NACD Newsletter - Volume 6, Issue 2 - March 2013
In this issue:- Getting Program Done
- What Parents Need to Know About the Side Effects of ADHD Drugs
- Brag: The Driving Force - Shaurya
- Upcoming Evaluation Dates
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Getting Program Done
by Vidya Guhan,
NACD Developmentalist & Coach
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 As a coach, this tends to be the number one concern that I address with parents. As a parent, I always come home from an evaluation feeling good, feeling like I have a plan and can make some real progress. Then I receive my program, and I feel even better- someone has put together for me exactly what I need to do with/for my child for the next three months to really help her learn and achieve her goals. And then...minor detail...now I actually have to get the program done. So after more than 12 years of doing the NACD program, here are some things I have learned about the process that helps me and other families be successful: 1. It starts with intention and total commitment
The parents who get program done are the parents who believe it must be done (no ifs, ands, or buts) - and fully expect it to work. And I mean non negotiable - like wearing a seatbelt, eating, sleeping, or getting an education. Partial commitment - doing program if we have enough time today, or when everything else is done (school, homework, social events, after school activities, other therapies etc.)-- does not work as well because there are always going to be other things competing for your attention, time, and resources. Our program is about investing in your child's future now- really pushing for highest level of function. If you believe it must be done and it can be done, you will get it done. There have been many, many parents who have gotten program done against all odds - single parents, working parents, grandparents, adoptive parents, parents dealing with serious illnesses, parents dealing with financial issues, parents who do not have internet, computers etc., parents who do not speak English, parents with special needs themselves, etc. There really is no barrier to getting program done---just decide you are going to do it, and you will! 2. Organization and planning
Once you have decided you are going to get program done, you need a plan. The families who consistently get program done are those who schedule it into their day in some way--using the NACD planner, a fifteen-minute schedule, a daily checklist of activities, index cards with program activities written on them, and timers that go off every fifteen, twenty, thirty minutes. Your planning can be as flexible or rigid as you need it to be to suit your and your child's personalities. Do what works; but have a plan. Your coach can help you find the best way to schedule/organize your time, as well as alternate plans for the days that plan A does not work. It might take you a few tries to get it just right; so be willing to fine-tune it till you find a system that works best. In addition to organizing your time, you need to organize your materials. Look over your program as soon as you get it and identify any books, flashcards, apps, software, CDs, etc. that you need and order them. If there is something you are not going to be able to get, let your coach know. Set aside time every week to prepare new books, photos, tapes, flashcards as per your program directions - i.e., 5 new, 10 new per week, etc.. This will ensure that you have the best possible input for your child each week. Click here to read the rest of this article |
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What Parents Need to Know About
the Side Effects of ADHD Drugs
by Nick Smith
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This report outlines common side effects of drugs prescribed for ADHD, many of which are extremely serious even if they are considered "rare." If parents do not tolerate a child running across a neighborhood street without looking for cars because there is a "rare" chance they will be hit, then why should they be okay with taking the risk that their child may be hit with heart dysfunction, liver failure, suicide, or even sudden death? ADHD is not a lethal "condition," but the current drugs being prescribed for it can certainly cause one.
Please note that most of the statistics on the side effects reported here are for clinical populations that often include many adults. Side effect prevalence and severity are generally even more substantial for populations of just children [1-3]. Furthermore, it is important to note that the long-term, chronic side effects of these drugs have not been adequately researched. Therefore, the current children prescribed these drugs are "guinea pigs" by default of a continuing medical experiment. For example, does heavy stimulant use throughout a child's life increase their chance of a heart attack or stroke when they are 50 or 60 years old? The data do not exist yet to answer that question. But the current side effects already known are not looking too pretty. Let's take a look.
Psychostimulants
Psychostimulants are the most frequently prescribed drugs given to children and adults diagnosed with ADHD. Here is a list of psychostimulant drugs commonly used for ADHD [4]:
- Methylphenidate (Ritalin, Concerta, Metadate, Daytrana)
- Dexmethylphenidate (Focalin)
- Amphetamine-Dextroamphetamine (Adderall)
- Dextroamphetamine (Dexedrine, Dextrostat)
- Lisdexamfetamine (Vyvanse)
Side Effects
All stimulants have many potential side effects that include the following: fast, pounding, or uneven heartbeats; the feeling that one might pass out; fever, sore throat, and headache with a severe blistering, peeling, and red skin rash; aggression, restlessness, hallucinations, unusual behavior, or motor tics (muscle twitches); easy bruising, purple spots on the skin; dangerously high blood pressure (severe headache, blurred vision, buzzing in the ears, anxiety, confusion, chest pain, shortness of breath, uneven heartbeats, seizure; stomach pain, nausea, vomiting, loss of appetite; vision problems, dizziness, mild headache; sweating, mild skin rash; numbness, tingling, or cold feeling in hands or feet; nervous feeling, sleep problems (insomnia); weight loss; and others [6,7]. In fact, one type of stimulant drug, Pemoline (Cylert), had to be withdrawn from the market in 2005 because of repeated reports of liver failure [4].
Out of all the psychostimulants, methylphenidates are the most commonly prescribed [8]. A review of 10 different studies on the adverse effects of these drugs found that 31% of users reported dry mouth, 27% decreased appetite/anorexia, 18% moodiness, 22% jitteriness, 21% depression, 11% weight loss, and 12.5% reported vertigo. Furthermore, 7.4% had to drop out of the studies because of adverse effects that were too harsh [9]. It should also be noted there is a lack of research on the long-term effects of using these drugs [9]. Therefore, not much is understood about the chronic side effects of taking these drugs over a prolonged amount of time.
Drug Abuse
Perhaps the worst "side effect" of all is the abuse potential and addictive nature of these drugs. The U.S. Drug Enforcement Administration (DEA) classifies many of these psycholstimulants as schedule 2 drugs, which are substances with a large potential for misuse [10,11]. A review of studies that report the addictive effects of some of the most common stimulants prescribed for ADHD states, "[In] 10 out of 11 studies for which comparative data were reported, the reinforcing effects . . . were generally similar to those of cocaine and D-amphetamine" [12]. A recent study found that 40% of those with prescriptions misuse these drugs [13]. Another study reported on the different types of misuse within a clinical sample and found that 22% took too much of their prescribed stimulants, 10% used the stimulants to "get high," and 31% used their drugs with alcohol or other drugs [14].
Street Use
The most common "street uses" include partying, getting high, cramming for tests, improving concentration, enhancing alertness, and decreasing fatigue [15-17]. All the prescribed stimulants are abused, but Ritalin appears to be the most commonly abused [17]. One study found 13% of high school students, not just those prescribed Ritalin, had abused the drug [18], and 4% of all middle school students had abused Ritalin at some point in their lives [19]. Also about 1 out of 4 children and adolescents prescribed a stimulant will be solicited to sell, trade, or give away their medication [20]. The statistics are even scarier when the individual prescribed stimulant medication enters college. Approximately 54% of college students prescribed stimulants for ADHD have been solicited to divert their medication [21]. Essentially, the prescribing of these drugs is subjecting our youth to a drug dealer's role.
Click here to read the rest of this article
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Brag: The Driving Force - Shauya
by Prachi Sinha,
NACD Developmentalist in India
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Click the video above to watch Shaurya demonstrate his driving skills!
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You may have read earlier about Shauya Mehotra and his art in our newsletter. The latest feat for Shaurya is that he is driving a car! He may have Down syndrome, but he doesn't let it stand in his way. From the clutch and the accelerator to the steering wheel, he is working the whole shebang. As careful as he is, he often has to be prompted to go faster and hits on the brakes immediately when he sees the car accelerate too much. He prefers the meatier CRV to his mini. His aspirations for his own car have accelerated as well. From the modest Honda, he now aspires to drive a Lamborghini.
He has been inquiring aboutprices and wanted to see where a Ferrari stands on his money line. Obviously we needed a new wall. His free time goes into the upkeep of his collection of luxury toy cars. The batteries get charged or replaced, the screws get tightened and all thekinks are smoothedout. I remember when he first enrolled in NACD that I was introduced to him as the person whowould help him get a driver's license. He is now simply smarter. He has kept his end of the bargain; now I have to work towards finding a way to get him a license.
The feat is not just his to claim. His parents have been the driving force through his life. Cars may be his passion, but Shaurya has many varied interests in which he is as proficient as one can be. He loves photography and pottery. Three of his sculptures were displayed with other upcoming and some renowned artists at the Gurgaon art festival. Not everybody made that cut, but Shaurya did! The otherwise shy Shaurya is a media magnet. He has been featured in the local newspapers and talked about on radio. He may be a party animal, but he is very serious when it comes to work. His handmade cards, gifts, and wine bags are slowing gaining popularity. He hasn't just had the opportunity to learn but to teach as well. Twenty-two undergraduate students were impressed as he showed them how to emboss and create wonderful pieces of art.
Shaurya demonstrates his art skills for a group of college students
However we aren't done yet. He aspires to live independently with a friend. He also aspires to earn and buy his own car. He aspires to be one up on me someday with his pranks. He knows I won't be falling for them anytime soon.
Photos by Shaurya Mehrotra
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UPCOMING EVALUATIONS
March 2013
New Jersey/New York
St. George (Utah)
Dallas
Orlando
Atlanta
Ogden
India
Chicago
Minneapolis
April 2013
Philadelphia Dallas Phoenix Seattle Ogden India Cincinnati St. Louis
May 2013
Charlottesville, VA Dallas Bay Area, CA Philadelphia Ogden Los Angeles London, United Kingdom Bucharest, Romania
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NACD - The National Association for Child Development 549 25th Street - Ogden, UT 84401 801-621-8606
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