forgetmenots 
 
 
Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders
July-August 2013

Vol 4, Issue 4 

 

forgetmenots
Forget-Me-Nots
                                  forget-me-nots
 
  
 Caregiver
 Network
 News

 A newsletter for

caregivers of loved ones

with memory loss





 

 

 

CAREGIVERS ASK....
 

 taking a shower

My husband absolutely refuses to shower!  I've nagged him, I've  refused to sleep with him, I've told him it's doctors orders, but nothing works.  I've offered to help, but that just makes him mad.  He claims he's already showered but I know he hasn't.  I've tried to just let it go and not get upset, but I'm embarrassed because he smells.  Help!

 

 

Nobody knows for sure why bathing seems to be such a problem for many persons with memory loss, but it is certainly a common challenge for caregivers.  Maybe the person is afraid of the water?  Maybe he doesn't like the shower spray hitting him in the face?  Maybe he's unsure about how to turn on the faucet?  Maybe he doesn't like the mirrors in the bathroom?  There could be a hundred reasons why all of a sudden your husband has stopped bathing.  And although nobody ever died just from being dirty, it's still a health problem as well as a social one.

 

It sounds as if you've tried lots of the usual solutions, to no avail.  It might now be time to call in the troops.  It's hard to understand, but many times a person with dementia will do for a stranger what they won't do for the person closest to them.  We have seen countless situations where a caregiver has tried over and over again to get their spouse to bathe, only to stand by in amazement when a home health aide gets it done with little to no resistance!   

 

The advantage of having someone else come to your home to take charge of hygiene is obvious:  THEY become the heavy, not you.  Caring for a person with dementia is hard enough when things are going smoothly - there's no need for you to continue battling with your husband over this issue when you can delegate it to someone else. 

 

Contact at least two home health agencies in your area (ask your friends or local support groups for referrals) and let them send someone to your home to assess your situation.  Disclose right up front what the problem is, and what you expect from their services.  Emphasize that they will be working with a person with dementia.  A reputable agency will have had experience in this area and will know how to proceed.  You should probably not tell your husband about the arrangements until just before the aide is scheduled to arrive, so that he doesn't have a lot of time to worry or become resistant.  See what the agency suggests about introducing the person to your husband.  And although you've already used the "doctor's orders" excuse before, it stands a better chance of working when someone other than you brings it up.

 

Be aware that most agencies require a minimum amount of time to send an aide to your home.  So if the shower process takes only 30 minutes and you're paying for two hours, have some other ideas in place to fill the remainder of the time - for instance, if your husband likes to garden, the aide might accompany him to the potting shed or help him with the weeding or trimming.  If he likes to talk about his Army experiences, have a scrapbook or album handy that the aide can ask about.  Be sure the aide knows in advance about things they can do together, such as feeding the birds or working a jigsaw puzzle - don't leave it up to your husband to make the suggestion.  And never underestimate the power of positive reinforcement:  after the shower is finished might be a great time for the two of them to share some ice cream or other favorite treat. This way, the visit from the aide quickly becomes more about the things he likes to do, and less about the shower.  

 

It's difficult to think that you need to hire someone to help with something as simple as bathing, but as someone once said, desperate times call for desperate measures.   Don't get misled by thinking, "Oh, my husband will never go for having a stranger help him shower!"  If it wasn't a common solution, there wouldn't be so many agencies out there offering the service!   Give it a try; you can always cancel if it doesn't work out, but on the positive side, you stand a very good chance of getting your clean, nice-smelling husband back!

 

 taking a shower singing 

     

 

For more information on bathing and dementia, Click here

to read "How to Get an Alzheimer's Patient to Take a Bath" by Carole Larkin.

 

 

 

 

(send your caregiving questions to network@memorycare.org
 

 

     

 Inside Alzheimer's

  

 

Alzheimer's could never be called good. 

Like Hurricane Katrina, or 9/11, or a tornado, or an earthquake, Alzheimer's could not be wished on anyone. 

Yet out of it can come a joy that has taken me by surprise.

  

So writes Dr. David Hilfiker - physician, lecturer, teacher, and Alzheimer's patient. 

 

In his ongoing blog, "Watching the Lights Go Out - A Memoir from Inside Alzheimer's Disease," David shares with his readers his moving and sometimes unusual views about living with Alzheimer's. 

 

Here is how he describes his journey:

 

In September of 2012 I was diagnosed with Alzheimer's disease. This blog is the story of my day-to-day life with this illness and my reflections upon it. We tend to be scared of Alzheimer's or embarrassed by it. We see it as the end of life rather than a phase of life with all its attendant opportunities for growth, learning, and relationships. We see only the suffering and miss the joy. We experience only the disappearing cognitive abilities and ignore the beautiful things that can appear.
  

I will not sugarcoat my experiences, however. I wish I did not have Alzheimer's and would sacrifice a lot to be rid of it. But that's not one of the possibilities. So I will welcome this period of my life. Paradoxically it has so far been one of the happiest periods in my life.
 

 

To read David's blog, click here
The excerpt above was from his posting on July 6, 2013, entitled "A Paradise Built in Hell." 
  
candle flame 

 
 

  
   
UPCOMING EVENTS 
  
  
  
 *** Caregiver Workshop in Burnsville ***
 
  Dr Kal
Traveling the Journey of Memory Loss
  • Adult Health and Memory Screening (12:30-1:30)
  • Video:  "A Family's Journey"
  • Presentation:  "On the Road to Alzheimer's Disease Prevention & Cure by 2025 - Are We There Yet?" by Burnsville resident and MemoryCare physician Dr. Tom Kaluzynski
  • Live staged reading:  "Steering into the Skid"
  • Question and Answer session
  
Thursday, August 15
2:00 - 4:00 PM (Screening Session 12:30-1:30)
Burnsville Town Center
6 South Main Street
  
Free and open to the public, no registration required
  
For more information, please call the MemoryCare office at 828.771.2219
or visit our website at www.memorycare.org  
___________ 
  
*** Caregiver Workshop ***
  
 Caregivers Need to be Cared For Too -
Caring for the Caregiver
  
Dr Paulapresented by
Paula Hartman-Stein, Ph.D.
nationally-known clinical geropsychologist
  
This interactive workshop will focus on coping strategies that include physical, emotional, and spiritual elements. Participants will learn practical ways to prevent or reduce depression and emotional overload, and enhance quality of life for both the carer and care recipient.
  
  
Thursday, August 29, 2013
2:00 - 4:30 pm  
First Baptist Church
5 Oak Street, Downtown Asheville
  
  
Free and open to the public.  Registration is required. 
To register, please call 828.274.4801 (when you hear the "Cisco" message, enter extension 2249).
  
Sponsored by
MCLogo 
 ___________
 
  
  
*** Caregiver  Education ***
  
Recognizing Early Warning Signs of Memory Loss*
  
presented by
Mary Donnelly
Caregiver Network Coordinator with MemoryCare
  
  
     Saturday, September 14, 2013
2:00 - 4:00 p.m.
  
  
Etowah United Methodist Church
110 Brickyard Road
Etowah, NC  28729
  
Please pre-register:
Register online at www.etowahumc.org under Upcoming Events;
Call the church at 828.891.4360
  
Hosted by the Stephen Ministry of Etowah United Methodist Church
  
  * The content of this presentation is intended for caregivers, families, and others who want to learn more about memory loss.  However, some of the information may be difficult or upsetting for persons who have been diagnosed with the disease.  Please use discretion in deciding whether to bring your loved one with you to this program.
  
___________
  
   
  SAVE THE DATE! 
  
back by popular demand

John Denver
 
The Music of John Denver
by Tom Donnelly and Friends
featuring
award-winning guitarist Robin Bullock
and
the Carolina Day School 5th Grade Choir
  _________________________________
  
A special encore performance!
New and Improved, even better than it was in 2010!
Don't Miss It!
  _________________________________
  
Sunday, November 10, 2013
3:00 p.m.
Diana Wortham Theatre, Downtown Asheville
  
  
  A Benefit for the MemoryCaregivers Network   
  
  
 
Watch this space for more details!!
  
  
____________ 
  
  
  

 

SLIP of the TONGUE

 

 man with tape over mouth

Oops!  You know there are certain "buzzwords" that you should try to avoid when talking to someone with memory loss....but they just slip out before you can stop them!    That's OK, it takes practice to revamp your vocabulary. 

You can start with these:

 

 

STOP SAYING:

"Don't you remember when we....??? 

     SAY INSTEAD:

"I remember when we...."

 

     STOP SAYING: 

"Why don't you want to take a shower?"     

     SAY INSTEAD:

"What bothers you about taking a shower?" 

 

      STOP SAYING:

"Do you know my name?"

      SAY INSTEAD:

"My name is Suzy" or "I'm your wife Joan.  I'm so glad to see you today."

 

       STOP SAYING:

"Do you want to go to.....?"

      SAY INSTEAD:

"Let's go to ...." or "Today's the day we go to..."

 

       STOP SAYING:

"What are you reading/doing/watching?"

       SAY INSTEAD:

"Are you enjoying that?" or "Is this a good book/program?"

 

        

  

  

gossip

 

 

THEY

 

SAID

 

 WHAT??????

 

 

There's a rumor going 'round that JUST AIN'T SO!

 

pointing hand You do NOT have to be enrolled in MemoryCare, nor do you need to have a doctor's referral, to attend the MemoryCaregivers Network Support and Education Groups

 

All of the groups are OPEN TO THE PUBLIC at any time,

and they're free!

(although we welcome your donations to help us continue!) 

 

If you or anyone you know is struggling with the challenges of caring for a person with memory loss, don't wait!  There's a MemoryCaregivers Network group meeting nearly every week where you can find the help, education, and support you need.

 

(see complete schedule in Caregiver Calendar below) 

______________________ 

calendar 

  

CAREGIVER CALENDAR

 

 


 
                         
"MEMORYCAREGIVERS NETWORK" SUPPORT & EDUCATION
 * Open to the Public * 
* There is no charge but your designated donations will help us keep this valuable service going! *     

FLETCHER GROUP
First Tuesdays, 1:00-3:00 p.m.
  Fletcher 7th Day Adventist Church
Howard Gap Road and Naples Road, Fletcher, N.C.
(just past Park Ridge Hospital) 
        

NEW HOPE GROUP

Third Tuesdays, 1:00-3:00 p.m.

      New Hope Presbyterian Church

 3070 Sweeten Creek Road, Asheville, N.C. 28803

        (across from Givens Estates)

  

WEAVERVILLE GROUP

Fourth Tuesdays, 1:00-3:00 p.m.

Weaverville First Baptist Church

63 N. Main, Weaverville, NC 28787

(North Buncombe County)

 

  

    For more information on any of the above groups, contact:  
 
                              Mary Donnelly                                                Pat Hilgendorf
                              828.230.4143                                                   828.645.9189         
                        network@memorycare.org                      patricia.hilgendorf@gmail.com
 
 _________________________________________________________________________________________
 

"CAREGIVER COLLEGE"

MemoryCare's educational series for caregivers, offered quarterly

 

A series of 6 two-hour lectures for caregivers of persons with memory disorders.  Sessions are designed to im-prove caregiver understanding of different aspects of dementia care. The instructor for the course will be a staff member of the MemoryCare team. Slides and handouts will be available. Space is limited, please register in advance.  There is no fee for caregivers enrolled in MemoryCare and for others, attendance is $65.00.
  
Course Content:
What Is Dementia?
Transitioning from Independence to Interdependence
Functional and Behaviorial Changes of Dementia
Dementia Treatment Options
Maintaining Your Own Health
Conclusions/Guest Speakers
 
Dr. Margaret Noel, Instructor
Next series begins September 10, 2013
4:00-6:00pm every Tuesday for six weeks
MAHEC Educational Building, Asheville
  
 
For more information or to register,
contact MemoryCare at 828.771.2219 or office@memorycare.org.

 

 

_____________________________________________________________________________________
 
OTHER COMMUNITY SUPPORT GROUPS:
(visit www.memorycare.org for a more complete listing of local support services)

____________________________________________________________________________________

 

 

Memory Loss Caregivers of East Buncombe

An education & support group

sponsored by the

Highland Farms Residents' Corporation

 

Meets every second Tuesday

9:30-11:30 a.m.

Lounge Room 3 (lower level)

J-K entrance of Brookside Building

Highland Farms Retirement Community, Black Mountain, NC

 

* Free and Open to the Public *

 

   For more information, contact:

  Mary Donnelly                                                 Pat Hilgendorf        

828.230.4143                                                       828.645.9189

 

 _____________________________________________________________________________________

 

Early Memory Loss Collaborative

Three Support Groups for persons with early-stage memory loss
facilitated by Jane Sherman and Mel Kelley
 
The New Hope Group
1-3 p.m. on the third Tuesday of each month
(meets concurrently with the MemoryCaregivers Network New Hope Group above)
 
The Biltmore Group

1-3 p.m. on the second Thursday of each month

Biltmore Methodist Church

376 Hendersonville Road  Asheville, 28803

 (Exit 50 off I-40)

   

The Highland Farms Group

9:30-11:30 a.m. on the second Tuesday of each month

(meets concurrently with the Memory Loss Caregivers of East Buncombe above)

 
Initial screening required for all early-stage groups. 
  
  For more information, contact Jane Sherman, 845.641.4680, or JaneShermanEMLC@gmail.com. 
 
 
 
________________________________________________________________________________________
  
OTHER COMMUNITY RESOURCES:
_____________________________________________________________________
  
memory cafe logo
 
 

Memory Cafes  

For Those with Memory Loss and their Friends & Families   

  

First Baptist Church, Asheville
Third Thursdays 1-3pm
5 Oak Street, Asheville, 28801
828-252-4781
lbrown@fbca.net 


Calvary Episcopal Church, Fletcher
Third Saturdays 2-4pm
2940 Hendersonville Road, Fletcher 28732
828-684-6266
bettyrobbins@morrisbb.net 


Unitarian Universalist Congrergation of Asheville
First Wednesdays 2-4pm
Charlotte Street and Edwin Place, Asheville 28801
828-254-6001
asstminister@uuasheville.org 


Senior Resource Center of Haywood County
First Mondays, 1-3 pm
81 Elmwood Way, Waynesville 28786
828-452-2370
shendrix@mountainprojects.org 

 

 

New!

First Baptist Church, Hendersonville

Second Mondays, 1-3 pm
Crosswalk Building, 577 Buncombe St, Hendersonville 28739
828-489-6150

 

* Free and Open to the Public *


Come for Fun, Relaxation, and Socializing in a Caf�-like Setting!

 

 

 

_____________________________________________________________________________________

  

NOTABLE QUOTABLE

 

  

man looking in mirror 

"We are who we are, 

even if we sometimes forget.

                                                                                                   

 

- Agent "K", Men in Black II

 

              


VOLUNTEER OPPORTUNITY

 

 gardening
Do you enjoy working in the garden?
  
MemoryCare is looking for a dedicated, seasoned gardner to assist with the management and maintenance of the garden at MemoryCare's offices on the Givens Estates campus in South Asheville.
  
Please contact Chad at conaty@memorycare.org or 828.712.6094 for more information.
  
Need a Speaker?
 

speaker at podium

 

                     Do you need a program for a group event? 

  

Public education is not only a part of the President's National Plan to Address Alzheimer's Disease, it's a part of MemoryCare's mission statement.

The MemoryCaregivers Network staff can provide speakers on a variety of subjects, including Recognizing Early Warning Signs of Memory Loss, Facts and Fiction about Dementia, Better Communication Techniques, and more.  

 

     Contact us at network@memorycare.org for more information.

 

MemoryCare relies on charitable donations for operations.  Please consider MemoryCare in your estate planning. 

 To visit our website, click on
 
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