Sign up now - Celiac Disease Foundation

At the beginning of every month the Celiac Disease Foundation sends out its InBrief update by email and it's always full of news, helpful tips, advocacy and research updates. Keep up with our national community by signing up for the Celiac Disease Foundation's FREE email list here http://celiac.org/email-sign-up-form/. We have strength in numbers!

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Send us your favorite doctors and dietitians

We are continuing to update our
physician list and dietitian list for Northern California. If there is a physician or dietitian who has been particularly helpful to you in diagnosing and treating celiac disease or gluten sensitivity, please send us their full name and the city in which they practice. Let us know if you have questions.

* If it's not easy to find them online, please include their contact info

* If you like, please tell us why you found them helpful. Your name and comments will not be published - it's just helpful to us in referring people as needed.

* At this time, we only provide listings for medical doctors (MDs) and registered dietitians (RDs)

* Our foundation supports evidence-based diagnostic tests and procedures. We list medical practitioners who use labs and medical practices that are used by celiac disease centers at major medical facilities.

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Participate in the CeliAction research study The CeliAction Study is a clinical research study evaluating an investigational medication for celiac disease. The study will explore whether the study medication is able to improve the damage in the lining of the intestine caused by even the smallest traces of gluten. The study will also evaluate whether the investigational medication improves any symptoms of celiac disease compared to a placebo. While enrolled in the study, you will be asked to maintain the gluten-free diet you are currently on.

The CeliAction Study is sponsored by Alvine Pharmaceuticals in San Carlos, CA. The investigational study medication is called ALV003. ALV003 is a mixture of two different enzymes, which in a test tube can break down gluten into smaller pieces of protein.

To learn more and see if you are eligible to participate, go to http://www.celiactionstudy.com/ or call 1-855-3226-ACT

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Was this newsletter forwarded to you? Join Our Mailing List!

Jennifer Iscol

President

Celiac Community Foundation of Northern California

P.O. Box 1506

Healdsburg, CA 95448

www.celiaccommunity.org

jiscol@celiaccommunity.org