Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders |
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December 2012
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Vol 3, Issue 11
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 | Forget-Me-Nots |
forget-me-nots
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Caregiver
Network
News
A newsletter for caregivers of loved ones with memory loss
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HAVE A SIMPLER, MORE ENJOYABLE HOLIDAY
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By Guest Columnist Mel Kelley, Early Memory Loss Collaborative
Holidays can be a stressful time for any of us.
For folks with memory loss and their caregivers they can be challenging and even isolating.
For a happier, healthier holiday try these simple suggestions.
1. Keep the gathering small...6-8 people max if you can. If you must have more than 8, set two tables in separate areas far enough apart that you can't hear conversation from one table to the other.
2. Communicate with all guests beforehand inviting them to join you in making the day more manageable for the person with dementia. Explain to them that your goal will be A QUIETER holiday...one person speaking at a time, everyone else listening. Keep distractions to a minimum. Even beloved and well-mannered pets can be bothersome to someone who isn't used to them. No TV or other noise in the background. If music is part of your tradition choose soft instrumental pieces during meals and conversation time.
3. Plan your party in the 12-4 time period if possible. Many folks with dementia are challenged by sundowning late in the day. If the event lasts longer than 2-3 hours, arrange for your loved one to leave for a time of rest and quiet.
4. Make the most of a "teachable moment" with young people before the day begins, i.e. "Grandpa can't focus as well as he used to but he loves a holiday. Let's all work together to create a special day for him. We are so blessed and lucky to have him and Gran with us. How can you make it better for him?" 5. Honor your caregiver guests by "giving them a break" if possible. Designate a familiar adult or older grandchild as "Grandpa's buddy" thereby freeing up the caregiver to connect with family members and get lots of support and love. 6. Set a table with clear color variations...i.e. white plates on a colored tablecloth or colored plates on a white cloth. Folks with dementia often have depth perception and other vision issues. Prepare in advance for caregivers to cut meat, butter bread, or otherwise prepare the plate before taking it to the table as to not embarrass your guest. Allow them to do their best at the table without comment. 7. Make sure you have more than one gathering area for before and after the meal. Designate one the QUIET area. No more than 3 or 4 people in here at a time. Family members and friends may take turns to visit with Grandpa one on one.
8. Try to include your special guest as much as possible. If they want to help, let them do so in whatever way they can, perhaps teaming them with a grown child or an older grandchild. If they carried a family tradition in the past...carving the turkey, saying the blessing, reciting a poem, try to find a way for them to do so this year too. 9. Surprise your guests with enough leftovers for at least one full meal. Caregivers will be extra delighted!
BE FULLY PRESENT and savor each moment of this special day!
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GIVING THE BEST PRESENCE
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No, that's not a misprint in the title. 
Tis the season for giving presents. Holiday shopping ads, Black Friday sales, and longer store hours send us the yearly message that everything we want is in a store somewhere. But sometimes the best thing you can give may be something you can't find in a store: the gift of yourself.
Chances are that someone on your gift list is living with memory loss - a parent or grandparent, a friend or neighbor. Many of them are losing more than just memories: some of them may have had to give up their homes, or stop driving their cars, or drop out of activities in which they can no longer participate. It's often difficult to understand what to give to persons in these situations. An apron for Grandma, a tie for Grandpa, a book about sailboats for a weekend boater? While these might have been thoughtful and appreciated in the recipient's earlier years, they may not be as appropriate now, and can sometimes even serve as a sad reminder of what once was.
What we need to keep in mind - what people who live with the disease have clearly told us - is that they don't want a bunch of new gee-gaws or the latest gadgets. They want human connection - meaningful, one-on-one, in-the-moment time with a loved one.
It's not as easy as it sounds. We live in a fast-paced society, and it seems to speed up during the holiday season. We are busy, rushed, in a hurry. There's lots of hustle and bustle, more coming and going, constant decorating and wrapping, extra noise and little quiet. All of this is stressful for a person with memory loss. So in the midst of all this hubbub, look for deliberate ways to slow down with your loved one: a stroll down a quiet street, a leisurely chat about what's on their mind at the moment, an hour or so working on a puzzle or listening to familiar holiday music, a companionable cup of tea and a cookie while watching the birds on the feeder - each of these could serve as an oasis of calm in a sea of confusion. Conversation is nice but not required. The goal is simply to be alongside.
The benefits of Being Present aren't limited to those with the disease. Caregivers are feeling the same stress as everyone else this time of year, and a couple of hours of quiet time would go a long way towards helping them cope with the demands of the season. A few caring questions ("How has this been for you?" "What's the hardest thing you're dealing with now?") over lunch would be sweeter than dessert, and have a lot less calories!
This is not to say that there are no good gifts for those living with the challenges of memory loss. Quite the contrary. But do not underestimate the value of your undivided attention. Your presence could very well be the best present your loved one receives.
"Wherever you are, be all there."
- Jim Elliot
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A VISIT TO OUR RESOURCE LIBRARY
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MemoryCare's Lebedeff Eldercare Resource Center provides information to the public on healthy aging, exercise, nutrition, spirituality, age-related illnesses (with an extensive section on memory disorders), caregiving, community resources, ethics and end-of-life care. Books, videos, pamphlets, and journals on these and related topics are available for review and free checkout. This resource room is for anyone who wants to learn more about aging issues: middle aged and older adults, caregivers, and professionals in aging disciplines.

This Month's Staff Pick:
Protecting Your Parent's Money, The Essential Guide to Helping Mom and Dad Navigate the Finances of Retirement
by
Jeff D. Opdyke
Dr. Noel says: "Opdyke, a writer for the Wall Street Journal, delivers a very practical book for anyone who needs a road map to understand the finances of aging. Despite the "parenting your parent" angle that can be disconcerting, I'd recommend it as a beneficial read for older adult parents AND their middle aged children. It covers communication pointers (this is a hugely private matter for most individuals) and important topics including creating income streams for retirement (annuities, reverse mortgages, social security), understanding what Medicare and Medicaid do and don't cover, and financing in home and long term care. There are helpful worksheets to facilitate organizing financial information."
Dr. Peggy Noel is the Founder and Director Emeritus of MemoryCare.
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ATTENTION! HOLIDAY SCHEDULE CHANGES!
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Due to our regularly scheduled meeting days falling on holidays during December and January,
The MemoryCaregivers Network Support Groups
make the following
Holiday Schedule Changes:
* The Weaverville Group *
(which usually meets on the fourth Tuesday of each month)
will meet on
Wednesday, December 19
(same time and place, see Caregiver Calendar below for more details)
* The Park Ridge Group *
(which usually meets on the first Tuesday of each month)
will meet on
Wednesday, January 2, 2013
(same time and place, see Caregiver Calendar below for more details)
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CAREGIVER CALENDAR
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"MEMORYCAREGIVERS NETWORK" SUPPORT & EDUCATION
Funded by a grant from Park Ridge Health
* Free & Open to the Public *
PARK RIDGE GROUP First Tuesdays, 1:00-3:00 p.m. Fletcher 7th Day Adventist Church Howard Gap Road and Naples Road, Fletcher, N.C. (just past Park Ridge Hospital)
NOTE: Due to January's first Tuesday falling on New Year's Day, this group will meet on Wednesday, January 2, 2013 instead, same time and place NEW HOPE GROUP Third Tuesdays, 1:00-3:00 p.m.
New Hope Presbyterian Church
3070 Sweeten Creek Road, Asheville, N.C. 28803 (across from Givens Estates) WEAVERVILLE GROUP Fourth Tuesdays, 1:00-3:00 p.m. Weaverville First Baptist Church 63 N. Main, Weaverville, NC 28787 (North Buncombe County) NOTE: Due to December's fourth Tuesday falling on Christmas Day, the Weaverville Group will be meeting on Wednesday, December 19 instead, same time and place.
For more information on any of the above groups, contact:
Mary Donnelly Pat Hilgendorf
828.230.4143 828.645.9189
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"CAREGIVER COLLEGE" MemoryCare's educational series for caregivers, offered quarterly
A series of 6 two-hour lectures for caregivers of persons with memory disorders. Sessions are designed to im-prove caregiver understanding of different aspects of dementia care. The instructor for the course will be a staff member of the MemoryCare team. Slides and handouts will be available. Space is limited, please register in advance. There is no fee for caregivers enrolled in MemoryCare and for others, there is an attendance fee for the course.
4:00-6:00pm
MAHEC Educational Building, Balsam Room
The next series will begin Spring 2013. Watch this space for details!
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OTHER COMMUNITY SUPPORT GROUPS:
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Memory Loss Caregivers of East Buncombe
An education & support group
sponsored by the
Highland Farms Residents' Corporation
Meets every second Tuesday
9:30-11:30 a.m.
Lounge Room 3 (lower level)
J-K entrance of Brookside Building
Highland Farms Retirement Community, Black Mountain, NC
* Free and Open to the Public *
For more information, contact:
Mary Donnelly Pat Hilgendorf 828.230.4143 828.645.9189
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Early Memory Loss Collaborative
Three Support Groups for persons with early-stage memory loss
facilitated by Jane Sherman and Mel Kelley
The Third Tuesday Group
1-3 p.m. on the third Tuesday of each month
(meets concurrently with the MemoryCaregivers Network New Hope Group above)
The First Thursday Group
1:00-3:00 p.m.
Biltmore Methodist Church
376 Hendersonville Road Asheville, 28803
(Exit 50 off I-40)
The Highland Farms Group
9:30-11:30 a.m. on the second Tuesday of each month
(meets concurrently with the Memory Loss Caregivers of East Buncombe above)
Initial screening required for all early-stage groups.
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OTHER COMMUNITY RESOURCES:
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Memory Cafes For Those with Memory Loss and their Friends & Families First Baptist Church, Asheville Third Thursdays (December 20, January 17), 1-3pm 5 Oak Street, Asheville, 28801 828-252-4781 lbrown@fbca.net
Calvary Episcopal Church, Fletcher Third Saturdays (December 15, January 19)), 2-4pm 2940 Hendersonville Road, Fletcher 28732 828-684-6266 bettyrobbins@morrisbb.net
Unitarian Universalist Congrergation of Asheville First Wednesdays (December 5, January 9), 2-4pm Charlotte Street and Edwin Place, Asheville 28801 828-254-6001 asstminister@uuasheville.org
Senior Resource Center of Haywood County First Mondays (January 7), 1-3pm 81 Elmwood Way, Waynesville 28786 828-452-2370 shendrix@mountainprojects.org
* Free and Open to the Public *
Come for Fun, Relaxation, and Socializing in a Café-like Setting!
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NOTABLE QUOTABLE
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"Cheers to a new year
and another chance for us to get it right."
~Oprah Winfrey

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Need a Speaker?
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Do you need a program for a group event?
Public education is not only a part of the President's National Plan to Address Alzheimer's Disease, it's a part of MemoryCare's mission statement.
The MemoryCaregivers Network staff can provide speakers on a variety of subjects, including Recognizing Early Warning Signs of Memory Loss, Facts and Fiction about Dementia, Better Communication Techniques, and more.
Contact us at network@memorycare.org for more information.
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MemoryCare relies on charitable donations for operations. Please consider MemoryCare in your estate planning.
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