FEBRUARY  NEWSLETTER
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PEDAL FOR PSC

Charity Bike Ride on Martha's Vineyard to Benefit PSC Partners Seeking a Cure- September 25-27, 2015!
PSCP
2015 PSC Partners Conference Sponsorship
Consider becoming a 2015 Conference Sponsor TODAY.  We welcome corporate and individual sponsors. Click here for  corporate sponsorship opportunities. Click here for community sponsorship opportunities.

Special thank you to our 2015 Conference Sponsors:
 
LONG TERM PREMIER PARTNER
ITW

PATRON PARTNER
 

CHAMPION PARTNER




SUSTAINING PARTNER
Doron and Ruth Blatt
The Crowley and Walters  Families
Abe and Rachel Gomel
The Grover Family Foundation-  Deborah Grover Wente
Don and Ricky Safer
Ken and Patty Shepherd

SUPPORTING PARTNER
Jason and Jennifer Drasner
Steve and Joanne Hatchett
Axel and Karyn Rasmussen
Fred Sabernick
 
COMMUNITY PARTNER 
The Browner Family
Aubrey Goldstein and Caroline Vanneste
Mary Kiani
Robert and Myrna Kirkpatrick
Todd and Erin Litton
Allan and Karen Luks 
The Pearlman Family
Mary Wells
For Federal Employees:
PSC Partners CFC #79370


 
This is the second year progress report from the research grant that was awarded to Rinse K. Weersma MD, PhD, from the University Medical Centre Groningen.
PSC Partners is happy with his results and his plans to continue this research in the future. more
Is now OPEN and ready for you to start thinking about what kind of fundraiser YOU want to participate in!  
 
Take a look at the
fundraising guidelines and contact us if you have any questions.

  

Please join the PSC Partners community and Great Freedom Adventures for this unique opportunity to ride, experience Martha's Vineyard and make a difference for all PSCers by raising funds to support our mission. Pedal for PSC, a three-day charity bike event to benefit PSC Partners Seeking a Cure, is open to the public and will be held September 25-27, 2015 on Martha's Vineyard. We know, with your help and your generous donations, better treatments and a cure are closer than ever before. Help us to raise funds to end this devastating disease.

Mentors Needed

If you have attended one of our patient and caregiver conferences before, please consider volunteering to become a mentor for a first-time attendee. The mentor program is a great way to share your experience, assist a newcomer and get to know more people in the PSC community. Sign up today!   

 

If you have already registered for the conference and did not sign up to be a mentor, please email us.  

PSC Partners Annual Patient and Caregiver Conference
will be held
April 24-26, 2015
in conjunction with 
Baylor University Medical Center
Dallas, TX
Click here to see the agenda

If you are considering coming to the conference, take a look at what the Kennedys have to say about why they attended last year and are coming back this year!

Over a year and a half ago our grandson Ben was diagnosed with PSC. Although many adults as well as children suffer from diseases of the liver, we had never heard of PSC. For us, that of course has all changed. Like many of you who have been touched by PSC, we have made it our mission to learn as much as possible about this rare disease. We started by searching the Internet, reading everything our daughter, Christine and son-in-law John sent us and by attending our first PSC conference in 2014. We primarily attended the conference to support our family but came away from it with a wealth of knowledge and a feeling of hope that we could help make a difference. What a relief to know that there was something, even we, as grandparents, could do. It may seem small but we are comforted that our voice has joined this effort to find a treatment and eventually a cure. We will be in Dallas in April for the next PSC Conference.

 

Kate and Larry Kennedy

Together in the fight, whatever it takes!
ricky 2013   
Sincerely,
Ricky Safer, CEO    
PSC Partners Seeking a Cure

PSC Partners Seeking a Cure | 303-771-5227 | [email protected] | http://www.pscpartners.org
5237 So. Kenton Way
Englewood, CO 80111