forgetmenots
 
 
Treatment and Support for Families Affected by Alzheimer's and other Memory Disorders
January 2011
Vol 1, Issue 8

 
Forget-Me-Nots
forgetmenots
forget-me-nots

 
  
 Caregiver
 Network
 News
 

 A monthly newsletter for caregivers of loved ones with memory loss

 
 
 
 
COMMUNICATING with DEMENTIA

 

One of the most difficult things for caregivers to do is to change the way they talk with their memory-impaired loved ones.  "Family members simply cannot recognize how severe the memory loss is," says Dr. Beverly Jones, a Winston-Salem geriatric psychiatrist. "They see the same person on the outside and just can't comprehend how different they are on the inside."  word balloon

  

The following list of Communication Tips came directly from individuals with early memory loss.  Keep these in mind the next time you're trying to talk to your loved one:

Speak with a smile, so I know that you care.  A smile takes away tension and helps put me at ease.

If you are tense, remember, I feel your tension too.


Use language I understand - keep it simple, no jargon or slang.  Rephrase information if I'm having trouble understanding.

S-l-o-w down your speech.  I need more time than I used to in order to process what you are saying. 

Keep it short and to the point, one idea at a time. 

Be clear and concise.  Less is better.  I get confused with too much information.

Let me take the time to think through what you said to me.  Remember it takes me extra time to think through the meaning of words.

Let me set the pace of the conversation.  Don't be afraid of a few seconds of silence.

Let me be the leader in the conversation - give me charge of the conversation.  Sometimes there are things I want to talk about but I don't know how to say them.

Make sure you have my attention.  It takes me a while to focus.
Ask me if I can hear you.  Face me when you talk, eye contact helps to get my complete attention.


Give me time... time...time to find the words and to say my thoughts.

Let me finish what I am trying to say, it takes a little longer and sometimes it takes a lot longer.

Take the time to help me get my thoughts out.  Ask me short, simple questions to help find the words.  Words are often confusing.  Sometimes pointing or showing me what you mean can help.

Please repeat information if I ask.

Make sure I hear you, ask if I understand what you have said.

Tone of voice - adjust it up or down.  Louder is NOT always better!


Please, don't interrupt me.

Please be patient!  Don't ever give up on me!  I really DO want to be a part of the conversation.

 

(adapted from Alzheimer's Reading Room)

 

 

To read more about living day-to-day with a memory-impaired individual, click on the following link to an article from the Winston-Salem Journal:

 http://www2.journalnow.com/news/2010/dec/30/wsmet06-advice-to-caregivers-reassure-and-dont-arg-ar-653602/

 

 

WISE WORDS from PEOPLE WITH
EARLY MEMORY LOSS

 

"Our value lies in what we are, not in our ability to recite the recent past."

- a man living with Alzheimer's Disease

 

"I want to go to lunch with friends, complain about the local sports teams and talk about the same stuff they do."

 - Los Angeles 2007 Early Stage Forum

 

"I want to be treated...just like normal.  Alzheimer's isn't my whole life.  I want to be included. I am more than memory or a diagnosis."

- Tommy Thompson, member of NC Red Clay Ramblers

 

 

 

need help?

"All of us, at certain moments of our lives, need to take advice and to receive help from other people."
- Alexis Carrel 

 

  support steps

Are you a caregiver  in need of someone to talk to,
but can't get to our Network Support Group meetings?  Or maybe you just aren't a "group meeting" kind of person?   Let us set you up with a MemoryCare Mentor, another caregiver who's already gone through what you're going through, who can offer you help, advice and comfort, who can talk with you one-on-one on the phone, by email, or in person.  Contact us at 828.230.4143 or network@memorycare.org.  

 


HOW'S your MEMORY? 

 

brain

 

This test will help you determine if your memory's in good working order.   

 

The test has 3 parts:  In the first part, you'll be shown 12 photos.  In the second part, you'll be shown another 12 photos.  And in the third part, you'll be shown 48 photos, and asked if you saw them in the first part, the second part, or not at all.  When you have finished, your results will be given to you.

 

Allow about 15 minutes.  Hint:  you'll do better if you've had enough sleep!

 

Click HERE to begin.

 

 

 

books                   CAREGIVERS

                   BOOK

                   CLUB

 

 

Jan's Story, by Barry Petersen - Emmy-award winning CBS news correspondent's poignant memoir about his wife's early-onset Alzheimer's and its impact on their lives.

 

Still Alice, by Lisa Genova - a novel written from the perspective of a Harvard professor who receives an Alzheimer's diagnosis at the age of 49.

 

Forget Memory, by Ann Basting - emphasizes the importance of activities that focus on the present to improve the lives of persons with Alzheimer's disease and other dementias.

 

The Pleasure Was Mine, by Tommy Hays - a novel.  "...Hays beautifully captures a husband's grief as he watches his beloved wife slip into Alzheimer's....An intimate, loving portrait of a dreaded disease's devastating effects."

 

 

CAREGIVER CALENDAR

 

 
calendar               MEMORYCAREGIVERS NETWORK
                          SUPPORT GROUPS
                                    free & open to the public
     

                                                       FIRST TUESDAY GROUP

     1:00 - 3:00 p.m.

       Calvary Episcopal Church (in the library), Fletcher, N.C.

           Hendersonville Road across from Fletcher Ingles

                                              

THIRD TUESDAY GROUP

1:00 - 3:00 p.m

      New Hope Presbyterian Church

 3070 Sweeten Creek Road, Asheville, N.C.

        (across from Givens Estates)

"MEMORYCARE CLUB"
Our Support Group for persons with early memory loss
(Initial screening required. Please call for information)
Meets concurrently with the Third Tuesday Group
 

 
    For more information about any of these, contact:

                           Mary Donnelly                                             Pat Hilgendorf
                           828.230.4143                                                828.645.9189         
 network@memorycare.org                            patricia.hilgendorf@gmail.com
___________________________________________________________________________________

CAREGIVER WORKSHOP:
"Typical Progression of Dementia - What Can You Do to Help?"
featuring TEEPA SNOW
occupational therapist & nationally respected dementia care specialist

Tuesday, March 1,   2:00 - 4:00 p.m.
Performing Arts Center, Oxford Commons
Givens Estates, 2360 Sweeten Creek Rd, Asheville, 28803
There is no fee, but registration is required. 
Please call 828.274.4801 ext. 2249  or  828.771.2219

Sponsored by MemoryCare

___________________________________________________________________________________

CAREGIVER COLLEGE  

MemoryCare's 12-week education series for caregivers, consisting of six two-hour sessions. 
Classes are held on Tuesdays, 4-6pm
 Cost $100 (free to MemoryCare families)
Prior registration required.  Call (828) 712.2219 to enroll.

The next series begins April 5, 2011.
  ___________________________________________________________________________________


            

NOTABLE QUOTABLES

 
"Walking with a friend in the dark is better than walking alone in the light.."
                                                                
                                                                          - Helen Keller 
 

winter

HAPPY NEW YEAR!
 

MemoryCare relies on charitable donations for operations.  Please consider MemoryCare in your estate planning. 

 To visit our website, click on
 
Join our Mailing List!
 

 MemoryCare gratefully acknowledges support from the

Glaxo-Smith-Kline Foundation's Ribbon of Hope Program

for making this newsletter possible.

glaxo