|
Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders |
|
March-April 2014 |
Vol 5, Issue 2 |
|
 | forget-me-nots |
|
|
|
|
News
A newsletter for caregivers of loved ones with memory loss |
|
My mom recently moved in with me and my husband. Her doctor said she has dementia and he gave her a prescription for Aricept. She is still communicative if spoken to, although she'd rather talk to the dogs than to us. She talks to them all the time and her face lights up. My question is, she has started wondering where my father is, when he's coming home from work, etc. He's been dead for ten years. She often sets a place for him at the dinner table. Do I tell her the truth when she's looking for him, or just let her wonder?
Yours is a two-part question.
Let's look first at your mother's interest in talking to the dogs. Although she may have a particular affinity for dogs, there's probably another more compelling reason that she's drawn to do this: dogs don't talk back! 
Dementia nearly always affects a person's language center, so that they begin to have difficulty with words - finding and expressing them, understanding them, and processing their meaning. Imagine if every time someone spoke to you, you picked up only half of what they said. It would make it pretty challenging to follow their conversation, wouldn't it? In addition, if every time you spoke to someone they corrected you, or asked you to clarify what you meant, or finished your sentence for you, you'd probably become frustrated and just stop talking. This is what it's often like for your mother to carry on a conversation with you and your family. But consider what happens when she talks to the dogs: they accept what she says, they don't pelt her with questions, they don't disagree or argue with her, they don't ask her to do something she doesn't understand - in short, they make absolutely no demands on her at all! After a long day of doing her best to follow all those words with her impaired language center, it must be very refreshing to be able to say whatever she likes to someone who simply listens!
Dogs aren't the only good listeners out there. Some families who don't have pets have found that their loved ones respond to a repeating parrot. This is a battery-operated toy available online (Pete the Repeating Parrot is one that's recommended on the Alzheimer's Reading Room blog) that simply repeats back whatever it hears. For some, it's just a fun thing to do, but for others who may have more severe loss of language, it can often help them regain some of their lost speech. You may think it's silly, but I'm guessing your mother would love it! It may or may not improve her conversational skills, but it would very likely make her laugh, and that's worth more than the purchase price!
|
Now on to your second question: Should you tell Mom that her husband is dead?
Maybe the better question might be, How does Mom react when you tell her that her husband has died?
As your mother's dementia progresses, she may relate less to the present time and live more in her past. This happens for many people with dementia - this is because our older memories tend to be stronger than our newer ones. The last memories to be stored are most often the first ones to be lost. In your mother's past, she would have had a husband who came home at the end of his work day and would want his dinner - and these memories can be triggered when the kitchen is bustling, dinner smells are coming from the stove, the table is being set, the sun is going down. Is it any wonder, then, that she's looking for him?
People with dementia may remember an important event, retain only some of it, or forget it entirely. Some may occasionally ask about it; for example, "Did Fred die?" Others may be too emotionally sensitive to cope with the news. Although we consider it respectful to be honest with our loved ones, we must also be respectful of their feelings, especially when they simply may not be able to understand. So if the truth is painful or repeatedly distressing for someone, it's usually best to let it go.
However, this doesn't necessarily mean that you should avoid the subject entirely. It is often comforting to a person with dementia to talk about someone or something that they miss. Asking them to share what's on their mind can help alleviate feelings of grief or loss, and turn a potentially upsetting incident into a time of pleasant storytelling.

So the next time your mother wonders where her husband is, you might encourage her to talk about him...without insisting that she face the truth about his death. By so doing, you are allowing her to be wherever her mind is comfortable at that moment and to enjoy whatever memories she still has. You can smile, put your arm around her as she's setting that extra place, and say, "Yes, Mom, Dad always enjoys his dinner, doesn't he? What's his favorite meal?" Then enjoy a minute or two of reminiscing with her before asking her to put the napkins out.
send your caregiving questions to network@memorycare.org
|

Dementia has taken its toll on former North Carolina coach Dean Smith, but family and devoted friends stand by the beloved coach.
Click Here to read the ESPN article by Tommy Tomlinson.
|
A is for Alzheimer's -
Alzheimer's Disease accounts for 60-70% of memory disorders, and is the one we hear about the most. It can occur at any age, but when it occurs prior to age 65, it is considered to be Early-Onset Alzheimer's, which studies suggest may progress more quickly than if symptoms begin later in life. Especially in its early stages, Alzheimer's can often be misdiagnosed as depression, hormonal imbalance, or a vitamin or thyroid deficiency. Alzheimer's is characterized by loss of short-term memory, confusion, difficulty with words, changes in behavior and/or personality, and making poor judgment decisions. There is no cure although research is ongoing.
|
Memory disorders, such as Alzheimer's, cause physical changes to the brain, which in turn cause a loss of brain function. The disease typically begins in the thimble-sized hippocampus, where new memories are processed - making short-term memory loss one of the earliest noticeable symptoms. The disease targets the brain's nerve cells as well as the synapses that help the cells communicate, disrupting or destroying everything from how we taste to how we think. Different parts of the brain handle different functions, so a person's symptoms will depend on what parts of the brain have been affected; this would explain why someone may have difficulty finding words, yet can reel off three verses of Amazing Grace.
|
Change is the hallmark of a memory disorder: perplexing changes in the person with the disease, difficult changes for his family and friends, and ongoing changes as the disease progresses. These are changes that we can't control - but others we can. In recognizing a loved one's limitations, we change our expectations of what that person is able to do. In understanding how the disease progresses, we change our daily routines. In accepting the "new normal" of living with memory loss, we change how we make the journey. And perhaps most important, by being open with our families and friends, and helping to educate those with no understanding, we can change how we, as a society, perceive this disease. Changing our attitude changes everything.
|
We are a long way from being able to diagnose dementia before its symptoms appear, but current research efforts are getting us closer. At this time, there is no imaging scan or blood test that can reliably diagnose the disease. Many other issues exist that may cause similar symptoms, so it is important to rule out treatable conditions such as depression, tumors, or chemical imbalances that can cause memory loss or confusion. The best place to start should be with your primary care physician. If you are concerned about your own mental failings, tell your doctor. If you are worried about a loved one, write down your concerns and send them to the doctor before the appointment; don't wait until all three of you are in the room together to voice your observations. If the doctor determines that this is cause for concern, he will refer you to a specialist (probably a neurologist, geriatrician, or geriatric psychiatrist) for further testing.
Some people ask, "If there's no cure, why get a diagnosis?" It's true that we can't cure the disease, but we have treatments and medications available that can often slow down and/or reduce symptoms. Even more important, learning ways to manage the disease can make all the difference in the quality of life for all concerned. Education and support for the patient as well as the family is the best treatment going - and the sooner you get started, the better.
(The ABCs of Dementia will be continued next issue)
|
"Side by Side Singing" is Back!
|
"Travelin' along, singin' a song,
Side by Side"
Side by Side Singing
offers a positive musical and social experience for persons with mild to moderate cognitive impairment and their care-partners.
Lead by Debbie Nordeen and Ruthie Rosauer, each session will begin with musical ice-breakers, followed by singing of rounds and well-known songs, and will end with a social time.
Wednesdays from April 2 - May 7, 2014 1:00-2:15pm UNCA's Sherrill Center Meditation Room, main floor
There is no charge to participate
or Sponsored by N. C. Center for Health & Wellness
|
_____________________________________________________________________________________
LBGT Caregiver Education Forum
Rights and Supports: Finding AnswersWednesday, April 16, 2014 4:00 - 6:30pm Land of Sky Regional Council Office 339 New Leicester Hwy, Asheville, NC 28806
There is NO COST to attend, but registration required by April 11.
To register, contact kdmoore@alz.org 800.272.3900
Sponsored by Alzheimer's Association and LGBT Elder Advocates of WNC
|
_____________________________________________________________________________________
Save the Date!
2nd Annual
SACRED JOURNEY OF DEMENTIA CONFERENCE
Saturday, June 7, 2014
9:00am - 4:00pm
First Baptist Church, Asheville
Speakers:
Dr. Virginia Templeton of MemoryCare
Mahan Siler
Details available soon!
|
CAREGIVER CALENDAR |
MEMORYCAREGIVERS NETWORK
SUPPORT & EDUCATION GROUPS
* Open to the Public *
There is no charge to attend, but donations are always needed to keep our program going!
|
FLETCHER GROUP
First Tuesdays, 1:00-3:00 p.m.
Fletcher 7th Day Adventist Church
Howard Gap Road and Naples Road, Fletcher, N.C.
(just past Park Ridge Hospital)
|
NEW HOPE GROUP
Third Tuesdays, 1:00-3:00 p.m.
New Hope Presbyterian Church
3070 Sweeten Creek Road, Asheville, N.C. 28803
(across from Givens Estates)
|
WEAVERVILLE GROUP
Fourth Tuesdays, 1:00-3:00 p.m.
Weaverville First Baptist Church
63 N. Main, Weaverville, NC 28787
(North Buncombe County)
|
For more information on any of the above groups, contact:
|
Mary Donnelly
828.230.4143
|
Pat Hilgendorf
828.645.9189
|
|
"CAREGIVER COLLEGE"
MemoryCare's educational series for caregivers, offered quarterly
|
A series of 6 two-hour lectures for caregivers of persons with memory disorders. Sessions are designed to improve caregiver understanding of different aspects of dementia care. The instructor for the course will be a staff member of the MemoryCare team. Slides and handouts will be available Space is limited, please register in advance. There is no fee for caregivers enrolled in MemoryCare and for others, attendance is $65.00. |
Course Content:
What Is Dementia?
Transitioning from Independence to Interdependence
Functional and Behaviorial Changes of Dementia
Dementia Treatment Options
Maintaining Your Own Health
Conclusions/Guest Speakers |
Asheville Class: March 25 - April 29, 2014
Dr. Margaret Noel, Instructor
4:00-6:00pm every Tuesday for six weeks
New Location!
Mission Health, 1 Hospital Drive, Room 5206
(free parking in adjacent deck)
Waynesville Class May 13 - June 17, 2014
Dr. Lisa Verges, Instructor
4:00-6:00pm every Tuesday for six weeks
Haywood County Senior Resource Center 81 Elmwood Way, Waynesville
For more information or to register,
|
OTHER COMMUNITY SUPPORT GROUPS:
|
Memory Loss Caregivers of East Buncombe
An education & support group
sponsored by the
Highland Farms Residents' Corporation
Meets every second Tuesday
9:30-11:30 a.m.
Lounge Room 3 (lower level)
J-K entrance of Brookside Building
Highland Farms Retirement Community, Black Mountain, NC
* Free and Open to the Public *
|
For more information, contact:
|
Mary Donnelly
828.230.4143
|
Pat Hilgendorf
828.230.4143
|
Early Memory Loss Collaborative
Three Support Groups for persons with early-stage memory loss
facilitated by Jane Sherman and Mel Kelley
|
The New Hope Group
1:00-3:00 p.m. on the third Tuesday of each month
(meets concurrently with the MemoryCaregivers Network New Hope Group above)
|
The Biltmore Group
1:00-3:00 p.m. on the second Thursday of each month
Biltmore Methodist Church
376 Hendersonville Road Asheville, 28803
(Exit 50 off I-40)
|
The Highland Farms Group
9:30-11:30 a.m. on the second Tuesday of each month
(meets concurrently with the Memory Loss Caregivers of East Buncombe above)
NEW!
The Hendersonville Group
1:30-3:30 on the fourth Tuesday of each month Mud Creek Baptist Church Contact Patty Williams at 828.692.1262 or patty@mudcreekchurch.org
Initial screening required for all early-stage groups.
For more information, contact Jane Sherman, 845.641.4680, or
|
OTHER COMMUNITY RESOURCES: |
Memory Cafes
For Those with Memory Loss and their Friends & Families
|
First Baptist Church, Asheville Third Thursdays 1-3pm 5 Oak Street, Asheville, 28801 828-252-4781
Calvary Episcopal Church, Fletcher
Third Saturdays 2-4pm
2940 Hendersonville Road, Fletcher 28732
828-684-6266
Unitarian Universalist Congrergation of Asheville First Wednesdays 2-4pm Charlotte Street and Edwin Place, Asheville 28801 828-254-6001 Sylva First Baptist Church Fellowship Center (collaboration with First Methodist, First Presbyterian, & St. John's Episcopal) Second Thursdays 10am-12pm 669 W. Main St, Sylva, 28779
828-452-2500 meltonann@att.net
Hendersonville First Baptist ChurchSecond Mondays, 1-3pm Crosswalk Building, 577 Buncombe St, Hendersonville 28739 828-388-1421 vaelwell@yahoo.com* All Memory Cafes Are Free and Open to the Public *
|
Come for Fun, Relaxation, and Socializing in a Café-like Setting! |
"Sometimes the questions are complicated and the answers are simple."
|
Need a Speaker?
|

Do you need a program for a group event?
Public education is not only a part of the President's National Plan to Address Alzheimer's Disease, it's a part of MemoryCare's mission statement.
The MemoryCaregivers Network staff can provide speakers on a variety of subjects, including Recognizing Early Warning Signs of Memory Loss, Facts and Fiction about Dementia, Better Communication Techniques, and more.
Contact us at network@memorycare.org for more information.
|
Caregiver Network News is written and edited by Mary Donnelly.
Contact network@memorycare.org for more information.
Caregiver Network News archives to read previous issues.
___________________________________________________________________________________

Our Missions is three-fold:
To provide specialized medical care
to older adults with cognitive impairment;
To support caregivers with education, counseling,
and improved access to services;
And to provide community education.
MemoryCare relies on charitable donations for operations.
Please consider MemoryCare in your estate planning.
Visit our website by clicking here:
www.MemoryCare.org
__________________________________________________________________
|
|
|
|
|
|
|