Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders |
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November-December 2013
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Vol 4, Issue 6
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 | Forget-Me-Nots |
forget-me-nots
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Caregiver
Network
News
A newsletter for caregivers of loved ones with memory loss
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GIVING THE BEST PRESENCE
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(This is a reprint of an article from the December 2012 issue of CNN)
No, that's not a misprint in the title.
'Tis the season for giving presents. Holiday shopping ads, Black Friday sales, and longer store hours send us the yearly message that everything we want is in a store somewhere.
But sometimes the best thing you can give may be something you can't find in a store: the gift of yourself.
Chances are that someone on your gift list is living with memory loss - a parent or grandparent, a friend or neighbor. Many of them are losing more than just memories: some of them may have had to give up their homes, or stop driving their cars, or drop out of activities in which they can no longer participate. It's often difficult to understand what to give to persons in these situations. An apron for Grandma, a tie for Grandpa, a book about sailboats for a weekend boater? While these might have been thoughtful and appreciated in the recipient's earlier years, they may not be as appropriate now, and can sometimes even serve as a sad reminder of what once was. What we need to keep in mind - what people who live with the disease have clearly told us - is that they don't want a bunch of new gee-gaws or the latest gadgets. They want human connection - meaningful, one-on-one, in-the-moment time with a loved one. It's not as easy as it sounds. We live in a fast-paced society, and it seems to speed up during the holiday season. We are busy, rushed, in a hurry. There's lots of hustle and bustle, more coming and going, constant decorating and wrapping, extra noise and little quiet. All of this is stressful for a person with memory loss. So in the midst of all this hubbub, look for deliberate ways to slow down with your loved one: a stroll down a quiet street, a leisurely chat about what's on their mind at the moment, an hour or so working on a puzzle or listening to familiar holiday music, a companionable cup of tea and a cookie while watching the birds on the feeder - each of these could serve as an oasis of calm in a sea of confusion. Conversation is nice but not required. The goal is simply to be alongside. The benefits of Being Present aren't limited to those with the disease. Caregivers are feeling the same stress as everyone else this time of year, and a couple of hours of quiet time would go a long way towards helping them cope with the demands of the season. A few caring questions ("How has this been for you?" "What's the hardest thing you're dealing with now?") over lunch would be sweeter than dessert, and have a lot less calories! This is not to say that there are no good gifts for those living with the challenges of memory loss. Quite the contrary. But do not underestimate the value of your undivided attention. Your presence could very well be the best present your loved one receives. "Wherever you are, be all there."
- Jim Elliot
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THESE ARE a FEW
of my FAVORITE THINGS...
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For those of us who are deeply forgetful...
We may not remember everyone's name at the holiday table...
We may no longer remember the recipe for the family's traditional sweet potato pie...
But we do remember what it feels like to be part of a family -
to be loved and to love.
We remember the smells and the taste and the feel of the holidays.
We remember these things not with our minds, but in our hearts and in our souls.
-adapted from Karen Brenner
Maybe this holiday season would be a good time to start feeding your loved one's heart and soul with some of her favorite things, the simple pleasures that she remembers from long ago. Remember when you were a child and all the simple pleasures you enjoyed: watching ants scurrying to and fro, lying on your back and looking at the clouds, walking barefoot in the grass, eating ice cream, playing "He Loves Me" with a daisy, picking up fall leaves, singing out loud, stroking a soft kitten.
Simple pleasures work well for a person with dementia, because they aren't threatening or intimidating. They don't require the person to answer a question. They are easy and familiar, safe and reassuring. They engage the memory of the heart rather than the memory of the mind. And they often fulfill that most basic of needs - human contact.
You may need to make a few adjustments to some of the items from your childhood list. Maybe she can no longer walk barefoot through the grass, but she can enjoy a foot rub. Maybe she can't lie on the ground any more but she can still look at the sky, at the trees, at the snow falling, at the birds and the squirrels on the feeders if you point them out to her. Maybe she can't stoop down to gather leaves and pebbles and acorns, but she can enjoy the feel and smell of them if you bring them to her. She can still enjoy having her hair brushed, or someone rubbing lotion gently on her hands. She can still enjoy the smell of a candle or the taste of home-baked bread and butter. She can still enjoy singing songs she knew many years ago. And she can still enjoy the warmth of a smile and a hug.
The simple pleasures - put some in her life every day, all year round, to show her that she is still loved.
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REMINDER!
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Due to the fourth Tuesday
falling on Christmas Eve this year,
the WEAVERVILLE GROUP of the
MemoryCaregivers Network will meet instead
on Tuesday, December 10, 1-3pm.
We will resume our regular schedule in January.
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CAREGIVER CALENDAR
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"MEMORYCAREGIVERS NETWORK" SUPPORT & EDUCATION
* Open to the Public *
There is no charge,
but your designated donations will help keep this valuable service going!
FLETCHER GROUP First Tuesdays, 1:00-3:00 p.m. Fletcher 7th Day Adventist Church Howard Gap Road and Naples Road, Fletcher, N.C. (just past Park Ridge Hospital) NEW HOPE GROUP Third Tuesdays, 1:00-3:00 p.m.
New Hope Presbyterian Church
3070 Sweeten Creek Road, Asheville, N.C. 28803 (across from Givens Estates) WEAVERVILLE GROUP Fourth Tuesdays, 1:00-3:00 p.m. Weaverville First Baptist Church 63 N. Main, Weaverville, NC 28787 (North Buncombe County) Note: Meeting Time Change for December! Due to the fourth Tuesday falling on Christmas Eve, the Weaverville group will meet on Tuesday, December 10, same time and place as usual
For more information on any of the above groups, contact:
Mary Donnelly Pat Hilgendorf
828.230.4143 828.645.9189
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"CAREGIVER COLLEGE" MemoryCare's Family Caregiver Education Program Offered in Buncombe and Haywood Counties Spring 2014
A series of 6 two-hour lectures for caregivers of persons with memory disorders. Sessions are designed to improve caregiver understanding of different aspects of dementia care. The instructor for the course will be a staff member of the MemoryCare team. Slides and handouts will be available. Space is limited, please register in advance. There is no fee for caregivers actively enrolled in MemoryCare.
Course Content:
What Is Dementia?
Transitioning from Independence to Interdependence
Functional and Behavioral Changes of Dementia
Dementia Treatment Options and Risk Reduction
Maintaining Your Own Health
Dementia and Legal Planning Issues
Asheville/Buncombe Program
March 25 - April 29, 2014
Cost: $85 (free to caregivers of those actively enrolled in MemoryCare)
4:00 - 6:00 pm every Tuesday for six sessions
New Location: Mission Health, 1 Hospital Drive, Asheville
5th Floor, Room 5206
Waynesville/Haywood Program
March 11 - April 15, 2014
Cost: $85 (free to caregivers of those actively enrolled in MemoryCare)
4:00 - 6:00 pm every Tuesday for six sessions
Haywood County Senior Resource Center, 81 Elmwood Way, Waynesville
For more information or to register,
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OTHER COMMUNITY SUPPORT GROUPS:
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Memory Loss Caregivers of East Buncombe
An education & support group
sponsored by the
Highland Farms Residents' Corporation
Meets every second Tuesday
9:30-11:30 a.m.
Lounge Room 3 (lower level)
J-K entrance of Brookside Building
Highland Farms Retirement Community, Black Mountain, NC
* Free and Open to the Public *
For more information, contact:
Mary Donnelly Pat Hilgendorf
828.230.4143 828.645.9189
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Early Memory Loss Collaborative
Support Groups for persons with early-stage memory loss
facilitated by Jane Sherman and Mel Kelley
The New Hope Group
1-3 p.m. on the third Tuesday of each month
(meets concurrently with the MemoryCaregivers Network New Hope Group above)
The Biltmore Group
1-3 p.m. on the second Thursday of each month
Biltmore Methodist Church
376 Hendersonville Road Asheville, 28803
(Exit 50 off I-40)
The Highland Farms Group
9:30-11:30 a.m. on the second Tuesday of each month
(meets concurrently with the Memory Loss Caregivers of East Buncombe above)
Initial screening required for all early-stage groups.
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OTHER COMMUNITY RESOURCES:
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Memory Cafes For Those with Memory Loss and their Friends & Families First Baptist Church, Asheville Third Thursdays 1-3pm 5 Oak Street, Asheville, 28801 828-252-4781 lbrown@fbca.net Calvary Episcopal Church, Fletcher Third Saturdays 2-4pm 2940 Hendersonville Road, Fletcher 28732 828-684-6266 bettyrobbins@morrisbb.net
Unitarian Universalist Congrergation of Asheville First Wednesdays 2-4pm Charlotte Street and Edwin Place, Asheville 28801 828-254-6001 asstminister@uuasheville.org
Senior Resource Center of Haywood County First Mondays, 1-3 pm 81 Elmwood Way, Waynesville 28786 828-452-2370 shendrix@mountainprojects.org
First Baptist Church, Hendersonville Second Mondays, 1-3 pm Crosswalk Building, 577 Buncombe St, Hendersonville 28739 828-489-6150
* Free and Open to the Public * Come for Fun, Relaxation, and Socializing in a Café-like Setting!
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NOTABLE QUOTABLE
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 "Though one can't always remember exactly why one has been happy, there is no forgetting that one was." - W. H. Auden |
Need a Speaker?
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Do you need a program for a group event?
Public education is not only a part of the President's National Plan to Address Alzheimer's Disease, it's a part of MemoryCare's mission statement.
The MemoryCaregivers Network staff can provide speakers on a variety of subjects, including Recognizing Early Warning Signs of Memory Loss, Facts and Fiction about Dementia, Better Communication Techniques, and more.
Contact us at network@memorycare.org for more information.
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