Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders |
May-June 2015
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Vol 6, Issue 3
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News
A newsletter for caregivers of loved ones with memory loss
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I've been suspecting for some time now that my husband has Alzheimer's - he never remembers anything I tell him, he doesn't like to read or watch TV any more, he sleeps a lot, and he can't seem to do things he used to do like yard work or keeping up the checkbook. But when I suggest going to have his memory tested, he gets angry and insists nothing's wrong. How do I get him to the doctor to have this checked? |
This is really tricky. Most folks who have a memory problem don't realize they're having a memory problem (or, as one caregiver put it, "How do you explain to someone who has a degenerative brain disease that he has a degenerative brain disease?"). It's understandable, when you think about it: they don't know they repeat themselves because they don't remember what they just said. They aren't good judges of their own behavior because their judgment center is impaired. And it's easier to blame it on something else ("this toaster is broken" or "this gas pump is too complicated") than to own up to the scary fact that he simply doesn't remember how to do it any more.
You are right that he needs to be checked by a medical professional. Start by making his primary care physician aware of your concerns. If he or she needs additional assistance they can refer to a dementia specialist at a Memory Disorders Clinic.
Because it's difficult to talk to the doctor in front of your husband, it's often helpful if you compile a list of things you've noticed (start with those you me ntioned in your question above). Focus on the things that indicate a change from his usual behavior: for instance, his sleeping during the day is more significant if he never used to do that until recently. Also try to include the frequency for each behavior, i.e., did he have trouble making coffee only once, or does it happen regularly? Then mail the list to the doctor prior to the appointment, with a letter explaining your concern and your husband's reluctance to be examined.
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There are several things you can try to get your husband to keep the appointment. First would be to make the appointment yourself (after you have already mailed your list). Say nothing about it until maybe the actual day, when you might invite him to accompany you on other errands, lunch, etc., and casually include a "visit to Dr. Jones." If he asks what it's for, you can simply answer, "I'm not sure, it's just been on the calendar for a while" or "I think he's just following up after that cold you had a few months ago." If he questions why you're going back to the examining room with him, just shrug and say, "I don't know, they told me to come too."
You might have to get creative. Some ideas could include:
* Saying that it's a requirement of your medical insurance or long-term care insurance, or perhaps just something that your kids wanted you to do.
* Sometimes it helps if he thinks you both have an appointment. It makes it less about HIM.
* If he's complained of something recently (pain in his arm, or an upset stomach), use that as your reason for getting him there. Most people are more receptive to being seen about some physical discomfort than about perceived memory problems.
* If it's a new doctor, say it's just a meet-and-greet formality, and you need to do it before the end of the year (or the month, or the quarter) so the insurance will cover it.
It may seem that you're being underhanded, or even a bit dishonest. But remember that this is about his health, and if there's something going on (whether it's Alzheimer's or something else), you want to know about it sooner rather than later so that you can figure out the best course of action. And if the idea of going to the doctor has upset him in the past, just realize that you are taking the kinder road by delaying or disguising the news.
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The ABCs of DEMENTIA
Conclusion
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Up to the present, dementia in all its forms has been viewed chiefly as a medical problem: that is, a pathological condition that is irreversible and progressive, for which there is no cure and little chance for improvement. We've written it off as actual failure of the brain - until research discovers that elusive cure, there's nothing to be done. But the paradigm is shifting. Although we are still years, even decades, from a cure for dementia, we are learning that there's a better approach to what we have traditionally thought - a perception that is based not wholly on what the brain has lost but on what it has retained. Rather than defining our view of the person by his or her illness, the experiential approach focuses on the person as an individual. Rather than trying to force them into being who they once were, we come to respect and honor where they are today. The experiential approach enhances quality of life for both the person living with the dementia as well as his family and caregivers. It is undeniably the way we would all wish to be treated. It is the future of dementia care.
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Y is for Yesterday
It's a common symptom: a person living with dementia forgets something they're told over and over, but can recount details of an event from fifty years ago. Short-term memory versus long-term memory, a hallmark of most forms of dementia. Why? Long-term memories were stored at a time when the person's brain was functioning at peak capacity. They're clear and strong, and the pathways to and from them are well-traveled. Short-term memories, on the other hand, haven't the advantage of being processed by a fully-functioning memory system. They tend to be weaker, perhaps only partial memories, and because of the damage to the infrastructure of the brain, more difficult to recall. So as the disease progresses and the present becomes fuzzier, those vivid past memories come front and center and simply overshadow the more fragile short-term ones - and as a result, yesterday often becomes more real than today.
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Zebras may on the surface appear to be the same, all of them with their iconic black-and-white markings. A herd of them can blurr one's vision. But if one looks closer, it turns out that they are all different, their own distinctive stripes being unique to each animal. Like snowflakes, there are no two that are alike. Based on their particular parentage, their upbringing, their herd, their species, their physical health, and their DNA, they are each one an individual. We make a critical error when we assume that because they may exhibit similar patterns as another, they are the same.
In addition, we are still learning about zebras and their markings. For instance, it was previously believed that zebras were white with black stripes. More recent evidence, however, shows it's the other way around. But how is this significant? What effect does this have on our traditional beliefs about this species? A wide variety of hypotheses have been proposed, but the bottom line is, there is still much we do not know.
Dementia, our understanding of it, and our attempts at treating it are going through a similar advancement. Earlier misconceptions are being replaced by new findings. Like peeling the layers off an onion, the more we learn, the more we have to learn. But one thing we do know for sure: each person who has this disease, who lives with the changes, challenges, and confusion each day, is a unique individual. He is not merely one of the herd of five million people who are also learning to live with dementia. He is a unique human being who is doing the best he can to live with a profound handicap. We must never fail to recognize this, and to honor and respect the individual in spite of his illness.
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| Johnny Morris is hiking the Appalachian Trail for MemoryCare! Here he is hitting the halfway point on May 8. He celebrated by eating an entire half gallon of ice cream! |
A Hike For A Cause
Johnny Morris, son of MemoryCare's founder Dr. Margaret Noel, left on March 2 to hike the 2,180 mile Appalachian Trail to raise both awareness about dementia and funds for MemoryCare. Click Here to read the Asheville Citizen article.
On May 8, Johnny reached the halfway point on the nearly 2200-mile journey. He and his hiking buddies marked the occasion in Pine Grove, PA, by taking the traditional Half Gallon Challenge: they each ate an entire half-gallon of ice cream!
WHERE'S JOHNNY NOW?
Click Here to follow him in more detail on MemoryCare's Facebook page!
When you make a donation to support Johnny's hike for MemoryCare, every dollar donated goes directly to the care and support of families facing the challenge of Alzheimer's disease and other cognitive disorders.
For more information, please contact Chad Conaty, Director of Development and Outreach, at conaty@memorycare.org
THANK YOU FOR YOUR SUPPORT!
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UPCOMING
EVENTS
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Save The Date for a Caregiver Workshop in Burnsville!
Thursday Afternoon, August 20
'Building a Bridge Over Troubled Waters - How to Connect
with a Memory-Impaired Person'
presented by
Mary Donnelly
MemoryCaregivers Network Coordinator
Burnsville Town Center
Burnsville, NC
sponsored by
For more information, contact Chad Conaty, Director of Development & Outreach, at 828.771.2219 or email conaty@memorycare.org
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ONGOING
PROGRAMS
Open to the Public
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MEMORYCAREGIVERS NETWORK
SUPPORT & EDUCATION GROUPS
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FLETCHER GROUP
First Tuesdays, 1:00-3:00 p.m.
Fletcher 7th Day Adventist Church
Howard Gap Road and Naples Road, Fletcher, N.C.
(just past Park Ridge Hospital)
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NEW HOPE GROUP
Third Tuesdays, 1:00-3:00 p.m.
New Hope Presbyterian Church
3070 Sweeten Creek Road, Asheville, N.C. 28803
(across from Givens Estates)
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WEAVERVILLE GROUP
Fourth Tuesdays, 1:00-3:00 p.m.
Weaverville First Baptist Church
63 N. Main, Weaverville, NC 28787
(North Buncombe County)
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There is no charge to attend any of the Network groups,
but donations are needed to keep this program going.
Contact Chad Conaty, Director of Development and Outreach, at conaty@memorycare.org,
For more information about the MemoryCaregivers Network, contact:
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Mary Donnelly
828.230.4143
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Pat Hilgendorf
828.645.9189
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"CAREGIVER COLLEGE"
MemoryCare's ongoing educational series for caregivers
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A series of 6 two-hour lectures will be provided for caregivers of persons with memory disorders. Sessions are designed to improve caregiver understanding of different aspects of dementia care. Related presentation materials will be provided.
Space is limited so please sign up via our office in advance.
There is no fee for caregivers enrolled in MemoryCare.
For all others, there is an $85.00 attendance fee for the course.
To register, call 828.771.2219.
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Course Content:
What Is Dementia?
Transitioning from Independence to Interdependence
Functional and Behavioral Changes of Dementia
Dementia Treatment Options & Risk Reduction
Maintaining Your Own Health
Dementia and Legal Planning Issues
The next series will be this Fall:
Every Tuesday, beginning October 13 through November 17
3:30 to 6pm
South College, 140 Sweeten Creek Road, Asheville Led by Margaret Noel, MD
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SCROLL DOWN

for MORE COMMUNITY EVENTS!
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Caregiver Network News is made possible by the charitable support of donors.
It is an auxiliary program of

Our Mission is three-fold:
To provide specialized medical care to older adults with cognitive impairment;
to support caregivers with education, counseling,and improved access to services; and to provide community education.
MemoryCare relies on charitable donations for operations.
Please consider MemoryCare in your estate planning.
Click this link to visit our website:
www.MemoryCare.org
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Do you need a program for a group event?
Public education is not only a part of the President's National Plan to Address Alzheimer's Disease, it's a part of MemoryCare's mission statement.
The MemoryCaregivers Network staff can provide speakers on a variety of subjects, including Recognizing Early Warning Signs of Memory Loss, Facts and Fiction about Dementia, Better Communication Techniques, and more.
or Chad Conaty, Director of Development & Outreach, at conaty@memorycare.org
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OTHER COMMUNITY PROGRAMS & EVENTS
(The following programs are not part of MemoryCare but help our community by serving those impacted by memory impairment. All are free and open to the public unless otherwise noted)
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SIDE BY SIDE SINGING -Come Sing with Us!
SUMMER SESSION
Biltmore United Methodist Church (Community Events Center)
376 Hendersonville Rd, Asheville
Wednesdays at 1:30pm
beginning July 15 through August 26
Mark your calendars!
Sessions are open to anyone open to experiencing the health benefits and FUN of singing in a group! You need not be an experienced singer or be able to read music to participate. The group welcomes those with memory loss and their caregivers. Singing lasts for one hour, and is followed by light refreshments.
All sessions are free.
For more information, email Ruthie Rosauer at ruthiesong@gmail.com,
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Caregiver Seminar
Living in this Maze Called Alzheimer's
The story of Bill and Laura Smutney who have been living with the challenges of dementia since Laura's diagnosis in 2012
presented by
Bill Smutney
Tuesday, June 16, 1:45 - 3:45pm
Pisgah Valley Retirement Community, Villa Dining Room
95 Holcombe Cove Road, Candler, NC
RSVP Arin, 418.2352 or AOliver@pisgahmanor.com
Thursday, June 18, 1:00 - 4:00pm
Mud Creek Baptist Church, Main Sanctuary
403 Rutledge Rd, Hendersonville
RSVP Patty, 682.1262 X 135 or patty@mudcreekchurch.org
Both programs are Free and Open to the Public
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Attention Gentlemen Caregivers!
The Men's Lunch Bunch is taking the summer off!
We'll let you know when it starts up again.
WATCH THIS SPACE for future announcements.
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Memory Loss Caregivers of East Buncombe
An education & support group for caregivers
sponsored by the
Highland Farms Residents' Corporation
Meets every second Tuesday
9:30-11:30 a.m.
Free and Open to the Public
Lounge Room 3 (lower level), J-K entrance of Brookside Building
Highland Farms Retirement Community, Black Mountain, NC
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For more information, contact:
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Mary Donnelly
828.230.4143
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Pat Hilgendorf
828.645.9189
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Area Support Groups for Persons Living With Memory Loss
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The New Hope Group
1:00-2:30 p.m. on the third Tuesday of each month
(meets concurrently with the MemoryCaregivers Network New Hope Group above)
Pre-Screening Required, contact Cannan Hyde, 828.357.8307 or cannanhyde@att.net
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The Biltmore Group
1:00-2:30 p.m. on the second Thursday of each month
Biltmore Methodist Church
376 Hendersonville Road Asheville, 28803 (Exit 50 off I-40)
Pre-Screening Required, contact Cannan Hyde, 828.357.8307 or cannanhyde@att.net
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The Highland Farms Group
9:30-11:30 a.m. on the second Tuesday of each month
(meets concurrently with the Memory Loss Caregivers of East Buncombe above)
Contact Mel Kelley, 828.301.0529 or avant_garden@msn.com
The Hendersonville Group
1:30-3:30 on the fourth Tuesday of each month
Mud Creek Baptist Church
Contact Patty Williams at 828.692.1262 or patty@mudcreekchurch.org
Initial screening required for all early-stage groups.
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Memory Cafes
A Social Gathering For Those with Memory Loss and their Friends & Families
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First Baptist Church, Asheville
Third Thursdays 1-3pm
5 Oak Street, Asheville, 28801
Calvary Episcopal Church, Fletcher
Third Saturdays 2-4pm
2940 Hendersonville Road, Fletcher 28732
Sylva First Baptist Church Fellowship Center
(collaboration with First Methodist, First Presbyterian, & St. John's Episcopal) Second Thursdays 10am-12pm 669 W. Main St, Sylva, 28779
828-452-2500 meltonann@att.net
Hendersonville First Baptist Church
Second Mondays, 1-3pm
Crosswalk Building, 577 Buncombe St, Hendersonville 28739
828-388-1421 vaelwell@yahoo.com
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Come for Fun, Relaxation, and Socializing in a Café-like Setting!
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"Happiness often sneaks in through a door
you didn't know you left open
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Caregiver Network News is written and edited by Mary Donnelly.
Contact network@memorycare.org for more information.
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