Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders |
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October 2011
| Vol 2, Issue 6
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 | Forget-Me-Nots |
forget-me-nots
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Caregiver
Network
News
A monthly newsletter for caregivers of loved ones with memory loss
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THE GIFT OF SILENCE
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(Submitted by Mel Kelley, a caregiver from Weaverville, N.C.)

Early on in this disease my Dad did better with questions. He could still answer that he slept well or felt good. He could remember stories from his colorful childhood and answer questions about his family members. He could even choose between 2 outfits. Nowadays if I ask him 'Daddy, would you like eggs or pancakes this morning?" he will say "yes!" If I ask about how his visit with a friend went yesterday he will say "I don't think he was here". More often than not I see him withdrawing as the questions get harder to answer. He can't keep up and he doesn't want to get it wrong so he talks less, but everyone keeps questioning him.
Think about it. The average person communicates in questions. "How are you today?" "Isn't it a lovely morning?" "Do you want coffee?" "Did you bring in the paper?" " What time do we have to leave?" " Is there a game today?" " What's for dinner?" "What time should we expect you?" " How are you feeling?" " Can you make a bank deposit?" " Have you seen my underwear/glasses/keys/the cat?" "Do you remember me?" "Don't you know who I am?" I challenge you to get through a day, no, just a 10 minute conversation without asking any questions! Bet you can't do it! Try, and then try again. Begin to speak in statements as much as you can. You know the answer to most of the questions already. Don't worry that you are reducing the choices. Your loved one will probably feel more at ease and have less anxiety when they don't have to worry so much about answers. It will often open the door to deeper communication as well once you stop leading them.
I spend a lot of time telling my Dad stories from our shared past and from his past before me. I tell him the same stories he used to tell me and his Mother used to tell both of us. He likes that. He listens and smiles, touches my arm and sometimes even gets a glimmer of recognition hearing a certain name or place from our history. He may be sparked then to share something with me. I've learned to listen patiently, giving him all the time he needs to tell it.
When conversation wanes and we still have hours to fill I have learned to welcome the silence. There is no deeper communion than sitting together in silence with no expectation of words, no attachment to the outcome. Sometimes we hold hands, other times Dad pats my arm or leans his head to mine. Often he smiles and really looks deeply into my eyes. These moments are so rich and full. I rise from my perch, satiated as if I have just pushed back from a 5 course meal at a table full of friends.

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CAREGIVER FAQs
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Please feel free to share your comments or suggestions, or let us know what questions or concerns you would like for us to cover in future issues, by emailing network@memorycare.org).

My husband has had the bad habit of buying lottery tickets for years now. With dementia it's gotten worse and he's spending $20 a week on what I've reminded him is called The Stupidity Tax. We cannot afford this absurd waste. When he's no longer driving, of course, this will be stopped, but until then, does anyone have any suggestions?
A couple of things come to mind about this issue. First, you need to realize that persons in early stage dementia are beginning to lose their reasoning abilities, so that trying to reason with your husband about his behavior might not work, as you have already discovered. Facts, logic, sarcasm, and lengthy explanations are often lost on a person with impaired memory, so "reminding" him that he's spending unnecessary money isn't very likely to resonate with him. Even if you should ask him nicely not to do it anymore, and he agrees, his short-term memory is probably on the fritz so that he won't remember it later. As he's losing more of himself to the disease, he wants to hold onto as many familiar things as possible, and for some reason, lottery tickets are one of those things. It seems illogical to you, but this isn't a logical disease.
Trying to convince him to put a stop to the behavior by arguing with him probably isn't the best way to go. People with dementia can get quite defensive when they feel that someone's trying to take away their independence. A much better use of your time might be to look for some alternatives that don't involve confrontation. Is it possible to reduce the amount of cash he carries with him, so that he is prevented from spending as much? Perhaps putting a small amount in an envelope marked "lottery tickets" will help him spend less while still allowing him to "have his way." Could you try to find someone else who can accompany him on his trips? Giving them a list of other errands to accomplish will occupy their time and perhaps make it easier to overlook a visit to the convenience store. Distractions at home can also work. Asking his help with some projects he can work on around the house can alleviate feelings of worthlessness and boredom, and occupy his interest. You may have to take the initiative to come up with things, such as sorting through tools or a drawer of junk, or shredding old papers, and might have to get him started on it. Sometimes it's effective to just leave a box of familiar things on the dining kitchen table and see if they spark his interest.
The driving issue is another concern. You don't mention when he was diagnosed, or what stage of dementia he is in, but you do say that at some point he'll no longer be able to drive. Have you talked with his doctor about this? Typically, the person with dementia won't realize when the time has come to give up driving, so someone else has to step in. But as unpleasant as it is for most families to face this issue, it is preferable to the risks of ignoring it. There are lots of ways to handle it; it's a frequent topic in the MemoryCaregivers support group meetings. Knowing what to watch for, and how to introduce the subject, is important in making the transition. It's not too early to be starting this process - a $20 lottery ticket seems pretty mild when you compare it to what could happen if he's in an automobile accident.
As you are finding out, living with a person who has memory loss, even in its mild stage, can be challengting. Perhaps one of the most important things you can do is also one of the most difficult: try to be patient. Recognize that most of the behaviors you are dealing with are coming from the disease, not from him. It's up to you to find the solutions. One of the best things you can do to help yourself is to find out how other people in your situation are dealing with these same challenges. Remember, you don't have to go through this alone!
If you would like to offer a suggestion for this issue, please send your comments to network@memorycare.org.
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The MemoryCaregivers Network Support Groups
announce some exciting changes!
WHAT? The First Tuesday morning and afternoon groups are now combined as ONE First Tuesday group.
WHEN? Starting November 1, there will be only one group on First Tuesdays, from 1:00-3:00 p.m.
WHERE? The group will no longer meet at Calvary Episcopal Church, but will move to Fletcher Seventh Day Adventist Church, Howard Gap Road at Naples Road (just past Park Ridge Hospital). The meeting is in the conference room (come in the main entrance and go down the hall to your left).
WHO? As with all of the MemoryCaregivers Network support groups, this group is for caregivers of persons with memory loss. Meetings are free and open to anyone.
WHAT ELSE IS NEW? A new group has been added to the MemoryCaregivers Network: the Weaverville Group, which meets on every fourth Tuesday at the Weaverville First Baptist Church on Main Street in Weaverville (North Buncombe County), from 1:00-3:00 in the fellowship hall.
MemoryCare gratefully acknowledges funding for the MemoryCaregivers Network support groups from Park Ridge Health. |
CAREGIVER CALENDAR
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MEMORYCAREGIVERS NETWORK
SUPPORT GROUPS
free & open to the public
PARK RIDGE GROUP First Tuesdays, 1:00-3:00 p.m. NEW TIME!! (see Announcement above.) Fletcher 7th Day Adventist Church Howard Gap Road and Naples Road, Fletcher, N.C. (just past Park Ridge Hospital) (This group replaces the former First Tuesday Group which met at Calvary Episcopal in Fletcher) NEW HOPE GROUP Third Tuesdays, 1:00-3:00 p.m.
New Hope Presbyterian Church 3070 Sweeten Creek Road, Asheville, N.C. 28803 (across from Givens Estates) WEAVERVILLE GROUP Fourth Tuesdays, 1:00-3:00 p.m. Weaverville First Baptist Church 63 N. Main, Weaverville, NC 28787 (North Buncombe County) Caregiver Support Groups are funded by a grant from Park Ridge Health
"MEMORYCARE CLUB" Our Support Group for persons with early memory loss
(Initial screening required. Please call for information)
Meets concurrently with the New Hope Group on the Third Tuesday
NOTE: The MemoryCare Club is full at this time, but applications are being accepted for the waiting list. Please contact Jane Sherman, 828.675.4041, or janeshermanllc@mac.com.
For more information contact:
Mary Donnelly Pat Hilgendorf
828.230.4143 828.645.9189
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Understanding and Managing Challenging Behaviors in Dementia
by author and dementia care consultant
Nataly Rubinstein
Wednesday, October 26
2:00 p.m.
Givens Estates
Oxford Commons Performing Arts Center
Please park across from the Givens Estates campus at New Hope Presbyterian Church, 3070 Sweeten Creek Road. A shuttle to Givens Estates is provided.
Free and open to the public. Pre-registration required due to limited seating. Please call 828.771.2219 or email office@memorycare.org.
Sponsored by
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Beyond the Basics of Dementia Care -
Communication When Words Don't Work!
Presented By:Heather McKay, MS, OTR/L Dementia Care Specialist Tuesday, October 11, 2011 1:00-3:00 p.m. in Village Hall (Main Building) Carolina Village Retirement Center 600 Carolina Village Rd. Hendersonville, NC 28792
RSVP required, space is limited
Stephanie Lee 828-692-6275 ext 268
Sponsored by
Mountain Home Care & Carolina Village ____________________________________________________________________________________
PROFESSIONAL CAREGIVER EDUCATION PROGRAMS
MemoryCare's one-day interdisciplinary conference for professional caregivers of persons with dementia (e.g., nurses, CNAs, social workers, therapists), designed to enhance their understanding of essential aspects of dementia care.
Taught by Terry Mulligan, PA-C and Margaret Noel, MD.
Cost is $45 and includes lunch and CEUs. Preregistration required.
Tuesday, October 18, 2011, 8:30 - 5:00 pm
Pardee Hospital Jamison Conference Room, Hendersonville, NC
Presented in collaboration with Margaret R. Pardee Hospital and MAHEC
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FUN FRIDAY for FAMILY CAREGIVERS!
Laughter - Music - Food - Storytelling - Fashion - Juggling Friday, November 4, 2011, 10am - 2pm
Calvary Episcopal Church, 2840 Hendersonville Rd, Fletcher, NC 28730 Respite on site provided on request Please register by October 28 by calling 828.645.9189 or emailing patricia.hilgendorf@gmail.com Sponsored by Land of Sky Family Caregiver Support Program and Local Caregiver Agencies ________________________________________________________________________________ |
NOTABLE QUOTABLES |
"When words become unclear, I shall focus with photographs. When images become inadequate, I shall be content with silence."
- Ansel Adams
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MemoryCare relies on charitable donations for operations. Please consider MemoryCare in your estate planning.
To visit our website, click on
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MemoryCare gratefully acknowledges support from the
Perry N. Rudnick Endowment Fund with the Community Foundation of Henderson County
for making this newsletter possible. |
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