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January 2013 Newsletter

This is a busy winter in the gluten-free world. As we start the new year, we have plenty in this newsletter to help you catch up and anticipate in upcoming months. Happy New Year, and enjoy!

Gluten-Free Labeling Update

34,000 Petition Signatures and on the Edge of Our Seats

Black boxTo the extent that we can peer into the big black box that is the U.S. regulatory process, we are encouraged that the gluten-free labeling rule is moving along. The settlement between the Department of Justice and Lesley University may add impetus to the labeling issue (see article below). Until the final rule is published, keep on signing that petition...
Sign here: White House petition 


U.S. Department of Justice Takes a Stand for Celiac Disease
DOJ logo By Jennifer Iscol

In a significant development for the celiac disease and food allergen communities, the United States Department of Justice signaled that both conditions may constitute disabilities under the Americans with Disabilities Act (ADA).


DOJ Investigation Triggered by Student Complaint

The Department of Justice investigated a student complaint received in October 2009 that Lesley University in Cambridge, MA, had failed to make reasonable accommodations to permit students with celiac disease and/or food allergies to fully and equally enjoy the school's food services. The investigation found that the university's policies and practices did not comply with the ADA. The university cooperated with the investigation. Read more


Educating Doctors About Celiac Disease
The Celiac MD™
Amy Burkhart, MD, RD
Dr. Burkhart reports on her trip to Chicago

to participate in specialized medical training  

By Amy Burkhart, MD, RD

A Happy New Year to everyone! The holidays are winding down and 2013 is off to a sunny start here in California.It was an equally beautiful, albeit colder climate, a few weeks ago in Chicago when I had the pleasure of participating in the University of Chicago Celiac Disease Center Preceptorship Program


The program is a yearly event coordinated by the center's founder and director, Stefano Guandalini, MD, and his staff. Dr. Guandalini is one of the world's leading experts in celiac disease and non-celiac gluten sensitivity. He started the preceptorship seven years ago to educate and update physicians and other health care professionals on celiac disease and non-celiac gluten sensitivity.  Read More.

News for Kids and Teens
Camp Celiac Summer 2013
REMINDER: Registration for this summer's camp begins February 1!
Please see the camp website for further details and contact information. 

Session 1 July 23-27 Tuesday-Saturday (Staff arrives Monday, July 22)

Vendor Fair for both sessions to attend: Saturday, July 27th

Session 2  July 27-31 Saturday-Wednesday


The Celiac Community Foundation of Northern California administers Camp Celiac at Camp Arroyo in Livermore, CA, thanks to the generosity of our partner, The Taylor Family Foundation.  


Save the Date ~ NorCal Gluten-Free Teens Event

Saturday afternoon, March 9th, 2013 for a fun event in Marin for all gluten-free Bay Area to be announced soon. Like their Facebook page and get updates.

Local Company Profile
Second Helping: From the East Bay to the East Coast
By Jennifer Iscol
Jillian Taffe  


Events Calendar for January 

Latest News Drawing  


Check out our monthly listing of support groups, events and classes in the greater Bay Area and Sacramento. Try something new!  


The Expo is coming in February - First time in San Francisco!
Expo Logo 
Volunteers still needed
Gluten & Allergen-Free Expo, February 9-10th
Burlingame, CA

The number of volunteers is limited, so sign up soon if you are interested by filling out the volunteer formExpo volunteers receive a free weekend pass and a t-shirt to wear during their half-day shift. Volunteering at the Expo is fun and rewarding.

Expo Tickets available now!


Team at Massachusetts Institute of Technology
is Developing a Portable Gluten Sensor
to Help You Eat Out More Safely




Take the anonymous five-minute survey to help the MIT team develop a useful product. Questions? Learn more about the founders of GlutenTech and the MIT $100K Entrepreneurship Competition.


Interesting Tidbits 

A seismic realignment in the celiac world on the east coast was announced in December. The Center for Celiac Research (CFCR) headed by Dr. Alessio Fasano, is moving from the University of Maryland to Massachusetts General Hospital. Members of his research, clinical, and administrative team will be joining Dr. Fasano in Boston. Read the press release (posted on the NFCA website).

KQED broadcast "Going Gluten-Free" in December, with a panel of celiac experts. Listen to the show or read the article summarizing it.
Top Notch National Resources

Boost your celiac disease and gluten sensitivity I.Q. and get medical facts straight from the experts.

Univ. of Chicago Celiac Center Logo  The University of Chicago Celiac Disease Center provides the Question Bank, an astounding resource with thousands of useful and intriguing questions and answers neatly organized and beautifully presented. 

Celiac Now Logo The Beth Israel Deaconess Celiac Center's Celiac Now website focuses on the nutritional aspects of how to thrive on a gluten-free diet, both for those with celiac disease and non-celiac gluten sensitivity. It has a unique three-level format so you can get a quick introduction to a topic, link to more detailed information, or continue to the deeper level for more complex knowledge.
Opportunities to Participate in Celiac Research
Stanford School of MedicineStanford University School of Medicine is conducting government-sponsored studies to improve the understanding of celiac disease, not for profit. For information on participating in the studies, please contact Dr. Arnold Han at  



Diablo Clinical Research Diablo Clinical Research in Walnut Creek is conducting a clinical trial locally for celiac disease to look at how effective and safe an investigational medication is. To participate in a survey to determine whether or not you qualify and to connect to a study site near you, call Ava at Diablo Clinical Research at (925) 930-7267 or email



Save the dates for 2013 


CDF Logo Celiac Disease Foundation

National Education Conference & Gluten-Free EXPO

Pasadena Convention Center - -  May 3- 5, 2013 or call 818.716.1513


Sheraton Chicago  

15th International Celiac Disease Symposium

Chicago, IL -- September 22-25, 2013  

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Jennifer Iscol
Celiac Community Foundation of Northern California
P.O. Box 1506
Healdsburg, CA  95448