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NACD Newsletter - Volume 5, Issue 4 - April 2012
In this issue:- More on Brain Oxygen and Lung Health: Vital Capacity
- Kids Corner: Take a Journey in Costa Rica
- Brags I: Being an Evaluator for NACD
- Brags II: Sue Mayer - Special Needs Mom
- Product Highlight: NACD Speech App
- Upcoming Events
- Upcoming Evaluation Dates
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More on Brain Oxygen and Lung Health: Vital Capacity
by Steve Riggs, BS, RRT-NPS
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Vital capacity may not sound like a very exciting subject. However it is a very important subject and one that we address frequently at NACD. So it's worth your time to learn a little about what it is and why it is significant.
There is a lot of talk about vital capacity (VC) when we talk about what assists good oxygenation. What is vital capacity? When we talk about how much air our lungs can hold, we can say that the entire lung has a total capacity. Total Lung Capacity (TLC) is the amount of air our lungs can hold when completely full. If we blow all the air out of our lungs that we can, then we have some amount still there because our lungs are made never to be totally empty. We call the amount still left residual volume (RV) and the amount that we blew out vital capacity (VC). So our total lung capacity (TLC) equals our vital capacity (VC) plus our residual volume (RV). TLC = VC + RV. That's the scientific way it is written and talked about.
Why is this important to our health and the health of our children? If our lungs and chest are exercised and well inflated we can maintain our very important vital capacity. Keeping our vital capacity where it needs to be will maintain our oxygen levels; and improving our vital capacity certainly suggests that we can improve our oxygen levels. In most studies, athletes and mountain climbers have larger vital capacities than the average person. Larger vital capacities can help keep oxygen at levels where we have more oxygen available to the brain and body.
That all sounds good. But what does it mean for our health and in particular the health of people that have challenges? It definitely means two important things. First, that we can maintain and improve our oxygen availability to the brain, and second that we can keep our lungs open and functioning well enough to minimize the chances of having health problems. If we don't keep our lungs open and clear we can develop pneumonia, and small areas of our lungs tend to collapse (called micro-atelectasis) from not being properly inflated. When either of these takes place oxygen availability will decrease!
Remember:
- We know having good supplies of oxygen available to the brain helps us heal, process thoughts, and utilize the brain in ways that help us become more functional mentally and physically.
- We know keeping our lungs open and fit are great ways to maintain and improve oxygenation to the brain. We all need to practice breathing correctly and improve lung and chest muscle fitness.
- We know we need to have our oxygen levels as stable and consistent as possible. Exercising our lungs, staying as mobile as possible, and belly breathing help normalize our lungs' airflow.
For your convenience we stock breathing exercisers (Expand-A-Lung) in the NACD bookstore.
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This week in our Kids' Corner we have a roving correspondent's report on her travels to Costa Rica! Thanks to Isabella for sharing this experience with all of us. Isabella is a very successful student and studies at a French immersion school. We want to thank her for writing this article for us.
Take a Journey in Costa Rica
by: Isabella Eggen, age 11
Costa Rica is a lush and beautiful country. It has all the flora and fauna that you can imagine! It stays that way because of its environmental policy. In fact, Costa Rica's reputation as an eco-friendly environment has left it with perfectly clean beaches, unharmed wildlife, and protection of the environment. Costa Rica has seen its share of environmental problems, but it's constantly progressing environmentally to help in keeping the country clean, the environment healthy, and the people happy.
You can count on a beautiful day every day, even when it is raining! On sunny days, you can go surfing, swimming, hiking, cruising, zip-lining, and so much more!
On rainy days, you can go walking in the rain, because the rain in Costa Rica is a beautiful fresh rain. You can go on a frog and lizard pursuit, just don't be too surprised when you find one sitting in your shoes or taking a morning dip in your pool! If you visit Costa Rica you don't need an alarm clock, oh no, all you need is a couple of howler monkeys to wake you up at 6 in the morning! Other than the deafening sound of the howler, you can spot and hear hundreds of animals. You can see so many birds, insects, horses, cows and probably 50 types of species that you may have never heard of before! The fruits and vegetables are the best! From guanabanas to rambutans, your taste buds will definitely be tickled. The ocean is so clear you can easily mistake the ocean water for regular drinking water! On the beach you can find beautiful seashells everywhere, or you can watch the palm trees sway in rhythm with the wind. Costa Rica is a place where you can relax and forget about your troubles. It's a great place for adults who sometimes feel the need to pull out their hair. If that is the case, here is your prescription: wake up late, eat a hearty breakfast, do what pleases you, and from there just relax...(tough life!). With kids you can go horseback riding on the sandy beaches, look for exotic birds, learn to surf, take a raw foods class... the possibilities are endless! Just when you go there do not forget the most important two things to do...(remember this!): Have fun and take a huge deep breath in...and out...in...and out...repeat until you feel like you have revitalized. You will feel yourself change with the rainforest climate and the fresh salty sea air.
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Brag: Being an Evaluator for NACD
by Prachi Sinha, NACD India
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 We often tell you about kids who are doing well, strategies for doing program, and we try to write motivational pieces. This isn't one of those. This is about the bliss of being an evaluator. As a person who has implemented program and then become an evaluator, you would say I should be used to seeing the wonderful changes I see with the kids... but it never really gets old. Today's brag is about our wonderful job.
A phone call comes from a very hard working mom, and I just couldn't stop smiling. Her "so autistic" son had the day before spent two hours waiting in the crowd and cheering for a WWF wrestler. He just had to get his t- shirt signed and just had to see him up close. He was a true fan that day. That call made my day. He also made the decision to see the principal when his teachers could not save him from the bullies. When I think of this boy, what echoes to me is "what a change!"
During a coach call one day, I could hear one of my little ones with Down Syndrome scream and shout and call out to his mom. He was demanding to step out. I was so happy to hear him on his way to talking. Well done, my boy! Can't wait to hear him talk. At the eval he would not perform for me; but for the camera and at a little less than two he is already an expert on the iPad.
Another 5 year old little girl with Down Syndrome often leaves me speechless. Try and have a conversation with her and she will have answers to all your questions. I remember a remark from the principal of a school that she applied to once that left me filled with pride. When she was busy showing off all the colors, fruits, vegetables, animals she knew, her very observant principal said that "she is the most knowledgeable three year old I know." She is so filled with love for everyone and as the big sister she is more vigilant than the nanny for her younger sibling. She is already a perfectionist and a fashion diva. She lets her dad know when he isn't looking good.
I can think of countless more things that have made my journey as an evaluator very special. From a young man with autism whose first lied to get out from doing his studies to see one of the kids take his first independent steps at the NACD center (India). From being the recipient of the first ever kiss from a 5 years old boy with Down Syndrome to being asked for the first time for a deep hug from another with autism. At the center or at home, these "first times" make the job worth the effort. I eagerly wait for moms to tell me what new has been brewing. With the growth of the child grows my pride and confidence.
Every time I feel proud about one of my children, I cannot help but realize the importance of the implementation. The credit has to go to the parents. Their effort towards the program is what brings success, development, and pride to us. Always remember that the power to bring about the change is with you. We provide direction to you and the child brings in with the challenges, great amount of potential as well. In exchange for the direction we provide to you, you provide us the encouragement to go on. Your dedication translates to our passion and conviction. Don't just call your coaches with questions and concerns; choose a day to brag as well!
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Brag: Sue Mayer Special Needs Mom
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An Overview of NACD and
How They Work With Children With Down Syndrome
In my blog I often refer to Sam's home program through NACD, and his evaluator, Ellen Doman. Sam has been on program with NACD since he was 18 months old. I originally found out about NACD as I was researching Down syndrome and brain injury and I came across a letter that Bob Doman (the founder of NACD) had written to parents of Down syndrome children. Bob's letter spoke to me because it was the first time I heard anyone say that a child with Down syndrome has an unlimited potential. I often wondered how the medical professionals I had met when Sam was a baby could give me such bleak predictions of his future when we hadn't even tried to work with Sam. As I researched further I appreciated the fact that their programs were individualized to the child and their family situation. I knew early on that Sam was not just dealing with Down syndrome, he also had a brain injury and other medical issues related to his respiratory/immune system and I was already questioning his hearing. I really needed someone to help me with Sam from head to toe. With the help of this amazing organization Sam exceeded the medical professionals opinions by the time he was 3 years old and at that point my husband and I could finally focus on Sam's unlimited potential.
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Speech Therapy for Apraxia
NACD Home Speech Therapist
We've had a GREAT response to our new speech app!
- This app quickly became the #1 medical app when it was first released!
- Whether you're working on motor planning for speech (apraxia) or learning new speech sounds, this is a fun, useful tool!
- It's easy to use for either parents OR therapists.
- Kids love this!
Check it out on the app store:
For a limited time this app will be offered for only $4.99. That's half off the usual price of $9.99. So hurry, this offer won't last!
As with all of our apps, please rate it and write a review on the app store. We'd love to hear from you. Thank you!
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Ellen in New Jersey! June 5-11, 2012
If you are in the New York/New Jersey area, you'll be pleased to know that Ellen Doman will be holding evaluations in your "neck of the woods" in June.
Evaluations will be held in Parsippany, New Jersey and will be June 5-11. We expect these slots to fill up quickly, so call right away if you are interested in scheduling during this special event (610-738-8816).
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UPCOMING EVALUATIONS
May 2012
Philadelphia
Dallas
Ogden
India
St. Louis
Bay Area, CA
Atlanta
London
June 2012
Philadelphia
Los Angeles
New Jersey New Chapter!
Chicago
Orlando
Milwaukee
India
Dallas
Ogden
July 2012
Philadelphia Phoenix Seattle Charlottesville Cincinnati Ogden Dallas India
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NACD - The National Association for Child Development 549 25th Street - Ogden, UT 84401 801-621-8606
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