PSC PARTNERS
SEEKING A CURE
DECEMBER DUCT ISSUE 
Quick Links
Help find a Cure: Join the Patient Registry!

PEDAL FOR PSC

Charity Bike Ride on Martha's Vineyard to Benefit PSC Partners Seeking a Cure- September 25-27, 2015!  Look for more information next month.

PSCP
For Federal Employees:
PSC Partners CFC #79370

Stay Connected
Like us on Facebook
Registration will be available VERY soon, but you can and SHOULD reserve your rooms NOW!

2015 PSC Partners Conference Sponsorship
Consider becoming a 2015 Conference Sponsor TODAY.  We welcome corporate and individual sponsors. Click here for  corporate sponsorship opportunities. Click here for community sponsorship opportunities.
 

Wishing Everyone a Happy, Healthy New Year!

 

PSC Partners is ending 2014 on a high note! During our tenth anniversary year, we have made significant progress in many areas. We had our highest ever number of participants (330) attend our annual patient/caregiver conference in Denver. more  

 By Rachel Gomel 

 

We were told that no one in the world should need a hepatologist around November 7th and at The Liver Meeting held by AASLD (American Association for the Study of Liver Diseases), we could see exactly why! 9,700 hepatologists from all over the world filled the gigantic halls of the Hynes Center in Boston and left GI clinics empty. more 

 

 
Thank you to Dr. Cara Mack and 
 Dr. James Tabibian who wrote lay  
summaries for our community of the 
 most pertinent PSC information  
provided at the  
AASLD Annual Meeting
.

 

Primary sclerosing cholangitis is a progressive biliary disease that affects children and adults, often resulting in liver transplantation. The cause of PSC is incompletely understood and there are no effective therapies for this disease, leading to controversies in the management of patients with PSC. Furthermore, difference in clinical presentation and treatment exists between children and adults, and hepatologists from both fields have the potential to gain insight into the disease through understanding these differences. To that end, the first ever combined Pediatric Liver Disease and Cholestasis Special Interest Groups symposium was held at the AASLD 2014 meeting with the goal of educating the audience on recent areas of advancement and debate in PSC. more
 
AASLD 2014James H. Tabibian, MD, PhD

 

This year's annual AASLD meeting marked another year with important advancements in liver disease research. While my stay was somewhat brief this time around, I was able to see a number of interesting poster presentations. Ms. Ricky Safer, the CEO of PSC Partners Seeking a Cure, kindly asked if I would summarize the work pertinent to PSC; thus in the forthcoming paragraphs, I'd like to share some of what I believe were some of the most notable studies and findings. more

NORD Rare Diseases and Orphan Products Breakthrough Summit, Washington DC -Breakthrough for PSC Partners

 By Rachel Gomel 

 

Over 7,000 rare diseases, mostly unknown, invisible, dispersed. Why do we know some better than others? Why is there more research for some than for others? More specifically, how can primary sclerosing cholangitis stop being an obscure, exotic mouthful? more

 

In addition to the holiday gifts you buy this season, please consider giving the gift of hope by donating to PSC Partners Seeking a Cure.

 

Your gift to PSC Partners will help you or your loved one by.....more 

 
Our Very Own

Read a fun and interesting article about our very own Laura Bradbury published in the December issue (page 10-11) of Boulevard Magazine!
Together in the fight, whatever it takes!
ricky 2013   
Sincerely,
Ricky Safer, CEO    
PSC Partners Seeking a Cure
PSC Partners Seeking a Cure | 303-771-5227 | contactus@pscpartners.org | http://www.pscpartners.org
5237 So. Kenton Way
Englewood, CO 80111




Copyright © 2012. All Rights Reserved.